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Huntington's Disease Youth Organization

Talking with Kids about HD

HDYO has more information about HD available for young people, parents and professionals on our site:


Book cover

This handbook provides examples of conversation starters and resources that exist to help parents and other caring adults navigate the path of discussing HD with children, youth, teens, and young adults, as well as with school officials. There is also a special chapter devoted to Juvenile Onset Huntington’s disease (JHD).

This is a useful book for parents/guardians of children impacted by HD. For more information on this book, or to order it, go to the HDSA website

Last updated: May 13, 2014 10:24