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6 Years of HDYO

February 16, 2018

Huntington's Disease Youth Organization

HDYO has more information about HD available for young people, parents and professionals on our site:


6 Years of HDYO

Last week we passed HDYO’s 6-year milestone. It really has been a wonderful journey for myself personally but more importantly for HDYO. When we started HDYO we really just wanted someone to benefit from our website which we’d put a lot of time and effort into making educational and accessible for young people. Little did we know that the response to HDYO would be hugely positive and we’ve achieved some wonderful goals which weren’t even on our radar when we started. Here are some things we’ve achieved in that time:

  • Around 3 million people have visited HDYO’s website in 6 years
  • Our website is available in 14 languages
  • We’ve offered support to around 3000 young people and families globally
  • We’ve done 7 youth camps on 3 continents with around 500 young people attending those HDYO camps for free

We’ve done this all with 3 staff (our 3 joined last year) and a great volunteer team. It has been truly a wonderful experience being a part of HDYO and watching it grow. Having founded HDYO it’s beautiful to see this creation do good for the community I hoped it would help. No matter what happens in the future I will always be so happy and proud when I think about HDYO and what it has achieved. Thank you to everyone who has been involved in HDYO and to everyone who has attended a camp or asked for support, we love being able to help young people impacted by HD and we are just as passionate to reach as many young people globally as possible as we were at the beginning.