Telling the childrenDisclosure challenges and support needs of parents with children at risk for Huntington’s diseaseTwo genetic counsellors in Canada are interested in finding out what kind of support parents access...Find out more...
Telling the childrenResearchers want to hear about the challenges and support needs of parents looking to tell their children about HD. Can you help with this study?Find out more...
Nacho's blogWelcome to Nacho's blog! With all the great strides being taken in Huntington’s disease research, Nacho provides a unique insight into how the search for an effective treatment (cure) for...Find out more...

Global research studies

Predict-HDTYPJP9 months ago00 people shared this0 commentspredictFind out more...

What do young people impacted by HD need?TYPJover 1 year ago143143 people shared this0 commentsResearch study by Michael Orth The needs of young people impacted by Huntington's disease are very important not only to HDYO, but to Michael Orth, on behalf of the European Huntington's Disease Network's Young Adults working group, as well. The Young Adults working group is doing a research study into what young people impacted by Huntington's disease feel they need or lack in terms of information and support.What is the study?The study comes in the form of an online questionnaire which contains a range of questions that focus on what young people impacted by Huntington's disease feel is...Find out more...

Telling the childrenTYPJover 1 year ago9393 people shared this0 commentsDisclosure challenges and support needs of parents with children at risk for Huntington’s diseaseTwo genetic counsellors in Canada are interested in finding out what kind of support parents access when looking to disclose information about Huntington’s disease to at risk children, and what challenges parents face when disclosing this information. What is the study?This research will study the challenges that parents face in telling their children about their own risk for Huntington’s disease as well as identifying support resources used and found helpful for parents.Who can participate?You...Find out more...

Research updates

HDBuzz Research NewsTYPJPover 1 year ago00 people shared this0 commentshdbuzzFind out more...

Nacho's blogTYPJPover 1 year ago213213 people shared this0 commentsWelcome to Nacho's blog! With all the great strides being taken in Huntington’s disease research, Nacho provides a unique insight into how the search for an effective treatment (cure) for Huntington’s disease is progressing. Nacho is a neuroscientist who works for CHDI – an organisation that has been behind the huge increase in funds for Huntington’s disease research over recent years. With his inside knowledge, HDYO highly recommends taking a look at what Nacho has to say on his blog below.http://hdscienceblog.com/Find out more...