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Huntington's Disease Youth Organization

HD Youth Services & Programs in Canada

HDYO has more information about HD available for young people, parents and professionals on our site:

www.hdyo.org

Name of youth service or program

North American HD Youth Camp

Youth services

Organisation providing service

Huntington’s Disease Youth Organisation (HDYO)

Region the service or program covers

North America (USA & Canada)

Explanation of service/program

Each year we aim to provide a North American HD Youth Camp for young people (15-23) who are impacted by HD in the North American region. This is a wonderful event and free to attend, all a young person needs to do is apply during the application period.

How can young people & families contact/participate in the service

Please contact HDYO at info@hdyo.org for more information about the youth camp.

Name of youth service or program

YPAHD (Young People Affected by Huntington’s Disease)

Youth services

Organisation providing service

Huntington Society of Canada (HSC)

Region the service or program covers

All Canada

Explanation of service/program

The Youth chapter of the Huntington Society of Canada. YPAHD is made up of youth from 12 to mid-30’s. Through events, support and awareness activities, the chapter strives to build a networks and community for young people affected by Huntington disease. How can young people & families contact/participate in the service

Visit our website at YPAHD.ca and “Get Connected”, or email us at ypahd@huntingtonsociety.ca for more information.

Name of youth service or program

Mentorship Project

Youth services

Organisation providing service

Huntington Society of Canada (HSC)

Region the service or program covers

All Canada

Explanation of service/program

The HSC Mentorship Program is designed to support young people across Canada facing the everyday challenges of growing up in a family affected by Huntington disease. HSC is committed to offering a nationwide mentoring program that provides youth with one-on-one time and attention with a mentor who will receive ongoing support from a Social Worker within the HSC.

The goal of the program is to offer young people the opportunity to connect with a mentor who will be able to provide them with valuable support at critical points in their lives. The adult volunteers involved in the mentoring program will also be from families affected by HD. Sharing this common experience may assist them in better understanding and connecting to the youth mentees. The mentors will be committed to supporting, guiding, and being a friend to the youth. The mentors will listen and provide the youth with accurate and age appropriate information.

How can young people & families contact/participate in the service

Contact our Mentorship Coordinator at mentorship@huntingtonsociety.ca, or toll free at 1.855.253.0215.