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Huntington's Disease Youth Organization

Top tips for helping a person with HD

HDYO has more information about HD available for young people, parents and professionals on our site:

www.hdyo.org

Written by Michaela Crutsinger, OTDS

Edited by K. M. Knewstep-Watkins, OTD, OTR/L

This section is here to help young adults look after their family member who has HD by offering some tips on caring. These tips are split into different topics and stages of HD (early, mid and late stage). We hope you find this section helpful.

Early Stage

Eating and Meals

A family member with new symptoms of HD may have some difficulties while making and eating meals. Mealtime difficulties are often due to new issues with either motor control and/or cognition.

Art

Getting Dressed

A person with HD can have trouble with fasteners, such as shoelaces, buttons, and zippers. Fasteners can take more time, attention, and effort to do because they may begin to have difficulty with making small, controlled hand movements. At other times, some people with HD may become more likely to forget to line-up the fasteners or forget to do the fasteners.

Art

Using the bathroom

Driving

For some people with HD, they can continue to be a safe driver for years. However, other people with HD are limited by changes and challenges in motor control, cognition, and visual perception. All of these can limit driving safety.

Mobility

Home safety

Thinking/Cognitive

Middle Stage

Eating and Meals

Driving/Transportation

Mobility

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Home Safety

Thinking/Cognitive

Late Stage

Eating

Staying at home

Mobility

Art

Home Safety

Thinking/Cognitive