HD Youth Services & Programs in Germany
HDYO has more information about HD available for young people, parents and professionals on our site:
www.hdyo.org
Name of youth service or program
Contact and community for young people in Germany
Organisation providing service
Deutsche Huntington-Hilfe e. V.
Region the service or program covers
Germany
Explanation of service/program
Youth Representative & Representative of People at risk for HD of the German HD Organization. Young people all over Germany volunteer to be contact persons for others in a similar situation, they can be contacted and are happy to share their experiences.
How can young people & families contact/participate in the service
Contact details are provided via the webpage of the German HD Association “Deutsche Huntington-Hilfe e. V.”, see http://www.huntington-hilfe.de – Youth
Name of youth service or program
Youth Conference
Organisation providing service
Deutsche Huntington-Hilfe e. V.
Region the service or program covers
Germany
Explanation of service/program
Annual youth conference for young people aged max. 35 years. A weekend filled with information, HD experts, experience exchange and fun.
How can young people & families contact/participate in the service
Contact details are provided via the webpage of the German HD Association “Deutsche Huntington-Hilfe e. V.”, see http://www.huntington-hilfe.de – Youth
Name of youth service or program
Regional Youth conference
Organisation providing service
Deutsche Huntington-Hilfe e. V.
Region the service or program covers
Conducted in Northern Germany, Southern Germany etc – but open for all young people in Germany
Explanation of service/program
Spend time at a one day workshop, a fun weekend with climbing or explore a city with other young people in a similar situation, learn about the youth support in Germany, get an update on research and get to know HD experts in Germany.
How can young people & families contact/participate in the service
Contact details are provided via the webpage of the German HD Association “Deutsche Huntington-Hilfe e. V.”, see http://www.huntington-hilfe.de – Youth
Name of youth service or program
European HD Youth Camp
Organisation providing service
Huntington’s Disease Youth Organisation (HDYO)
Region the service or program covers
Europe
Explanation of service/program
We aim to hold regular (annual) European HD Youth Camps with the help of many European HD Associations. Young people impacted by HD (15-25) can attend the event, so long as their HD Association is supporting the event with us. This is a wonderful event for young people to meet others impacted by HD from all across Europe. The event is free to attend for those who get to go.
How can young people & families contact/participate in the service
For more information about the European camp please contact HDYO at info@hdyo.org