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HDYO: Looking for experiences to help shape our bereavement & loss section

July 19, 2012

Huntington's Disease Youth Organization

HDYO has more information about HD available for young people, parents and professionals on our site:


19 July 2012

Hi Everybody,

HDYO is creating a brand new section to cover the topic of loss and bereavement. The section will focus on helping and supporting young people to cope with the loss of someone to HD or anything else.

We are looking for young people impacted by HD who have gone through either loss or bereavement to share their experiences with HDYO so that we can learn from what you went through and produce the most accurate and appropriate support & information for young people who may currently be experiencing such situations.

Any young person who feels they would like to share their experience and feelings of loss or bereavement please contact me at matt@hdyo.org. Your experiences are invaluable in helping HDYO create the best information for young people impacted by HD.

We recognise that talking about these subjects can be difficult at times and we want to assure you that any contact with HDYO will be completely confidential and in a supportive environment.

Thank you.

Matt, News Update Reporter, HDYO

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