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About HDYOEveryone3 months ago312312 people shared this0 commentsGet to know the HDYO Board Take a look at the HDYO Translator Team Check out HDYO's Feedback Team What is the HDYO?The Huntington's Disease Youth Organisation is an international non-profit voluntary organisation set up to specifically provide support for young people around the world impacted by Huntington's disease.How is HDYO run?HDYO is special - it is run entirely by young people for young people. Whether it is the HDYO board, which contains young people who are from families affected by Huntington's disease, or the HDYO translators who translate all HDYO's material - young people are...Find out more...
Forum Terms of UseEveryoneover 1 year ago141141 people shared this0 commentsHDYO strongly encourages equality and understanding between all members of the forum. Please show respect for people's decisions, experiences and feelings at all times (even when you disagree with their view). Respect each other's rights at all times. Those not showing respect may lose their right to participate on the forum.HDYO Forum Terms & ConditionsTake a moment to review the Terms and Conditions below. Once you start using the HDYO Forum you are deemed to have accepted and agreed to be bound by these Terms and Conditions. HDYO reserves the right to prohibit (ban) you from using this...Find out more...
Translator TeamEveryone6 months ago230230 people shared this0 commentsHDYO's mission is to support young people affected by Huntington's disease all over the world. In order to provide support, HDYO produces a huge amount of informative and educational content for young people and their families affected by Huntington's disease. All of this content has to be translated into as many languages as possible to ensure that young people have access to the information that may help them live positively despite Huntington's disease being in their lives. You can see how much progress we have made towards translating HDYO's content on our statistics page. The...Find out more...
HDYO BoardEveryoneabout 1 year ago126126 people shared this0 commentsHere you will find a list of current HDYO board members, along with a brief introduction of how they are connected to Huntington's disease and why they work on HDYO.Matt Ellison (founder)Role: Project Overseer & Translator Coordinator Hello! Firstly, I am pleased you have found HDYO and I hope the content on our site proves to be helpful for you. I come from a family that is affected by Huntington's disease. My father was diagnosed with the disease when I was 7 years old and I grew up witnessing him progress with the condition. This had a big impact on my childhood, especially my teenage...Find out more...
Contacting HDYOEveryoneabout 1 year ago348348 people shared this0 commentsIf you are a young person and would like to talk to someone about anything on your mind (HD or not), HDYO is willing to listen and understand. You can contact us at the following email address: support@hdyo.org Feel free to send an email, any discussion with HDYO is confidential.What does confidential mean?Confidentiality means not telling anyone else about what you've said. It means that you can feel safe talking to us about something that is happening to you, or how you feel about something, knowing that no one else will find out.Is HDYO Confidential?We always want to keep emails to HDYO...Find out more...
Feedback TeamEveryoneabout 1 year ago116116 people shared this0 commentsHDYO's main aim is to support young people affected by Huntington's disease around the world. In order to provide this support, HDYO produces a huge amount of informative and educational content for young people and their families affected by Huntington's disease.HDYO strives to provide appealing, factually correct, educational material for young people impacted by Huntington's disease. To ensure that young people are receiving the highest quality of information about Huntington's disease possible, HDYO has a Feedback Team consisting of very capable and knowledgeable professionals and...Find out more...
Sharing, Licensing and Reusing HDYO ContentEveryoneover 1 year ago186186 people shared this0 commentsOne of HDYO's ambitions is to spread high-quality, educational information for young people impacted by Huntington's disease around the world. Therefore we actively encourage individuals and organisations to use HDYO material. HDYO's content has a Creative Commons License which allows individuals and organisations to use HDYO material freely for personal and non-commercial uses. Most of HDYO's content can easily be downloaded or shared. If you want to use HDYO's material on your individual or organisation's website, then you may do this without need for permission from HDYO - however, we...Find out more...
SupportersEveryone11 months ago277277 people shared this0 comments HDYO would like to thank those organizations that provide their official support and annual funding for HDYO. Your support allows us to focus on improving the support available for young people impacted by Huntington's disease.HDYO would also like to thank those individuals or groups that have donated funds to the HDYO project. Without the support of these groups and individuals HDYO would not be where it is today. So thank you very much to:The HDA Jersey Branch - for an unexpected and very welcome show of support The HDA Merseyside Branch – an amazing contribution to the HDYO cause Rhona...Find out more...
Terms of UseEveryoneover 1 year ago200200 people shared this0 commentsHDYO's Statement of IntentHDYO intends to provide support and educational information to young people around the world impacted by Huntington's disease.HDYO's DisclaimerAdvice received via the HDYO web site should not be relied upon for personal, medical, legal or financial decisions and you should consult an appropriate professional for specific advice tailored to your situation.HDYO's educational material may be used by individuals or organisations for personal and non-commercial uses that correspond with HDYO's Creative Commons license.The name and mark, HDYO and its attendant logos and...Find out more...
Privacy policyEveryoneover 1 year ago190190 people shared this0 commentsThis privacy policy sets out how HDYO uses and protects any information that you give HDYO when you use this website.HDYO is committed to ensuring that your privacy is protected. Should we ask you to provide certain information by which you can be identified when using this website, then you can be assured that it will only be used in accordance with this privacy statement.HDYO may change this policy from time to time by updating this page. You should check this page from time to time to ensure that you are happy with any changes. This policy is effective from February 2012.What we...Find out more...
StatisticsEveryoneabout 1 year ago00 people shared this0 comments/statisticsFind out more...