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HD Youth Services & Programs in New South Wales and the Australian Capital Territory

May 25, 2017

Huntington's Disease Youth Organization

HDYO has more information about HD available for young people, parents and professionals on our site:


HD Youth Services & Programs in New South Wales and the Australian Capital Territory

Name of youth service or program

Huntington’s NSW Youth Connection, (HDYC)


Organisation providing service

Huntington’s NSW

Region the service or program covers

This service is based in Sydney but covers all of NSW and the ACT.

Explanation of service/program

We provide support, counselling and advocacy for children and young people affected by Huntington’s disease through face to face home or school visits, phone calls, via email and through social media.

We will also be organising group events to enable you to connect with other young people impacted by HD for support, fun and education.

As this program is flexible and youth focussed, our main goal is to listen to, connect and support you and your family in whatever way will benefit most, helping you find coping strategies and solutions to all HD and non-HD related issues or problems that arise in your life.

How can young people & families contact/participate in the service

If you would like to connect or know more about what we have to offer, you can contact us here:

Youth Liaison Worker: Amy Hale Mobile 0499 031 231 Office: (02) 9874 9777


Email amy@huntingtonsnsw.org.au