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Huntington's Disease Youth Organization

UK research: talking to children about inherited genetic conditions

HDYO has more information about HD available for young people, parents and professionals on our site:

www.hdyo.org

4 September 2013

Below is a research project at Kings College, London, which HDYO is supporting. If you think you and your family would like to take part please contact Emma on the email below.

The research project “Talking to Children about inherited genetic conditions” launched on 1st September 2013. The project works collaboratively with families (parents, children and young people) with an inherited genetic condition to develop an intervention that will support families to communicate more effectively with their children (<18 years) about the genetic condition affecting their family and its risks.

We are currently looking for families with an inherited genetic condition to take part in two focus groups to help us develop the intervention that will support families to communicate more effectively with their children. The Focus groups will be held on 16th November and 7th December 2013.

If you would like more information about our research or to express your or your family’s interest in taking part in the focus groups please contact the research team directly:

Emma Rowland, James Clerk Maxwell Building, King’s College London, 57 Waterloo Road, London, SE1 8WA.

Telephone 0207 848 3650 Email: emma.rowland@kcl.ac.uk

If you have any questions please do not hesitate to ask. Thank you for your help.

Best wishes

Emma