x
<span class="translation_missing" title="translation missing: en.hdyo.land.loading">Loading</span>
X
Home Language and Accessibility What is HD? New to HD? Find Resources Research Ask for Help About HDYO News Videos Store Join Mailing List Kids Teens Young Adults Parents and Family JoHD Friends Professionals DONATE! Privacy Contact Us

HDYou Community Stories: Engaging with the FDA

August 24, 2022

Huntington's Disease Youth Organization

HDYO has more information about HD available for young people, parents and professionals on our site:

www.hdyo.org

HDYou Community Stories presents “Engaging with the FDA” today at 12 pm EST on Facebook and YouTube.

Big change for the Huntington’s disease community can come from telling your story. Advocates BJ Viau and Seth Rotberg decided to do just that by holding a listening session with the FDA last month. They, along with other community members like Lauren Holder, did so in the hope of encouraging the acceptance of allowing pre-symptomatic community members to participate in clinical trials. Learn more about their story and how you may be able to become involved in the US or how to start the conversation in your own country.

For additional languages and closed captioning, watch on YouTube.

Special thanks to our sponsors: uniQure, Neurocrine Biosciences and Sage Therapeutics.

*The videos will remain available on Facebook and YouTube directly after the premiere.

Our content is split into different groups. Choose the group that best describes your needs for more information on HD.

Kids Teens Young Adults Parents and Family JoHD Friends Professionals