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Ask question 1Ask a question for teensT14741474 people shared this0 comments

Welcome to the teenagers area in the ‘ask a question’ section. Do you have any questions about Huntington’s disease that you’ve always wondered about? Well here’s your chance because HDYO has gathered a panel of Huntington’s disease experts to answer any questions you may have.

Feel free to send any questions you have using the form below and we will forward it to who we feel is the appropriate expert to answer your question. You are asked to provide a name, age, country and email address. We would appreciate it if you gave your correct age, location and email address. However, you do not need to give your real name if you don’t want to. Only the name, age and location you provided will be shown on this page, your email will remain private.

We try to answer all questions as quickly as possible. Once a question has been answered it will be available to view in this section and - if you provided an email address - we will forward the answer to your email address. If you aren’t a teenager, please be aware that this area is for questions from teenagers that may not be appropriate for your age range.

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Do I need counseling to get tested at 18?T1010 people shared this0 comments

If I want to get tested at the age of 18 when would I have to counseling

Amy, Teen, UK

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Do I have a right to see my dad's test result?T1111 people shared this0 comments

My dad is getting tested for HD (and doesn’t know I know this) do I have a right to find out his test results as I have a 50% chance of getting it if it comes back positive?

Jordan, Teen, UK

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Can you tell if you Huntington’s disease?T3535 people shared this0 comments

Can you tell if you Huntington’s disease?

Kirsten, Teen

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How old do people with HD live to?T1212 people shared this0 comments

How old do people with Huntingtons disease live? Do they die from the disease eventually? How common is Huntingtons disease?

Kirsty, Teen, UK

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My mom isn't showing symptoms, can I get HD?T1111 people shared this0 comments

My grandma had HD. My mom has not been tested but is not showing any symptoms. Can I get HD at my age or when I am older even if my mom doesn’t?

Beth, Teen, Canada

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How do you go about being diagnosed?T1313 people shared this0 comments

Hi , I’m doing a report on huntington disease & I would like to know how does a person with huntington go about being diagnosed . how did it happened.

Tierney, Teen, USA

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Can you be just a carrier?T1414 people shared this0 comments

I was wondering if you could just be a carrier of Huntington’s disease, but still show symptoms or even get the disease?

Gabi, Teen, USA

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Do both parents have to have HD?T1313 people shared this0 comments

Do both parents have to be carriers of Huntington’s disease to pass it on to a future child?

Isaiah, Teen, USA

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If lots of people in your family have HD do you?T1515 people shared this0 comments

If your nan uncles aunties and mom have huntingtons does that mean that you will as well?

Anonymous, Teen

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I'm fine to know but have a phobia of needlesT1818 people shared this0 comments

Hi I’m Elle, My mum, grandad and great auntie have huntingtons and I want to get tested. I’m fine with knowing if I’ve got it or not but the only thing is I have a really bad phobia of needles. I’m desperate to find out but the thought of having a blood test makes me feel sick. Is there anything I can do? Really need some advice.

Elle

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Why might I not want the genetic test?T1717 people shared this0 comments

Hi! I like a lot your page and it’s helping me a lot. Would you tell me three reasons for not to take the genetic test? Thank you very much.

Silvia, Teen, Spain

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How old do you have to be to get tested?T1717 people shared this0 comments

How old do you have to be to get tested for Huntingtons? And how long do you have to go to counseling before you can get tested?

Zoe, Teen, USA

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My Grandmother is at risk. What are my chances?T2020 people shared this0 comments

my grandmother is 81 and is at risk for HD. Her father was the first one to have. What are our chances of inheriting it?

Michael, Teen, USA

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Six questions about testing, symptoms and treatmentT2727 people shared this0 comments

Hello I have some questions regarding the diseases, because my mom has it….

Arvid, Teen, Germany

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Can you inherit HD from your uncle?T2323 people shared this0 comments

Can you inherit huntingtons disease from you uncle?

Shelby, Teen, UK

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If my mother doesn't have HD could I still have it?T2121 people shared this0 comments

My grandmother has huntingtons and we are not sure if my mother has huntingtons because she won’t get tested. I understand that if my mother has it I have a 50% chance of having it. But if my mother doesn’t have it is there still a risk that I could still have it?

Seth, Teen, Canada

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I have a lot of clumsiness and my mum has HD - do I have HD?T2020 people shared this0 comments

My mum has huntingtons, and I think I might have it due to a lot of clumsiness, is there a chance, what is the chance?

Haydon, Teen, UK

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My dad is 77 - can he still get HD?T3434 people shared this0 comments

My grandmother had HD and died aged 75. My Dad is much older than my mother and is now 77 but has no signs of HD. Does this mean that it’s unlikely that he won’t get it and therefore I won’t either?

Sandra, Teen, UK

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Can you get tested for HD anonymously?T2121 people shared this0 comments

Is there a way to be tested for huntington’s anonymously?

Rain, Teen, UK

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My mum does not want to test, can I have JHD?T6969 people shared this0 comments

My grandmother has Huntingtons and we are not sure if my mom has it or not because she does not want to get tested but if she does have symptoms, in our family usually happen at around 40 or so. I am wondering is it still possible that I could have Juvenile Huntingtons

Seth, Teen, Canada

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As an only child do I have a higher risk of HD?T9898 people shared this0 comments

Q. My grandfather and my father had HD; do I have more chances of developing the disease, being an only child?

Nathalila, Teen, Brazil

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Are my symptoms anxiety or Huntington's disease?T135135 people shared this0 comments

Q. My mother has HD and she has 36 CAG repeats. Since she got her diagnosis, 3 months ago, I started an anxiety disorder… Can I develop HD sooner or can this all be psychosomatic, caused by the anxiety that I’m feeling?

Jorge, Teen, Brazil

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My dad's mum has HD, what are my chances?T2626 people shared this0 comments

Q. My dad’s mum has Huntingtons disease, and that scares me a little, what are the chances I could have those genes and could get the same disease?

Erin, Teen, Australia

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How old do I need to be to get tested?T4040 people shared this0 comments

Q. How old do I need to be to get tested?

Madison, Teen, USA

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My mom is 48 and has never had symptoms, am I at risk?T3838 people shared this0 comments

Q. Hi. My grandmother on my mom’s side died of HD at 51. She had five daughters, and they are all above the age of 40. My mom is the youngest at 48. Only one of them had the disease, and she has passed away at 53 years. The rest of them haven’t been tested but never had symptoms. My mom is 48 and has never had symptoms, could I be at risk?

Darby, Teen, USA

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If my brother's baby doesn't have HD will I get it?T4343 people shared this0 comments

Q. I have a question concerning if I’ll be a carrier of this disease. My grandma was the one with Huntingtons and had two daughters my mother and my aunt. Both of them don’t want to get tested for reasons understood. My mother has a 22 year old son who recently had a baby and the baby got tested for hd and came back negative. does this mean my brother got lucky. Does this mean I won’t get it at all?

Marc, Teen, USA

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Why did my grandpa get HD when his father didn't?T133133 people shared this0 comments

Q. Hi my Dad has HD, I was wandering why my grandpa got HD when his father never had HD?

Brad, Teen, Australia

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If my mum has the disease what are the chances of me getting it?T4343 people shared this0 comments

Q. If my mum has the disease what are the chances of me getting it? Also….

Kieran, Teen, UK

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Do people with HD die of the disease or of natural causes?T154154 people shared this0 comments

Q. Do people with HD die of the disease or of natural causes?

Andrew, Teen, USA

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Are there treatments to improve the symptoms?T118118 people shared this0 comments

Q. Is there any treatment that can reverse this slow process or, at least, that can improve the symptoms?

Brenda, 15, Brazil

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What is the youngest recorded age for HD symptoms?T5454 people shared this0 comments

Q. What is the youngest age recorded, of someone having symptoms for Huntingtons Disease?

Tyler, Teen, UK

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What chromosome is mutated in HD?T109109 people shared this0 comments

Q. What chromosome is mutated to have huntintons disorder?

Jabba, teen

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My Dad has HD, am I likely to have it?T122122 people shared this0 comments

Q. My Dad has HD, i was just wandering is it likely for me to get the disease now?

Peter, 14, Australia

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What does HD feel like?T132132 people shared this0 comments

Q. What does it feel like to have HD (Huntington’s Disease)?

Catie, 15, USA

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I don't have a family history, could I have HD?T105105 people shared this0 comments

Q. I don’t have a family history of HD, but I have been noticing some symptoms that seem to be consistent with early HD.

Drew, 18, USA

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Dropping things and being forgetfulT8181 people shared this0 comments

Q. If I tend to drop things easily or forget about something, is it the symptoms for the disease? And how to confirm that I have this disease?

Najah, 18, Malaysia

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How do you test for HD?T8383 people shared this0 comments

Q. I’m writing a paper for school and haven’t found this answer; How do you test for HD? I originally thought it was a blood test but need to know for sure.

Thanks, Darci

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How is HD caused?T105105 people shared this0 comments

Q. what does huntingtons disease really do to your body, how is it caused, how is it cured.

Ashley, 18, USA

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Can you test a baby during pregnancy?T142142 people shared this0 comments

Q. If a women is pregnant and has the potential to have HD disease, can you test the baby while it still being in whom to see if it has HD disease?

Emily, 18, Canada

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How many people are affected?T219219 people shared this0 comments

Q. How many people are affected?

Madison, 14, USA

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My dad had JHD, should I see a doctor?TJ344344 people shared this0 comments

Q. My dad developed juvenile hd in high school at 35 years old over three years ago. Currently I am 17 and I have slurred speech, sometimes even I can’t understand what I’m saying, my family constantly asks me to repeat myself, over and over… do you think I’m showing enough signs to go see a doctor or is it just me being paranoid?

Melinda

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Counselling for testingT114114 people shared this0 comments

Q. I am only 15 however I am looking to the future and thinking about testing. If you do not know if you are going to be tested, do you still get counselling to help you decide?

Oli, 15, UK

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Symptoms take a long time for some peopleT7979 people shared this0 comments

Q. I would like to know why for some HD patients it takes so long for the symptoms to appear. If the gene mutation is there since the beginning, why only when those patients get to their 40’s, symptoms start to be visible?

Victor, 19, Brazil

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Is there a cure?T7474 people shared this0 comments

Q. Is there a cure for Huntington’s disease?

Danielle, 17

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Should I have the test when I turn 18?T130130 people shared this0 comments

Q. Hi, i am nearly 17 and i am at risk of huntingtons disease. I am finding it very hard to make the decision. I feel so tempted to have the test as soon as i am 18 but i just don’t know what to do !

Katie, 17, UK

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The gard proteinT116116 people shared this0 comments

Q. How could the gard protein be inevitable in taking down hd and would it have any side effects ? also could the protein make hd worse?

Keir, Teen, Scotland

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How can there be a difference of 3 repeats in the test?T195195 people shared this0 comments

Q. Hello!

My dad has got the HD Gene. They always take two blood samples. The counts of the mutant gene were the same in both cases. But for the normal gene there was a difference of 3 repeats. How can that be? Can the count of the mutant gene also be insecure?

Thanks

Efa, 18, Germany

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My grandpa yells at my grandma, what should I do?T129129 people shared this0 comments

Q. My grandpa has HD he is always ragging on my grandma for some odd reason, this includes yelling and just breaking down in a tantrum, my grandma always gets down on this should I say anything to my grandpa about what he is doing to my grandma this has been going on for a long time but never get the courage to stand up for her, what should I do?

Kellie, 13, USA

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How does HD affect an individual’s school life?T424424 people shared this0 comments

How does HD affect an individual’s school life?

Latifa, teen, UK

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How should I handle my sister being diagnosed with HD?T280280 people shared this0 comments

My sister (29) was diagnosed with HD some weeks ago? How can I learn to handle this? How shall I behave when I meet her?

Mani, 18, Germany

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My father has convinced himself that Allah has cured him, what should I do?T308308 people shared this0 comments

My father had been admitted into full time care, but has convinced himself that Allah cured him and is constantly arguing with his carers that he should be let out. What’s the best thing I should do?

Megan, 17, Australia

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How can I cope with my mom being overly obsessed with things?T213213 people shared this0 comments

How can I cope with my mom being overly obsessed with things? it has gotten worse since she has gotten sicker and I cant handle it.

Ashley, 17, England

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I have two siblings, is it possible that none of us will get HD?T258258 people shared this0 comments

My mother has Huntington’s Disease and I have two other siblings. I was curious if there was a possibility that all of us would not develop the trait, or if at least one of us will end up with the disease because of the 1 out of every 2.

Kellie, 18, USA

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How old do we have to be to have an HD test?T250250 people shared this0 comments

How old do we have to be to do tests to find out if we are positive or negative? And do we have to do anything prior to having the tests?

Angela, 16-17, Australia

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Is it normal for the movements to stop at a certain point in HD?T292292 people shared this0 comments

My mom has HD and I was wondering is it normal for the movements to stop at a certain point because i noticed she doesnt move as much anymore but has kind of lost touch with reality a little bit so whats happening what does that mean?

Kort, Teen, USA

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How do i cope with my dads bursts of anger?T251251 people shared this0 comments

How do i cope with my dads bursts of anger?

Reuben, 14, UK

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Will having HD in my family affect my chances of becoming a nurseT248248 people shared this0 comments

My mother has huntingtons disease I don’t want to be tested for it but I want to become a nurse will it affect my chances of becoming a nurse?

Sophie

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Is HD more common in specific genders or groups?T624624 people shared this0 comments

Is HD more common in specific genders or groups?

Mary

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Are people aware that they might be at high risk of HD?T860860 people shared this0 comments

Are people aware that they might be at high risk of HD?

Jimmy

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What makes people want to be tested for HD?T234234 people shared this0 comments

What makes people want to be tested for HD?

Brianna-Jennifer

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Can you hold out your tongue in the early stages of HD?T480480 people shared this0 comments

Can one hold out his tongue in the early stages of HD?

Faye

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My dad doesn't have the gene, is it possible for me to?T211211 people shared this0 comments

My Grandma had huntington’s disease, her first child had it, then it skipped my aunt, then her second child had it, then it skipped my dad. My dad got tested, and doesn’t have the gene. Is it possible for me to get Huntington’s disease?

Louise

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How does getting an HD test affect jobs and insurance?T315315 people shared this0 comments

If I test for HD and am positive. What impact does this have on jobs/careers/mortgages/insurance etc?

Izzy

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How can I help my mum?T457457 people shared this0 comments

How can i help my mum who has the disease?

Ellie

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Can I get tested before I'm 18?T234234 people shared this0 comments

Is there any chance i can get tested before the age of 18?

Sam

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Could I be developing symptomps at 17T205205 people shared this0 comments

My dad has HD and I’m only 17 and I’m scared that I’m already developing symptoms, as I looked them up, is this possible for me to develop the symptoms of HD at my early age?

Joshua

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Testing and insuranceT206206 people shared this0 comments

Is it better for me to put down on forms that I may have HD, or that I do have it?

Kiran

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Jobs and an HD diagnosisT219219 people shared this0 comments

Can being diagnosed with HD affect the kind of job you get in future?

Elli

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What region is most affected by HD?T11951195 people shared this0 comments

What region in the is more world affected by HD than the rest of the world?

Kimberly

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School research project questionsT155155 people shared this0 comments

I am currently doing a project on Huntington’s disease for school and I had a few questions concerning the disease.

Camilla

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Does anyone else get irritated and angry dealing with HD?T142142 people shared this0 comments

I’m 19 years old and My mom was diagnosed with huntingtons when i was in elementary school, she is in the middle stages now, but seems to be doing well on her trial medicines and tests. I have 2 sisters and I feel like I am so hostile towards my mom all of the time. I stay in my room and almost everything she does, irritates me. I don’t like feeling this way, but i can’t help it. Does anyone else get this way?

Sarah

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Why do people with Huntingtons not talk well?T229229 people shared this0 comments

Why do people with Huntingtons not talk well?

Rebecca, 13, England

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Can you help me explain HD?T769769 people shared this0 comments

My friends don’t understand what HD is and I don’t know how to explain it best. Can you help me explain it better?

Tom, 16, Canada

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How many of us will get HD?T953953 people shared this0 comments

Me and my two brothers are all at risk. How many of us will get HD?

Sarah, 15, America

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The panel of expertsKTYPJP25282528 people shared this0 comments

Who are the experts? Find out about our panel of experts here!

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