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Huntington's Disease Youth Organization

HD Youth Services & Programs in Germany

HDYO has more information about HD available for young people, parents and professionals on our site:

www.hdyo.org

Name of youth service or program

Contact and community for young people in Germany

Organisation providing service

Deutsche Huntington-Hilfe e. V.

Region the service or program covers

Germany

Explanation of service/program

Youth Representative & Representative of People at risk for HD of the German HD Organization. Young people all over Germany volunteer to be contact persons for others in a similar situation, they can be contacted and are happy to share their experiences.

How can young people & families contact/participate in the service

Contact details are provided via the webpage of the German HD Association “Deutsche Huntington-Hilfe e. V.”, see http://www.huntington-hilfe.de – Youth

Name of youth service or program

Youth Conference

Organisation providing service

Deutsche Huntington-Hilfe e. V.

Region the service or program covers

Germany

Explanation of service/program

Annual youth conference for young people aged max. 35 years. A weekend filled with information, HD experts, experience exchange and fun.

How can young people & families contact/participate in the service

Contact details are provided via the webpage of the German HD Association “Deutsche Huntington-Hilfe e. V.”, see http://www.huntington-hilfe.de – Youth

Name of youth service or program

Regional Youth conference

Organisation providing service

Deutsche Huntington-Hilfe e. V.

Region the service or program covers

Conducted in Northern Germany, Southern Germany etc – but open for all young people in Germany

Explanation of service/program

Spend time at a one day workshop, a fun weekend with climbing or explore a city with other young people in a similar situation, learn about the youth support in Germany, get an update on research and get to know HD experts in Germany.

How can young people & families contact/participate in the service

Contact details are provided via the webpage of the German HD Association “Deutsche Huntington-Hilfe e. V.”, see http://www.huntington-hilfe.de – Youth

Name of youth service or program

European HD Youth Camp

Youth services

Organisation providing service

Huntington’s Disease Youth Organisation (HDYO)

Region the service or program covers

Europe

Explanation of service/program

We aim to hold regular (annual) European HD Youth Camps with the help of many European HD Associations. Young people impacted by HD (15-25) can attend the event, so long as their HD Association is supporting the event with us. This is a wonderful event for young people to meet others impacted by HD from all across Europe. The event is free to attend for those who get to go.

How can young people & families contact/participate in the service

For more information about the European camp please contact HDYO at info@hdyo.org