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United Kingdom

My partner and I are hoping to adopt a young child who comes from a family with HD. We are slowly learning about the condition. A question we have is when do you tell a young child that they may develop HD? There isn't much information out there for adopters. Most articles seem to refer to explaining to children when older family members develop symptoms. We want to arm ourselves with as much knowledge as possible in the event we are lucky enough to welcome the little one into our family. Thanks in advance.

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Young adults Forum support

Hey Learning!

Welcome to the HDYO community and thank you for sharing your story. I do not believe that there is a right answer. I would suggest contacting your local support group to help.

This website has some incredible resources from education articles to HDYO Land for children ( Take some time and consider your situation. Hopefully this helps!