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Huntington's Disease Youth Organization

Talking to kids about Huntington's Disease

HDYO has more information about HD available for young people, parents and professionals on our site:

Dr Bonnie Hennig-Trestman

Book cover

Talking to Kids About Huntington’s Disease is a book designed for parents and family members who have a loved one affected by Huntington’s Disease (HD). The book contains practical information on why and how to talk to children about HD. It outlines the differences in kids' ages and developmental stages and includes many examples. This book is a wonderful resource to family members as a teaching tool and will enable families to feel more comfortable and confident in dealing with this topic

Find out more and buy the book at Amazon Kindle…

Last updated: January 28, 2020 12:36