Name of youth service or program

North American HD Youth Camp

Organisation providing service

Huntington’s Disease Youth Organisation (HDYO)

Region the service or program covers

North America (USA & Canada)

Explanation of service/program

Each year we aim to provide a North American HD Youth Camp for young people (15-23) who are impacted by HD in the North American region. This is a wonderful event and free to attend, all a young person needs to do is apply during the application period.

How can young people & families contact/participate in the service

Please contact HDYO at info@hdyo.org for more information about the youth camp.

Name of youth service or program

HDYO Youth Service

Find out about the HDYO Youth Service on our dedicated page…

Name of youth service or program

National Youth Alliance

Organisation providing service

Huntington’s Disease Society of America (HDSA)

Region the service or program covers

Across the USA

Explanation of service/program

HDSA’s National Youth Alliance (NYA) motivates youth to get involved in their local HDSA Chapters, Affiliates, and Support Groups in efforts through education, fundraising, advocacy and awareness for Huntington’s disease. The NYA is a collection of children, teens and young adults from across the country.

We are made up of young women and men ages 9-29 that are impacted by Huntington’s. The NYA is dedicated to our vision of being the last generation with Huntington’s disease and as an essential part of the future of HDSA; we pride ourselves on our ability to persevere throughout the years. Since 2004, NYA has grown from a small group of kids to over 500 members!

It is our mission to not only support young people within the HD community, but also inspire the youth of HDSA to get involved in the battle against HD and be proactive in this fight. We are dedicated to making ours the last generation with Huntington’s disease.

The NYA works to create an HD Youth community in the US, as well as bring awareness to youth related issues and increase youth support by:

By increasing the amount of local youth support groups nationwide we are able to ensure our members are getting the support they need locally

Educating youth at Education Days, Symposiums and Conferences locally as well as on the national level at NYA Day and Convention

Advocacy training and proactive efforts from meetings with the Senate and Congress at home to Capitol Hill in Washington D.C.

Fundraising for our NYA Convention Scholarship Fund

Providing updates on NYA activities, initiatives, and fundraising efforts in the We Are the NYA newsletter

Sharing the experiences and observations of young people from all walks of life affected by Huntington’s disease through our website’s Faces of NYA section.

How can young people & families contact/participate in the service

To learn more about the NYA, visit www.hdsa.org/nya or send an e-mail to nyaboard@gmail.com