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Clare Inspires a Community!

March 25, 2022

Huntington's Disease Youth Organization

HDYO has more information about HD available for young people, parents and professionals on our site:


HDYO depends on the generosity of supporters to offer free programs for young people and families impacted by HD. Clare ran a half marathon to raise funds for HDYO and inspired the community around her in honor of her mom. She also continues to inspire the team at HDYO!

If you're interested in doing your own fundraiser, contact jenna@hdyo.org.

Here's Clare's Story: It's 2 years this month since I was due to run the original London Landmarks Half Marathon in 2020 to raise money for HDYO, an amazing charity that helps young people impacted by Huntington's Disease. I've been a volunteer board member for the last few years. I'd trained, we'd fundraised, including a fantastic quiz held Feb 20. Then, Covid struck and everything was cancelled - just after I'd done my last long run!

The race was rearranged for August 2021. Sadly, we had lost Mum to HD in the January so I ran it for her and took up my fundraising again.

This and the pandemic were not the best circumstances to train for a race, but it was an amazing event. I had a great cheering squad in my sister Jo and had a really fun time exploring the London Landmarks. It kept my mind off the running! 2021 was also the year of a big birthday, so I wanted to raise money throughout the year.

Amazingly over the last 2 years, I've raised £4100 for HDYO. That includes the quiz, sponsorship for the 2020 & 2021 and some very generous donations from friends and family. That money will help young people impacted by HD something that I'm very passionate about.

I just want to say a big big THANK YOU to everyone who contributed to this fantastic amount. You are all so generous. I'm very lucky to have such amazing friends and family. You've been such a support throughout! The quiz will be back! A great way to raise money!

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