x
<span class="translation_missing" title="translation missing: en.hdyo.land.loading">Loading</span>
X
Home Language What is HD? New to HD? Find Resources Research Ask for Help About HDYO News Videos Store Join Mailing List Kids Teens Young Adults Parents and Family JoHD Friends Professionals DONATE! Privacy Contact Us

Advocacy Alert - How you can help us better understand pre-symptomatic Huntington’s Disease

June 13, 2022

Huntington's Disease Youth Organization

HDYO has more information about HD available for young people, parents and professionals on our site:

www.hdyo.org

Let's work together to bring the patient perspective into research

Huntington’s Disease (HD) community members, Seth Rotberg and BJ Viau, are conducting a short (~10 minutes) research survey to gain a deeper understanding of the impact Huntington’s Disease has on people before they’ve been clinically diagnosed. If you’re 18+ years old, reside in the U.S.A, and are either at-risk or pre-symptomatic for HD, we encourage you to share your experience. The results will be completely anonymous and will help us show the risk presymptomatic patients are willing to take to participate in studies prior to showing symptoms.

For more information or to take the survey, click on the link below. Thanks for your time and willingness to help out the HD community.

Survey Link: https://www.surveymonkey.com/r/W33TFWQ

Our content is split into different groups. Choose the group that best describes your needs for more information on HD.

Kids Teens Young Adults Parents and Family JoHD Friends Professionals