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Huntington's Disease Youth Organization

Forum Support Team

HDYO has more information about HD available for young people, parents and professionals on our site:

HDYO’s forum is a great space especially for young people impacted by HD from around the world to share experiences with each other and offer support or advice to help others. It is used by many young people from various countries, who bravely share their experiences of HD. It is important then that the young people who post on the forum are appropriately supported while they are using it. This is what HDYO’s Forum Support Team do! HDYO has trained two young adults from the HD community to moderate the forum and provide support or assistance when needed. Both have been trained with a basic counselling approach in order to ensure that every post a young person makes is responded to in a supportive and appropriate way. Meet our wonderful team below!

Chelsie (on the right)

HDYO Forum Support Team

Hey Everyone,

My name is Chelsie. I am 22 years old. I am from Arnprior, Ontario, Canada, but I am currently finishing up my last year of Teacher’s College at Nipissing University in North Bay, Ontario, Canada. I will be a qualified teacher in a month, if only there were jobs! I enjoy baking, playing video games and have taken an interest in art. I knew that HD was in my family, but only found out that I was at risk when I was 18. I got tested as soon as I could and found out that I am gene-positive, pre-symptomatic. 1 out of 3 kids isn’t bad in my opinion.

I got involved as a HDYO forum moderator in March 2013. I think it is a great spot to talk to others who might have the same questions or similar experiences. I wish it was around when I was going through testing. After getting tested, I really struggled to find support because none of my siblings were positive and my local chapter scared me because it was all people who already had symptoms. I managed to dig deep, look past all the negative thoughts and find myself. I don’t want any other young person to feel the way I felt during that time, which is why I think it is important to be available for others.



Ally (left, in picture)

My name is Ally, and I’m from Canada. I’ve been actively involved with the HD community for about 6 years now, and I really enjoy it. My mom passed away from HD, and 2 of out 3 of my sisters have been diagnosed with HD. I’m currently finishing up my pharmacy degree, so I’m pretty busy! On my down time, I like running, walking my dog, doing yoga, and making crafts!

I really love being a forum moderator for HDYO. It helps me work on my communication skills as a health provider, and I like being able to help people get access to resources and just be there for people. I got involved with HDYO because I’m not really big into fundraising, but I wanted to get involved and help make a difference in people’s lives. Being the HDYO forum moderator has been very fulfilling!