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Contacting HDYO

December 22, 2020

Huntington's Disease Youth Organization

HDYO has more information about HD available for young people, parents and professionals on our site:


Contacting HDYO

General contact

For all general inquiries or questions contact info@hdyo.org


If you would like to talk to someone with someone at HDYO for support or advice then you can contact us at the following email address: support@hdyo.org Feel free to send an email, any discussion with HDYO is confidential.

What does confidential mean?

Confidentiality means not telling anyone else about what you’ve said. It means that you can feel safe talking to us about something that is happening to you, or how you feel about something, knowing that no one else will find out.

Is HDYO Confidential?

We always want to keep emails to HDYO confidential, but if we are very worried about your safety or the safety of others, we will talk to you about whether other people need to know.


If you would like to give feedback on our content, the site, or our organisation in general, please email us at feedback@hdyo.org.


Matt Ellison (founder) – Project Coordinator: matt@hdyo.org

Cat Martin – Chief Executive: catherine@hdyo.org

Chandler Swope – Director of Youth Services for USA: chandler@hdyo.org

Board and other key emails

BJ Viau – Chair of HDYO board: bj@hdyo.org

HDYO Translation Coordination Team: matt@hdyo.org

HDYO News Team: newsteam@hdyo.org

HDYO Representatives Team: reps@hdyo.org

Postal addresses


PO Box 60160
Washington DC


PO Box 6622
CV12 2DD