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My mother had huntingtons, do I?Q. My mother had huntingtons and some doctors said the disease HAD to be passed.... BUT, some said that it COULD be passed.... My question is, does it HAVE to be passed or what?Shanda, 18, USA A....Find out more...
What do young people need?Researchers want to know what support young people currently lack and would like to have. Want to help?Find out more...
Ask a questionHave a question about HD? Get it answered here by HD experts from around the worldFind out more...
What can I do to help with spilling things and falling?Q. I recently tested positive for HD. I was wondering if any one has any ideas about how to help with spilling things, and falling? Seriously, considering a sippy cup, :DBritt, USA A. Dear Britt,...Find out more...

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Ask a question for young adultsY8 months ago6565 people shared this0 comments

Welcome to the young adults area in the 'ask a question' section. Do you have any questions about Huntington's disease that you've always wondered about? Well here's your chance because HDYO has gathered a panel of Huntington's disease experts to answer any questions you may have.

Feel free to send any questions you have using the form below and we will forward it to who we feel is the appropriate expert to answer your question. You are asked to provide a name, age, country and email address. We would appreciate it if you gave your correct age, location and email address. However, you do not need to give your real name if you don't want to. Only the name, age and location you provided will be shown on this page, your email will remain private.

We try to answer all questions as quickly as possible. Once a question has been answered it will be available to view in this section and - if you provided an email address - we will forward the answer to your email address.

If you aren't a young adult, please be aware that this area is for questions from young adults that may not be appropriate for your age range.

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What can I do to help with spilling things and falling?Yabout 1 month ago00 people shared this0 comments

I recently tested positive for HD. I was wondering if any one has any ideas about how to help with spilling things, and falling?

Britt

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How can I support my friend whose mom has HD?Yabout 1 month ago00 people shared this0 comments

I have a friend whose mom has Huntington’s disease and he has a 50% that one day he will one day develop the disease as well. How can I help him stay calm?

Marilyn

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I don't want to get tested - what are the options for having children?Yabout 1 month ago00 people shared this0 comments

My great-grandmother had HD and I'm thinking about having children in the future. Am I being too cautious/paranoid about it all as my risk is low? Secondly, do you think I would be allowed to adopt a baby with my partner given my at-risk status?

Amy

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My mother had huntingtons, do I?Yabout 1 month ago00 people shared this0 comments

My mother had huntingtons and some doctors said the disease HAD to be passed…. BUT, some said that it COULD be passed…. My question is, does it HAVE to be passed or what?

Shanda

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Options for having childrenY3 months ago22 people shared this0 comments

I was wanting to know how the natural birth is meant to happen?

Lara

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If no one in my family has been tested can I get tested?Y3 months ago22 people shared this0 comments

If no one in my family has been tested can I get tested? Also would you want to be the one to tell your mother and grandfather they both DEFINITLY have Huntington's?

Jeff

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I've been showing early symptoms of HD, should I get tested?Y7 months ago1010 people shared this0 comments

I've been showing early symptoms of HD, should I get tested?

Brittany

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Does everyone with the gene get symptoms?Y6 months ago99 people shared this0 comments

Even though you are positive for the gene, does that mean you are for sure going to develope symptoms?

Kierstan

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HD and attentionY6 months ago99 people shared this0 comments

My father suffers from HD and he always tells us to shh but then he talks away to us.

Ash

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Repeat count and symptomsY9 months ago1111 people shared this0 comments

Does my repeat count affect when I'll get HD symptoms?

Nancy

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Multiple sclerosis and Huntington's diseaseY9 months ago88 people shared this0 comments

I have multiple sclerosis and the HD gene, how do I know if the HD has started?

Antionette

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Is there any way to slow down HD?Yabout 1 year ago2525 people shared this0 comments

My mother has HD, along with one of my uncles and one of my aunts. My grandfather also had HD but he has passed on. I am unsure about having children because of this disease, and I am also unsure if i ever want to get tested, simply becuase of the emotional scars I have already undergone. So my question is this, if i were to have HD, what can i do RIGHT NOW in my life to help slow down the effects of this disease?

Maria, 21, USA

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What are our options for starting a family?Yover 1 year ago3232 people shared this0 comments

My partner and I are thinking of starting a family, but I don't want to have any kids at risk of HD. What are our options? Where should we go for help?

Lucy, 26, England

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My grandad has HD - am I at risk?Yover 1 year ago4343 people shared this0 comments

I have just found out about Huntington's disease being in my family, my granddad has been diagnosed with it at the age of 71. My mom doesn't know if she has it yet. Am I at risk? If so, can I get tested?

James, 21, USA

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The panel of expertsEveryoneabout 1 year ago127127 people shared this0 comments

Who are the experts? Find out about our panel of experts here!

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