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Australia and New Zealand HD Youth Camp 2018TY2121 people shared this0 comments The Huntington’s Disease Youth Organization (HDYO), together with all the HD Associations across Australia and New Zealand, are excited to host the second Australia and New Zealand HD Youth Camp! The goal of camp is to offer young people the chance to meet other young people impacted by HD, to learn about HD through educational workshops, to share experiences and receive support through sharing sessions in camp groups and to have plenty of fun participating in the many on-site activities, such as swimming, stand up paddle boarding, archery and much more. We hope young people attending camp...Find out more...
Australia and New Zealand HD Youth Camp 2017Y9696 people shared this0 commentsThe Huntington’s Disease Youth Organization (HDYO), together with all the HD Associations across Australia and New Zealand, are excited to host the first Australia and New Zealand HD Youth Camp! The goal of camp is to offer young people the chance to meet other young people impacted by HD, to learn about HD through educational workshops, to share experiences and receive support through sharing sessions in camp groups and to have plenty of fun participating in the many on-site activities, such as swimming, stand up paddle boarding, archery and much more. We hope young people attending camp...Find out more...
North American HD Youth Camp 2017Y6060 people shared this0 commentsHDYO, in partnership with HDSA and HSC, are excited to host the third North American HD Youth Camp. The goal of camp is to offer young people the chance to meet other young people impacted by HD, to learn about HD through educational workshops, to share experiences through sharing sessions and to have plenty of fun participating in the many on-site activities, such as swimming, ropes courses, paddle boarding, archery and much more. We aim for young people attending camp to benefit by feeling less isolated, more supported, as well coming away from camp with an improved understanding of HD...Find out more...
European HD Youth Camp 2016Y101101 people shared this0 commentsHDYO and our European HD Association partners are excited to host the European HD Youth Camp for 2016. The goal of camp is to offer young people the chance to meet other young people impacted by HD, to learn about HD through educational workshops, to share experiences through sharing sessions and to have plenty of fun participating in the many on-site activities, such as ropes courses, archery and much more. We hope young people attending camp will benefit by feeling less isolated, more supported, as well coming away from camp with an improved understanding of HD and strong peer...Find out more...
North American HD Youth Camp 2016Y134134 people shared this0 commentsHDYO and HDSA are excited to host a second North American HD Youth Camp. The goal of camp is to offer young people the chance to meet other young people impacted by HD, to learn about HD through educational workshops, to share experiences through sharing sessions and to have plenty of fun participating in the many on-site activities, such as swimming, ropes courses, paddle boarding, archery and much more. We hope young people attending camp will benefit by feeling less isolated, more supported, as well coming away from camp with an improved understanding of HD and strong peer connections...Find out more...
Young Adults Working Group (YAWG) – 2013YP824824 people shared this0 commentsWhat is YAWG?The Young Adults Working Group (YAWG) is one of many working groups (WG) that is supported by the European Huntington’s Disease Network (EHDN). The EHDN was founded in 2003 by CHDI Foundation Inc. CHDI is commonly known as the ‘Cure HD Initiative’, but it technically represents various similar projects that began around the same time. One of these projects was the Cure Huntington’s Disease Initiative that was established by the Hereditary Disease Foundation (HDF) in 1997, after receiving a ‘substantial anonymous gift’. The aim of the project was to stimulate research and...Find out more...
Young Adults Conference 2012 - HDA England & WalesYP16441644 people shared this0 commentsThis March, the HDA in England and Wales held their 4th annual young adult HD conference in Telford, England. Once again it was a sell-out success, with around 40 young people between the ages of 18-35 all merging on Telford for the weekend. The Saturday began with the traditional ice breaker, which involved moving around the room depending on what answer you thought of for the questions being given out. This, followed by a lovely lunch, gave all the young people a chance to get to know each other and socialise. After lunch we got down to business and the first speaker was HDYO's very own...Find out more...
Young Adults Working Group (YAWG) – Barcelona 2012YP16311631 people shared this0 comments In February, 2012, the YAWG met in Barcelona. The YAWG is one of many working groups formed by the Euro-HD Network (EHDN). Most of the working groups are clinical or research focused, but the YAWG is for young adults around the world who are impacted by HD. The purpose of the YAWG is to improve support networks for young people in countries around the world and the group generally meets 1-2 times a year in various locations.It was the turn of Barcelona, Spain, to host the YAWG meeting. Around 30 young people and several professionals from various countries turned up for the meeting. On...Find out more...
Dutch Young Adults Conference 2012YP11141114 people shared this0 comments On Saturday the 3th of March there was a Youth Day organised by the Huntington Association. The theme of this day was: How does Huntington Disease affects you and your life? Around 11 o clock we all gathered around at a table, drinking coffee or tea accompanied with a cookie. Everybody was socializing with each other and asking how life has been and how life is at the moment. When everybody was present we traditionally let everybody tell their name, what his or her connection was with Huntington Disease and what they had been thru. There were some new members but I guess they felt very...Find out more...
Young Adults Conference 2011 - HDA England & WalesYP419419 people shared this0 commentsFor the past few years the HDA in England and Wales has been holding a conference specifically for young adults impacted by Huntington's disease. It has been a very successful addition to the events calendar, with young adults fully booking the conference for 3 years running. In 2011, there were about 55 young adults, between 18 and 35, who attended the conference. They were treated to an inspirational talk on by Sarah Winckless, a former British Olympic (medal winning) rower, who also comes from a family affected by Huntington's disease. She brought her medals along for people to check...Find out more...
International Youth Meeting 2011 - USATYPJP958958 people shared this0 commentsIn June, 2011, the first ever International Youth Meeting for HD was held in Minnesota, USA. The youth meeting consisted of 22 young people from 11 different countries all gathering together to discuss youth support in their region. What's more, the meeting was organised and run by young people from the Young Adults Working Group. The meeting was held over 3 days, with 1 full day and 2 smaller sessions on the other 2 days. Day one was all about youth support and how to improve it. Firstly we had an introduction session, where all the young people introduced themselves and provided their...Find out more...
Scottish Huntington's Association kid's camp 2011TYPJP11531153 people shared this0 comments In beautiful July, 2011, it was time to spend a week in the lovely Lagganlia Outdoor Activity Centre, Inverness-shire, in Scotland. It was there where the SHA's kids' camp for 2011 was to be held. 49 Young people from Scotland (and also Ireland) attended the camp!After all the kids were settled into their accommodation, it was time for some food and football to kick things off (get it? 'Kick' things off? No... never mind). Usually football consists of 11 v 11, but apparently not in Scotland, as everyone got involved in the game - which made me a great, fun game of footy. 'Playing football...Find out more...
NYA Day 2011 - USATYPJP862862 people shared this0 comments The 7th Annual NYA Day at the 2011 HDSA National Convention in Minneapolis, MN was another great success and a highlight of a fabulous weekend. Over 60 young people from around the country (and world) gathered together on Thursday June 23rd in an effort to meet and connect with others in similar situations affected by HD. The goal was for young people to realize that they are not alone and to make connections and friendships with others to take home after the convention. Throughout the course of the day there were round table discussions, educational talks and special guests who joined in...Find out more...
Young Adult Working Group 2010 - PragueTYPJP581581 people shared this0 commentsIn September, 2010, the Young Adult Working Group (YAWG) for EHDN met to discuss improving support for young people affected by Huntington's disease. The YAWG consists of a mix of young people affected by Huntington's disease and professionals with an interest in youth. Any young person can join the YAWG if they want to be involved and work to improve youth support in their region.At the meeting in Prague, we had a great turnout, with around 30 people in attendance from over a dozen different countries. We started the meeting with an introduction to HDBuzz, by Jeff Carroll and Ed Wild....Find out more...
HDA's Juvenile HD Weekend 2011PJP604604 people shared this0 comments The HDA held what was their seventh JHD Family Weekend. This year it was at the Calvert Trust in the Lake District again from the 3rd - 5th June 2011, and was as successful as previous years. There were quite a few new families come for the first time this year, and so it was great to welcome them, as well as seeing all the families that have been before. This year was the biggest family week end the HDA had held so far!The Calvert Trust has some great activities, including horse-riding, canoeing, sailing, archery, swimming and rock climbing, so there is something for everyone and for...Find out more...
HDA England & Wales kids camps 2011KTPP10871087 people shared this0 comments Every year in the summer holidays the HDA for England and Wales has summer camps in Mepal, the New Forest and Kielder. These are weekend camps for children aged 9 to 16. It's a chance to get away, make some friends and do some activities the kids might not have done before. In total, around 50 young people attended the HDA camps this year (2011)! The kids had the opportunity to get away from their home environments and enjoy an array of activities, some fresh air, sun, and the pool tables of course.'I loved the HDA summer camp, we did climbing, abseiling and canoeing. My favourite things...Find out more...
European Youth Camp 2010 - Sweden!TYPJP11411141 people shared this0 comments August, 2010, saw the return of the European youth camp, only this time instead of Scotland, it was in Sweden! The camp was a week long, and there were around 30 young people from several different European countries in attendance.Day one was spent doing team-building exercises in order to get to know each other. We also got split in to our 'discovery groups', which were groups that we would meet each day in and discuss Huntington's disease. Each group had a camp leader present ready to provide any support required or answer any questions. Day two was beautiful. We went on a boat trip for...Find out more...