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Ask a question KidsTeensYoung adultsJHD
What is HD? TeensYoung adultsProfessionals
How does HD affect people? TeensYoung adults
The HD Gene: Under the microscope TeensYoung adults
Genetic Testing TeensYoung adultsProfessionals
Having children Young adultsProfessionals
The Basics of JHD JHDProfessionals
Living in a family with JHD JHDProfessionals
Living in a family with HD TeensYoung adultsProfessionals
Being at risk TeensYoung adultsProfessionals
Being a young carer TeensYoung adultsProfessionals
Relationships TeensYoung adultsProfessionals
Visiting a care home TeensYoung adultsProfessionals
What does it feel like to have HD? TeensYoung adults
What you can do for someone with HD KidsTeens
Resources for JHD JHDProfessionals
HDYO's Top Tips: Talking to children about HD ParentsProfessionals
Young peoples' experiences of finding out about HD TeensYoung adultsParents
Feeling embarrassed TeensYoung adultsProfessionals
Talking to kids about HD ParentsProfessionals
Parents' experiences of talking to kids about HD Parents
Potential outcomes of not discussing HD ParentsProfessionals
Visiting a care home: Things you can do to help Kids
Creative Expression KidsTeens

About Us

About HDYO Everyone
Forum Terms of Use Everyone
Translator Team Everyone
HDYO Board Everyone
Contacting HDYO Everyone
Feedback Team Everyone
Sharing, Licensing and Reusing HDYO Content Everyone
Supporters Everyone
Terms of Use Everyone
Privacy policy Everyone
Statistics Everyone

News

Can you help? We’re recruiting more translators and volunteers Everyone
Erika highlights the Enroll-HD study: A worldwide research study we can all participate in Everyone
HDYO Receives official support from the Swiss HDA Everyone
HDYO Receives official support from the Belgium HDA Everyone
HDYO Receives official support from the Dutch HDA Everyone
HDYO recruits its first staff member! Everyone
HDYO Receives official support from Swedish HDA Everyone
HDYO Receives official support from Huntington's Western Australia Everyone
Young Adults Education Day, April 27th – Wisconsin, USA Everyone
Spaces available: 18-35’s Young Adult Conference in England, 23/24 February Everyone
HDYO becomes available in Portuguese, Dutch and Italian Everyone
1st Youth Conference in Germany – register now! Everyone
HDYO: Breaking down barriers for young people Everyone
Are you trying to decide whether to be tested for the HD gene? Everyone
The Irish HD Association offers their official support to HDYO Everyone
The Danish HD Association extends their official support to HDYO Everyone
Website update (Oct 2012) Everyone
HDYO confirms youth service partnership with HDAs in both Ireland & Northern Ireland Everyone
HDA in Northern Ireland provides official support for HDYO! Everyone
HDYO is now available in Spanish Everyone
HDYO celebrates 6 months of success! Everyone
HDYO is now available in German Everyone
HDYO: Looking for experiences to help shape our bereavement & loss section Everyone
HDYO: Looking for experiences to help shape our emotional wellbeing section Everyone
HDYO’s redesigning our fundraising section: we want your ideas! Everyone
HDYO Receives official support from the Chilean HDA Everyone
Can You Help with Research for UK HD Documentary? Everyone
UK HD Documentary project needing participants Everyone
HDYO Interview Project: Parents and children from England wanted Everyone
HDYO's Online Store Opens! Everyone
Profiles and personal messaging added to the HDYO website Everyone
Official support for HDYO arrives from Germany Everyone
Roma and Milano both confirm their official support for HDYO Everyone
The HDA confirms their official support for HDYO Everyone
Huntingtons Victoria joins the list of official supporters for HDYO Everyone
The HSC confirms their official support for HDYO Everyone
The HDSA confirms their official support for HDYO Everyone

Videos

Emma's interview Everyone
Maria's interview Everyone
Lucas's interview Everyone
Matt's interview Everyone
Luke's story Everyone
Educational videos Everyone
Jenny's Huntington's Story Everyone
Rhona Macleod - Genetic Counselling Everyone
Marianna & Ewa - Testing Everyone
Michelle - Testing Everyone
Tony - Having children Everyone
Marthe - Emotional wellbeing Everyone
Wayne - Testing Everyone
Marina - Bereavement Everyone
Jeff Everyone
Sherry Everyone
BJ Everyone
Katie Everyone
Nancy Wexler revisits Venezuela Everyone
The Octopus Everyone
Mandy's testing experience Everyone
Out in the Open Everyone
CHDI Conference 2012 Everyone
What's new in HD research Everyone
Talking about HD as a family Everyone
Felicity & David Everyone
Forrester family Everyone
Lewis family Everyone
Sowerby family Everyone
Walters family Everyone
HDYO Trailer Everyone
Marcy McDonald Everyone
Matt Ellison on HDYO Everyone

Books

Hurry up and Wait KidsTeensYoung adultsJHDProfessionals
Huntington's and Me TeensYoung adultsJHDProfessionals
When Given Lemons TeensYoung adultsJHDProfessionals
The Woman Who Walked into the Sea TeensYoung adultsJHDProfessionals
Mapping Fate: A Memoir of Family, Risk and Genetic Research TeensYoung adultsJHDProfessionals
Gene Hunter Nancy Wexler TeensYoung adultsJHDProfessionals
Walking the Tightrope: Living at Risk for HD TeensYoung adultsJHDProfessionals
Learning to Live with HD TeensYoung adultsJHDProfessionals
It's a Bird TeensYoung adultsJHDProfessionals
Talking to kids about Huntington's Disease ParentsProfessionals
Someone Else's Life TeensYoung adultsJHDProfessionals

HD Research

Predict-HD TeensYoung adultsParentsJHDProfessionals
HDBuzz Research News TeensYoung adultsParentsJHDProfessionals
Nacho's blog TeensYoung adultsParentsJHDProfessionals
What do young people impacted by HD need? TeensYoung adultsParentsJHD
Kids and Teens who help a parent with HD (US only) TeensYoung adultsJHD
Telling the children TeensYoung adultsParentsJHD
Opinions around genetic testing (UK only) Young adultsJHD
Kids-HD Study (US only) KidsTeensYoung adultsJHD

HDBuzz

HDBuzz Research Updates TeensYoung adultsParentsJHDProfessionals
HDBuzz Interview TeensYoung adultsParentsJHDProfessionals
HDBuzz

Predict-HD

Predict-HD study TeensYoung adultsParentsJHDProfessionals
Inside PREDICT-HD: The view of a young person TeensYoung adultsParentsJHDProfessionals

Events

European Youth Camp 2010 - Sweden! TeensYoung adultsParentsJHDProfessionals
HDA England & Wales kids camps 2011 KidsTeensParentsProfessionals
HDA's Juvenile HD Weekend 2011 ParentsJHDProfessionals
International Youth Meeting 2011 - USA TeensYoung adultsParentsJHDProfessionals
NYA Day 2011 - USA TeensYoung adultsParentsJHDProfessionals
Scottish Huntington's Association kid's camp 2011 TeensYoung adultsParentsJHDProfessionals
Young Adult Working Group 2010 - Prague TeensYoung adultsParentsJHDProfessionals
Young Adults Conference 2011 - HDA England & Wales Young adultsProfessionals
Dutch Young Adults Conference 2012 Young adultsProfessionals
Young Adults Working Group (YAWG) – Barcelona 2012 Young adultsProfessionals
Young Adults Conference 2012 - HDA England & Wales Young adultsProfessionals

Fundraising

Fundraising stories KidsTeensYoung adultsParentsJHD
The importance of fundraising KidsTeensYoung adultsParentsJHD

Ask a Question

Ask a question for young adults Young adults
Ask a question for teens Teens
Ask a question about JHD JHD
Ask a question for kids Kids
What is life like for a parent whose child has Huntington's disease? Teens
Questions about eating and choking and what people with HD feel Young adults
How do i cope with my dads bursts of anger? Teens
Is it normal for the movements to stop at a certain point in HD? Teens
What's life like for kids whose parents have HD? JHD
What makes people want to be tested for HD? Teens
Are people aware that they might be at high risk of HD? Teens
Is HD more common in specific genders or groups? Teens
Will having HD in my family affect my chances of becoming a nurse Teens
How can we stop these diseases? Kids
What can I do to help with spilling things and falling? Young adults
How can I support my friend whose mom has HD? Young adults
I don't want to get tested - what are the options for having children? Young adults
My mother had huntingtons, do I? Young adults
My dad doesn't have the gene, is it possible for me to? Teens
Can you hold out your tongue in the early stages of HD? Teens
HD, moving house, stress, facebook, cures and carers Kids
How does getting an HD test affect jobs and insurance? Teens
Options for having children Young adults
If no one in my family has been tested can I get tested? Young adults
How can I help my mum? Teens
Jobs and an HD diagnosis Teens
Testing and insurance Teens
Does everyone with the gene get symptoms? Young adults
HD and attention Young adults
I've been showing early symptoms of HD, should I get tested? Young adults
Could I be developing symptomps at 17 Teens
Can I get tested before I'm 18? Teens
What region is most affected by HD? Teens
Repeat count and symptoms Young adults
Multiple sclerosis and Huntington's disease Young adults
School research project questions Teens
Does anyone else get irritated and angry dealing with HD? Teens
What are the chances of getting JHD? JHD
Is there any way to slow down HD? Young adults
Why do people with Huntingtons not talk well? Teens
My big brother has JHD JHD
How can I help my auntie? Kids
Can you help me explain HD? Teens
What are our options for starting a family? Young adults
How many of us will get HD? Teens
My grandad has HD - am I at risk? Young adults
Is JHD common? JHD
My dad has HD Kids
The panel of experts Everyone

Creative Expression

Creative Expression Section KidsTeensYoung adultsParentsJHD
Poems KidsTeensYoung adultsParentsJHD
Graffiti KidsTeensYoung adultsParentsJHD
Videos KidsTeensYoung adultsParentsJHD
Gone Hunting KidsTeensYoung adultsParentsJHD
Tattoos KidsTeensYoung adultsParentsJHD
Pictures KidsTeensYoung adultsParentsJHD
Blogs KidsTeensYoung adultsParentsJHD

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