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European Youth Camp 2010 - Sweden!TYPJPover 1 year ago9595 people shared this0 comments August, 2010, saw the return of the European youth camp, only this time instead of Scotland, it was in Sweden! The camp was a week long, and there were around 30 young people from several different European countries in attendance.Day one was spent doing team-building exercises in order to get to know each other. We also got split in to our 'discovery groups', which were groups that we would meet each day in and discuss Huntington's disease. Each group had a camp leader present ready to provide any support required or answer any questions. Day two was beautiful. We went on a boat trip for...Find out more...
International Youth Meeting 2011 - USATYPJPover 1 year ago9393 people shared this0 commentsIn June, 2011, the first ever International Youth Meeting for HD was held in Minnesota, USA. The youth meeting consisted of 22 young people from 11 different countries all gathering together to discuss youth support in their region. What's more, the meeting was organised and run by young people from the Young Adults Working Group. The meeting was held over 3 days, with 1 full day and 2 smaller sessions on the other 2 days. Day one was all about youth support and how to improve it. Firstly we had an introduction session, where all the young people introduced themselves and provided their...Find out more...
NYA Day 2011 - USATYPJPover 1 year ago8888 people shared this0 comments The 7th Annual NYA Day at the 2011 HDSA National Convention in Minneapolis, MN was another great success and a highlight of a fabulous weekend. Over 60 young people from around the country (and world) gathered together on Thursday June 23rd in an effort to meet and connect with others in similar situations affected by HD. The goal was for young people to realize that they are not alone and to make connections and friendships with others to take home after the convention. Throughout the course of the day there were round table discussions, educational talks and special guests who joined in...Find out more...
Scottish Huntington's Association kid's camp 2011TYPJPover 1 year ago8484 people shared this0 comments In beautiful July, 2011, it was time to spend a week in the lovely Lagganlia Outdoor Activity Centre, Inverness-shire, in Scotland. It was there where the SHA's kids' camp for 2011 was to be held. 49 Young people from Scotland (and also Ireland) attended the camp!After all the kids were settled into their accommodation, it was time for some food and football to kick things off (get it? 'Kick' things off? No... never mind). Usually football consists of 11 v 11, but apparently not in Scotland, as everyone got involved in the game - which made me a great, fun game of footy. 'Playing football...Find out more...
Young Adult Working Group 2010 - PragueTYPJPover 1 year ago8383 people shared this0 commentsIn September, 2010, the Young Adult Working Group (YAWG) for EHDN met to discuss improving support for young people affected by Huntington's disease. The YAWG consists of a mix of young people affected by Huntington's disease and professionals with an interest in youth. Any young person can join the YAWG if they want to be involved and work to improve youth support in their region.At the meeting in Prague, we had a great turnout, with around 30 people in attendance from over a dozen different countries. We started the meeting with an introduction to HDBuzz, by Jeff Carroll and Ed Wild....Find out more...
Young Adults Conference 2011 - HDA England & WalesYPover 1 year ago4646 people shared this0 commentsFor the past few years the HDA in England and Wales has been holding a conference specifically for young adults impacted by Huntington's disease. It has been a very successful addition to the events calendar, with young adults fully booking the conference for 3 years running. In 2011, there were about 55 young adults, between 18 and 35, who attended the conference. They were treated to an inspirational talk on by Sarah Winckless, a former British Olympic (medal winning) rower, who also comes from a family affected by Huntington's disease. She brought her medals along for people to check...Find out more...
Dutch Young Adults Conference 2012YPabout 1 year ago5151 people shared this0 comments On Saturday the 3th of March there was a Youth Day organised by the Huntington Association. The theme of this day was: How does Huntington Disease affects you and your life? Around 11 o clock we all gathered around at a table, drinking coffee or tea accompanied with a cookie. Everybody was socializing with each other and asking how life has been and how life is at the moment. When everybody was present we traditionally let everybody tell their name, what his or her connection was with Huntington Disease and what they had been thru. There were some new members but I guess they felt very...Find out more...
Young Adults Working Group (YAWG) – Barcelona 2012YPabout 1 year ago4343 people shared this0 comments In February, 2012, the YAWG met in Barcelona. The YAWG is one of many working groups formed by the Euro-HD Network (EHDN). Most of the working groups are clinical or research focused, but the YAWG is for young adults around the world who are impacted by HD. The purpose of the YAWG is to improve support networks for young people in countries around the world and the group generally meets 1-2 times a year in various locations.It was the turn of Barcelona, Spain, to host the YAWG meeting. Around 30 young people and several professionals from various countries turned up for the meeting. On...Find out more...
Young Adults Conference 2012 - HDA England & WalesYPabout 1 year ago3939 people shared this0 commentsThis March, the HDA in England and Wales held their 4th annual young adult HD conference in Telford, England. Once again it was a sell-out success, with around 40 young people between the ages of 18-35 all merging on Telford for the weekend. The Saturday began with the traditional ice breaker, which involved moving around the room depending on what answer you thought of for the questions being given out. This, followed by a lovely lunch, gave all the young people a chance to get to know each other and socialise. After lunch we got down to business and the first speaker was HDYO's very own...Find out more...