Select your wallpaper: Select your wallpaper: Sign up to save your choice Close
Forum Store Donate

HDYO Newby Introductions

Hello everyone . I am writing from Virginia USA. I was recently diagnosed with HD at age 43. My father and favorite uncle (his brother had it). Initial symptoms included visual impairments and not being able to drive. My brain told me to go to the opposite side of the road facing oncoming traffic. I lost my car in an accident. In addition to my health issues my 14 year marriage ended . It was hard to determine if the accident occurred from the stress of the divorce. I am now certain it was the HD. I am no longer able to multitask. So fighting with my ex ,being at work completely knocked out my driving. I have 3 children and am now going to have to give up custody. So for the first time I will not have my children with me everyday . Will only see them on weekends and alternate holidays. I am in the process of selling my house and moving into my cousins house. I happen to be moving into the family who took care of my dad and uncle. I am the 3rd person in the family they have to take care of.

Things happen for a reason
Young adults Forum support

Hello hdyo539,

Thank you for sharing your story. It sounds like you are dealing with a lot over the past few years.

Are you familiar with the Huntington's Disease Society of America - With HDSA, no one fights alone. HDSA has developed a nationwide network that includes Chapters, Affiliates, HDSA Centers of Excellence, Support Groups and Social Workers that are ready to assist you with resources in your area. The closest chapter is the Mid-Atlantic Chapter -

You are very brave for sharing your story!


United States

Hi HDYO539,

My name is Chandler and I am the youth worker in the US, but I am based in the mid-Atlantic. We are here to support your family - especially your children as they adjust to all the changes and understanding HD. Please don't hesitate to reach out to me directly ( and here is a bit more about the youth service project:

Thank you for introducing yourself and sharing your story.