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Huntington's Disease Youth Organization

Contacting HDYO

HDYO has more information about HD available for young people, parents and professionals on our site:

General contact

For all general inquiries or questions contact


If you would like to talk to someone with someone at HDYO for support or advice then you can contact us at the following email address: Feel free to send an email, any discussion with HDYO is confidential.

What does confidential mean?

Confidentiality means not telling anyone else about what you’ve said. It means that you can feel safe talking to us about something that is happening to you, or how you feel about something, knowing that no one else will find out.

Is HDYO Confidential?

We always want to keep emails to HDYO confidential, but if we are very worried about your safety or the safety of others, we will talk to you about whether other people need to know.


If you would like to give feedback on our content, the site, or our organisation in general, please email us at


Matt Ellison (founder) – Project Coordinator:

Cat Martin – Chief Executive:

Chandler Swope – Director of Youth Services for USA:

Board and other key emails

BJ Viau – Chair of HDYO board:

HDYO Translation Coordination Team:

HDYO News Team:

HDYO Representatives Team:

Postal addresses


PO Box #272185
Boca Raton
Florida, USA


PO Box 6845
CV12 2BZ