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Huntington's Disease Youth Organization

HD Youth Services & Programs in Western Australia

HDYO has more information about HD available for young people, parents and professionals on our site:

www.hdyo.org

Name of youth service or program

HWA Children’s Program

Youth services

Organisation providing service

Huntington’s WA

Region the service or program covers

Perth Metropolitan Area

Explanation of service/program

The HWA Children’s group is an informal and fun group that brings members and parents together a couple of times a year. Open to young children aged 5-12 years who are part of a HD family, the Children’s group was created to fill a gap for younger children, and to create an opportunity for fun, respite and social connections to be formed prior to joining the Youth Group. We have so far had a Pony Party in the Park and a Pirate Party.

How can young people & families contact/participate in the service

By calling HWA on 9346 7599 or emailing admin@hutningtonswa.org.au

Name of youth service or program

HWA Youth Program

Youth services

Organisation providing service

Huntington’s WA

Region the service or program covers

Western Australia-Perth metro and regional area

Explanation of service/program

The Youth program began in 2009 when young people and parents indicated a need for something “Just for young people”. Since then it has continued to grow and expand its reach. We offer Youth Worker support in person, via phone and Facebook, education, mentoring, referrals and social outings where we aim to build resilience and strong connections for our Young People. We offer four outings a year, held in the school holidays including one camp. We are working on our Social Media strategy as a way to further engage with group members, particularly those who live in rural or remote Western Australia. Rural and remote clients in the South West of WA receive quarterly visits from our Youth Worker. Other remote and regional areas are visited on a needs basis or by request.

How can young people & families contact/participate in the service

By calling HWA on 9346 7599 or emailing admin@huntingtonswa.org.au

Name of youth service or program

HWA Young Adults Program

Youth services

Organisation providing service

Huntington’s WA

Region the service or program covers

Western Australia-Perth metro and regional area

Explanation of service/program

The HWA Young Adult program supports Young Adults as they transition into adulthood. We offer Youth Worker support in person, via phone and Facebook. Education, mentoring, referrals and social outings as well as support and information regarding genetic testing. We also run get togethers for Young Adults. Rural and remote clients in the South West of WA receive quarterly visits from our Youth Worker. Other remote and regional areas are visited on a needs basis or by request.

How can young people & families contact/participate in the service

By calling HWA on 9346 7599 or emailing admin@hutningtonswa.org.au