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Art chemistry catAsk a question for kidsK41714171 people shared this0 comments

Welcome to the kids area in the ‘ask a question’ section. Do you have any questions about Huntington’s disease? Well here’s your chance because HDYO has gathered a panel of Huntington’s disease experts to answer any questions you may have.

You can send any questions you have using the form below and we will forward it to who we feel is the best expert to answer your question. You are asked to provide a name, age, country and email address. We would appreciate it if you gave your correct age, location and email address. However, you do not need to give your real name if you don’t want to. Only the name, age and location you provided will be shown on this page, your email will remain private.

We try to answer all questions as quickly as possible. Once a question has been answered it will be available to view in this section, and if you provided an email address we will forward the answer to that email address.

Submit your question

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Ask question 3Ask a question for Friends and PartnersF799799 people shared this0 comments

Welcome to the Friend’s area in the ‘ask a question’ section. Do you have any questions about Huntington’s disease that you’ve always wondered about? Well here’s your chance because HDYO has gathered a panel of Huntington’s disease experts to answer any questions you may have.

Feel free to send any questions you have using the form below and we will forward it to who we feel is the appropriate expert to answer your question. You are asked to provide a name, age, country and email address. We would appreciate it if you gave your correct age, location and email address. However, you do not need to give your real name if you don’t want to. Only the name, age and location you provided will be shown on this page, your email will remain private.

We try to answer all questions as quickly as possible. Once a question has been answered it will be available to view in this section and - if you provided an email address - we will forward the answer to your email address.

Submit your question

See our answer...
Ask question 2Ask a question for young adultsY32033203 people shared this0 comments

Welcome to the young adults area in the ‘ask a question’ section. Do you have any questions about Huntington’s disease that you’ve always wondered about? Well here’s your chance because HDYO has gathered a panel of Huntington’s disease experts to answer any questions you may have.

Feel free to send any questions you have using the form below and we will forward it to who we feel is the appropriate expert to answer your question. You are asked to provide a name, age, country and email address. We would appreciate it if you gave your correct age, location and email address. However, you do not need to give your real name if you don’t want to. Only the name, age and location you provided will be shown on this page, your email will remain private.

We try to answer all questions as quickly as possible. Once a question has been answered it will be available to view in this section and - if you provided an email address - we will forward the answer to your email address.

If you aren’t a young adult, please be aware that this area is for questions from young adults that may not be appropriate for your age range.

Submit your question

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Ask question 1Ask a question for teensT37313731 people shared this0 comments

Welcome to the teenagers area in the ‘ask a question’ section. Do you have any questions about Huntington’s disease that you’ve always wondered about? Well here’s your chance because HDYO has gathered a panel of Huntington’s disease experts to answer any questions you may have.

Feel free to send any questions you have using the form below and we will forward it to who we feel is the appropriate expert to answer your question. You are asked to provide a name, age, country and email address. We would appreciate it if you gave your correct age, location and email address. However, you do not need to give your real name if you don’t want to. Only the name, age and location you provided will be shown on this page, your email will remain private.

We try to answer all questions as quickly as possible. Once a question has been answered it will be available to view in this section and - if you provided an email address - we will forward the answer to your email address. If you aren’t a teenager, please be aware that this area is for questions from teenagers that may not be appropriate for your age range.

Submit your question

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Ask question 3Ask a question about JHDJ37273727 people shared this0 comments

Welcome to the Juvenile Huntington’s disease area in the ‘ask a question’ section. Do you have any questions about Juvenile Huntington’s disease that you’ve always wondered about? Well here’s your chance because HDYO has gathered a panel of Huntington’s disease experts to answer any questions you may have.

Feel free to send any questions you have using the form below and we will forward it to who we feel is the appropriate expert to answer your question. You are asked to provide a name, age, country and email address. We would appreciate it if you gave your correct age, location and email address. However, you do not need to give your real name if you don’t want to. Only the name, age and location you provided will be shown on this page, your email will remain private.

We try to answer all questions as quickly as possible. Once a question has been answered it will be available to view in this section and - if you provided an email address - we will forward the answer to your email address.

Please be aware that this area is for questions from those wanting to know more about JHD, some of these Q&As may not be appropriate for all ages.

Submit your question

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Is it possible I was tested for HD in the womb?Y9595 people shared this0 comments

Is it possible I was tested for HD in the womb?

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My friends don't understand the impact of HDK8686 people shared this0 comments

Why when I try mention HD to my friends do they not understand me, or understand how much of an impact it makes on my life?

Ella, Child, UK

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Did I get tested as a baby?T100100 people shared this0 comments

Hi so, my grandma had Huntington’s and she had 3 kids. 1 got tested and it was negative and the other 2 did not and the one that did not get tested was my dad. My dad said I go tested right when I was born, But IDK if that was a accurate test could I still have it??

Olivia, Teen, USA

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I'm not sure if I should get testedT9292 people shared this0 comments

My mum has HD and when I am 18 I was think of getting tested, but I’m not sure whether I want to or not because it might have a big impact on my life, what is your advice?

Hollie, Teen, UK

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My mum has 43 repeats - what to expectT107107 people shared this0 comments

I found out today my mum has huntingtons she has 43 copies of the gene yet she’s 50 and it’s not too bad yet my auntie had it come on when she was younger so I know what to expect, how long left do I have untill it gets bad

Anon

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How common is HD in China?T103103 people shared this0 comments

How can you tell if you have huntington’s disease? And are you able to get it at the age of 13? How do you know if you have it? Is it common in China?

Samantha, Teen, USA

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Me and my sister might have HD. How close is a cure?T130130 people shared this0 comments

Hi, my aunt and father have HD. Me and my sister are very afraid that we might have it as well. My sister had depression and often has thoughts of suicide because of this. We aren’t old enough to get tested yet but we both want to. I’m just curious as to what treatments are available for HD right now/ could be in the future? How close is a cure?

Angela, Teen, USA

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How many people does HD affect in the world?T133133 people shared this0 comments

How many people does it affect in the world? Like 1 out of every how many people does it affect?

Renee, Teen, USA

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Do people with HD know what's happening?T135135 people shared this0 comments

For the people who have Huntington’s Disease and are sick, do they know what’s happening to them and they’re just not able to talk back or do they not know what’s happening around them?

Karen, Teen, USA

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When can I be tested? How long does it take?T112112 people shared this0 comments

How old do you have to be to get tested? How long is the process?

Mia, Teen, USA

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If my aunts and uncle had HD could I have it?Y115115 people shared this0 comments

if my aunts and my uncle on my mothers side had HD does that mean i have a chance of having HD?

Cameron, Young Adult USA

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Why does it effect people so much?K147147 people shared this0 comments

Why does it effect people so much?

Eva

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How do I stop worrying about JHD?T132132 people shared this0 comments

How do I stop worrying about JHD?

Anonymous

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If my mother had HD but I don't can my baby get it?Y133133 people shared this0 comments

If my mother had HD but I don’t have it, could I give it to my baby? Do you still carry the gene even if you don’t develop the disease?

Anonymous

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I'm an identical twin and my brother won't get testedY145145 people shared this0 comments

I’m an identical twin, and my brother and I are at risk for HD. Our father had it. I want to be tested, but my brother refuses. What do I do?

Levi, Young Adult, USA

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Why don’t people know about HD?K126126 people shared this0 comments

Why don’t people know about HD?

Zoe, Child, England

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My family seems to develop HD later, if I test positive will I?Y122122 people shared this0 comments

My great nan had huntingtons disease (did not pass away until early 80’s) my nan currently has it and my my mum currently has it. I have not had the test. My nan is 67 and still lives alone with a little help from my mum but copes day to day still. My mum is 50 and although I am starting to see behavioural changes she too is doing very well. As my line of family seem to develop the disease a lot later does this mean if I tested positive I would be more likely to develop the disease at a later age?

Charlotte, Young Adult, UK

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How predictive is age of onset from previous generations?Y152152 people shared this0 comments

My boyfriend is positive for the HD gene. His grandmother was diagnosed in her 70’s. His mother is also positive for the gene. She is 60 and showing no symptoms yet with a count of 40. How predictive is age of onset from previous generations? Does this mean he may not present until later in life since that seems to be the trend in his family history?

Melissa, Young Adult, USA

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My dad has 27 CAG repeats, what are my chances?Y133133 people shared this0 comments

My dad got his results back to and got the all clear but he scored 27 on the test what is the chance I will get it

Ashley, Young Adult, UK

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Possible postive and negatives of getting tested?Y113113 people shared this0 comments

My mother and grand mother have Huntington disease. I’m really wondering what the possible positive and negative effects may be if I get tested. Thanks

Scott, Young adult, Canada

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Are people in pain when they have HD?K190190 people shared this0 comments

Are people in pain when they have hd

Blaze, Child, USA

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Can kids be tested?Y174174 people shared this0 comments

My father was diagnosed with a count of 38 and I also have the same count. Dad is now 75 and not really showing any signs I have since had 2 girls who are aged 5 and 6. My wife is now very worried for our daughters. Can kids be tested? Or is this up to each individual once they are 18?

Jason, Adult, Australia

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Will I get earlier onset than my dad?Y158158 people shared this0 comments

My dad was recently diagnosed with late onset hd. He is pre-symptomatic and 60. I am aware that the disease often gets worse passed from father to children. Is there any data regarding how often anticipation occurs? Would a longer cag repeat length than his tell me whether I would be earlier onset than him? Thanks!

Julianna, Young Adult, USA

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Do I need counseling to get tested at 18?T155155 people shared this0 comments

If I want to get tested at the age of 18 when would I have to counseling

Amy, Teen, UK

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Will my brother get symptoms at the same age as my parents?Y197197 people shared this0 comments

My grandma,aunt and father have HD I’ve been tested and I don’t have it….my brother chooses not to be tested for his own reasons he is 27 years old. …. my dad showed signs at 35 same as my aunt and grandma.. I was wondering if my brother does have it, will he start showing symptoms at the same time as my other family members or does each person show at different times?

Aimy

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Can you be a carrier without any symptoms?Y157157 people shared this0 comments

Is it possible to carry the HD gene but never show any symptoms?

Lewis, Young Adult, Australia

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I have HD and am pregnant, will the baby get it?Y147147 people shared this0 comments

If I’m pregnant and I have huntingtons and the father does not will the baby have huntingtons?

Anonymous, Young Adult

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My mom got HD without anyone in her family having itY199199 people shared this0 comments

No one in my family had HD, but some how my mom got it. Is there any way to developer this disease without it being passed down?

Jasmine, Young Adult, USA

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Mum's CAG repeat is 30 - how are her children affected?Y149149 people shared this0 comments

Hello! My aunt passed from huntington’s several years ago even though it appeared that neither grandparent (gma passed at 75 and gpa passed at 86 of natural causes and heart disease) had it….

Sarah

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Do I have a right to see my dad's test result?T170170 people shared this0 comments

My dad is getting tested for HD (and doesn’t know I know this) do I have a right to find out his test results as I have a 50% chance of getting it if it comes back positive?

Jordan, Teen, UK

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Can my friend have HD if he tested negative at 27?F164164 people shared this0 comments

my friend s father and grandpa and uncles have Huntington disease now my friend got tested and was negative at 27 years old now can his kids get Huntington disease I’m asking because his son is having racing heart problems and also could his dad get Huntington after being tested negative at 27

Eric, Young Adult, USA

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Can you tell if you Huntington’s disease?T326326 people shared this0 comments

Can you tell if you Huntington’s disease?

Kirsten, Teen

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How old do people with HD live to?T163163 people shared this0 comments

How old do people with Huntingtons disease live? Do they die from the disease eventually? How common is Huntingtons disease?

Kirsty, Teen, UK

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What percentage of people fall into the gray area?Y160160 people shared this0 comments

What percentage of people tested fall into the ‘gray area?'  either with reduced penetrance or intermediate?  Is it very common?  Thank you?

Sarah, Young adult

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Can paranoia be the first symptom of HD?Y159159 people shared this0 comments

Hello. My husbands father has HD, and my husband does not want to be tested. He is now approaching the age of 40 and have no visible symptoms. However, I think he is showing some paranoia or at least extremely careful behavior concerning electronic devices and fear of being watched somehow….

Anonymous, Young Adult

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Do gene silencing treatments look promising?Y155155 people shared this0 comments

My friend (30) recently found out that he carries the mutated gene, so I have been trying to do some research about potential treatment possibilities and how the future looks.. Do gene silencing treatments look promising (as of 2016)?…

Preben, Young Adult, Denmark

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If neither of my parents have HD can I get it?Y174174 people shared this0 comments

Hello, I was wondering if neither of my parents nor grand parents had Huntington’s disease is it possible for me to have it?

Rodney, Young Adult, USA

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My mom isn't showing symptoms, can I get HD?T136136 people shared this0 comments

My grandma had HD. My mom has not been tested but is not showing any symptoms. Can I get HD at my age or when I am older even if my mom doesn’t?

Beth, Teen, Canada

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My grandma and dad had HD, do I?Y155155 people shared this0 comments

My grandma had hd and was bed ridden and passed at 50 i believe.she had 4 kids my dad (56)bed ridden and my aunt (40) deceased got hd my aunt had 2kids one has hd one doesnt ….

Robert, Young Adult, USA

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How do you go about being diagnosed?T179179 people shared this0 comments

Hi , I’m doing a report on huntington disease & I would like to know how does a person with huntington go about being diagnosed . how did it happened.

Tierney, Teen, USA

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Can you be just a carrier?T162162 people shared this0 comments

I was wondering if you could just be a carrier of Huntington’s disease, but still show symptoms or even get the disease?

Gabi, Teen, USA

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Do both parents have to have HD?T147147 people shared this0 comments

Do both parents have to be carriers of Huntington’s disease to pass it on to a future child?

Isaiah, Teen, USA

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If lots of people in your family have HD do you?T215215 people shared this0 comments

If your nan uncles aunties and mom have huntingtons does that mean that you will as well?

Anonymous, Teen

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I'm fine to know but have a phobia of needlesT221221 people shared this0 comments

Hi I’m Elle, My mum, grandad and great auntie have huntingtons and I want to get tested. I’m fine with knowing if I’ve got it or not but the only thing is I have a really bad phobia of needles. I’m desperate to find out but the thought of having a blood test makes me feel sick. Is there anything I can do? Really need some advice.

Elle

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Is it almost 100% that my friend or her brother will have HD?Y159159 people shared this0 comments

One of my friends dad just recently died from Huntingtons disease. My friends mom was not infected but her dad obviously was. Her parents had two children, is it almost possible that her brother or my friend will 100% chance have the disease?

Shelia, Young Adult, USA

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What does a positive allele for HD mean?Y183183 people shared this0 comments

My mom has paper work that she showed a + allele for huntingtons. What does this mean?

Leanne, Young Adult, USA

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Can you have the mutant gene but not get HD?Y291291 people shared this0 comments

Is it possible to carry the mutant gene and not to suffer from the disease?

Jose, Young Adult, Colombia

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My great-aunt has HD, am I at risk?Y151151 people shared this0 comments

My great-aunt has Huntington’s Disease, I know each case is different but it seems like my grandmother is starting to show the same symptoms, she is showing a grand memory loss over the years, am I at risk of carrying this gene?? Thank you for having this space for questions.

Felipe, Young Adult, Brazil

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What age is it safe to say you don't have HD?Y179179 people shared this0 comments

My mother refuses to get tested for HD because she’s afraid. She is now in her 50’s and shes fine, by what age is it a safe age to say that she doesn’t have it?

Stacey, Young Adult, USA

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Can a child have HD if their parents are over 50 without symptomsY173173 people shared this0 comments

Hi there i wanted to know, since HD is a autosomal dominant gene. Can one (an offspring) have it without parents having any symptoms they have HD when they are both well into their 50’s?

Michelle, Young Adult, USA

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Do both parents have to be carriers to pass it on?Y176176 people shared this0 comments

Do both parents have to be carriers of Huntington’s disease to pass it on to a future child?

Anonymous, Young Adult

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I have 42 repeats, my dad had 40 - what does that mean?Y157157 people shared this0 comments

Hello I have not long found out that my father has inherited hd from my grandmother, my father is now 50 and he’s repeat on the scale is 40. Once I found this out I got myself tested and it came back positive my score on the scale was 42. So does this mean I will get symptoms earlier and maybe more severe than what he has? I do not really understand the scale side of things….

Tanya, Young Adult, UK

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My grandad got HD in his 50s - could my mum and I have it?Y167167 people shared this0 comments

Hi. My grandad died of HD in his 50’s. He and my grandmother had 5 children. 2 of their sons (my uncles) developed the disease in their late 20’s and died, and one of their daughters (my auntie) developed it in her 30’s and has also passed away. My mum is now 64 and symptom free. What are the chances that she is a carrier and could develop late-onset Huntington’s? And if she is a carrier and has passed on the faulty gene to me, would it also be a late-onset form of the disease, or is the CAG count random and in no way liked to the family history? Thank you in advance.

Laura, Young Adult, France

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Can HD be similar to autism?Y180180 people shared this0 comments

Hello! Do you know whether early or prodromal HD can manifest as similar to autism? I have the HD gene and have been diagnosed with autism and my psychiatrist thought that might be the case and is in the process of referring me to a neuro psychiatrist to try to find out. I was wondering. Thanks for your help.

Brandy, Young Adult, UK

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Why might I not want the genetic test?T214214 people shared this0 comments

Hi! I like a lot your page and it’s helping me a lot. Would you tell me three reasons for not to take the genetic test? Thank you very much.

Silvia, Teen, Spain

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How old do you have to be to get tested?T182182 people shared this0 comments

How old do you have to be to get tested for Huntingtons? And how long do you have to go to counseling before you can get tested?

Zoe, Teen, USA

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My aunt has HD, is there I chance I do?Y154154 people shared this0 comments

Hi! I have an aunt who was diagnosed with HD a couple of years back. Neither my grandmother, my grandfather (both over 75 y/o) or my mother (55 y/o) are showing any symptoms and as far as any of us know, there haven’t been any other known cases in my family. Could my aunt still have inherited it from my grandparents, and is there still a chance I’m at risk of developing HD?

Mirjam, Young Adult, Norway

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My dad only got symptoms at 50, will I get them late as well?Y198198 people shared this0 comments

My dad starting showing hd symptoms at 50. I carry the gene does this mean I won’t get it until later in my life as well or can I show symptoms young even though his were older?

Mary, Young Adult, Australia

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My mother did not have the gene, can I?Y161161 people shared this0 comments

My grandmother died of H.D my mother was tested and did not have the gene. Can I or my daughter still have the defective gene?

Alison, Young Adult, UK

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My grandmother's brothers have HD, will I?Y122122 people shared this0 comments

4 of my grandma’s brothers are HD affected. She is showing up to now only major depression symptoms. are high the chances my father and I will be affected by HD?

Madalica, Young Adult, Italy

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My aunt has HD, could I have it?Y149149 people shared this0 comments

One of my aunts is suffering from HD, she is the sister of my mum. My mum is already 50 years old and I wonder if I could had inherited?

Carlos, Young Adult

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My grandma had HD, my father doesn't, can I?Y164164 people shared this0 comments

My grandma had hd and had 3 boys 2 of which are and were hd my father does not have hd can me or my children have hd

Carrie, Adult, USA

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My dad has HD. What are the odds I will?Y161161 people shared this0 comments

My dad has hd. My older sister and brother have signs of it. Me and my other older sister don’t not yet anyway. I look and act exactly like my mom. I’m very organized and have s good memory what are the odds I will have it?

Caitlin, Young Adult, USA

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My auntie had HD but my father doesn't could i have it?Y177177 people shared this0 comments

My auntie had HD but my father doesn’t could i have it?

John, Young Adult, UK

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My father doesn't believe HD is in the familyY171171 people shared this0 comments

My father completely rejects the identification of the HD gene (for which he has been tested twice in 2 different labs) and the diagnosis of onset. For the last 6 years, every attempt we and the doctors have made to convince him has failed. I don’t think he is in denial but that he lacks insight. He genuinely believes that the doctors have withdrawn their conclusions, which is a lie. When asked “What would it take for him to believe that HD is in the family?” His reply is “Nothing”. Do you have any advice on how we can help him to stop believing a lie and see the truth? Because until he accepts it, we or the doctors cannot help him.

Tim, Young Adult, UK

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What is Huntington’s disease?Y161161 people shared this0 comments

What is Huntington’s disease?

Mahendra, Young Adult, Nepal

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HD passes from father to daughters in my family?Y160160 people shared this0 comments

Hi, I have a question about HD transmission, my grandmother has the disease. In our family, my grandmother’s father had the disease and he had 1 son and 5 daughters, the man didn’t got the disease, but the 5 daughters had, this means that the disease passes from the father to the children that are women and from the mother to the children that are men?

Wellington, Young Adult, Brazil

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How does HD affect a person?K159159 people shared this0 comments

How does HD affect a person?

Luke, Kid, UK

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How long does a child have after being diagnosed with HD?J162162 people shared this0 comments

How long does a child have after being diagnosed with HD?

Anonymous

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My Grandmother is at risk. What are my chances?T196196 people shared this0 comments

my grandmother is 81 and is at risk for HD. Her father was the first one to have. What are our chances of inheriting it?

Michael, Teen, USA

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Is it possible to get tested with no symptoms?Y193193 people shared this0 comments

My dad was diagnosed with Huntingtons disease at 29 years old, he’s now 47 and refusing to eat or drink, he just stares into thin air and can barely talk :( it’s so heartbreaking and I’d like to know if it’s possible to get tested even though I have shown no symptoms as my dad was diagnosed young

Monica, Young Adult, N. Ireland

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If a mother has the gene is the son's chance 50-50?Y167167 people shared this0 comments

Hello there.. Love this site, very informative but I have friend actually who asked if I could do research for her on this diseases because he may have a chance of having it. So my question is if his (my friend’s) mother has the gene and shows signs of the disease but the father does not carry the gene will my friend have a 50-50 chance of having it or is it more or less likely that his sister carries it? Can he carry the gene but never show symptoms?

Heather, Young Adult, USA

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I'm 31, fit and healthy - am I still at risk?Y952952 people shared this0 comments

Hi, my mother, grandmother and uncles had HD. I’m 31 years old now, I’m very healthy and active, both physically and intellectually. I would like to know if I’m still at risk for HD? I have two children, one is 5 years old and the other is 3 months old. If I don’t have the gene mutation, they will not have it either? Two years ago I did several exams, I did a brain scan, and it didn’t find any lesion. Can I be at ease with this?

Pamela, Young Adult, Brazil

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Six questions about testing, symptoms and treatmentT314314 people shared this0 comments

Hello I have some questions regarding the diseases, because my mom has it….

Arvid, Teen, Germany

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Can you inherit HD from your uncle?T189189 people shared this0 comments

Can you inherit huntingtons disease from you uncle?

Shelby, Teen, UK

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If my mother doesn't have HD could I still have it?T166166 people shared this0 comments

My grandmother has huntingtons and we are not sure if my mother has huntingtons because she won’t get tested. I understand that if my mother has it I have a 50% chance of having it. But if my mother doesn’t have it is there still a risk that I could still have it?

Seth, Teen, Canada

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I have a lot of clumsiness and my mum has HD - do I have HD?T172172 people shared this0 comments

My mum has huntingtons, and I think I might have it due to a lot of clumsiness, is there a chance, what is the chance?

Haydon, Teen, UK

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My dad is 77 - can he still get HD?T188188 people shared this0 comments

My grandmother had HD and died aged 75. My Dad is much older than my mother and is now 77 but has no signs of HD. Does this mean that it’s unlikely that he won’t get it and therefore I won’t either?

Sandra, Teen, UK

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Can you get tested for HD anonymously?T235235 people shared this0 comments

Is there a way to be tested for huntington’s anonymously?

Rain, Teen, UK

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Is there feedback from the gene silencing trial?Y170170 people shared this0 comments

Hi I have recently tested gene positive I was wondering if there any feedback from the gene silencing trials trying to remain hopeful

Sheree, Young Adult, Australia

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What is the average age for symptoms to show? Is there a cure?Y183183 people shared this0 comments

My grandad died of huntingtons disease about 4 years ago, my mother today i’m unaware if she has it but i know she hasn’t and doesn’t want to be tested but before i’ve heard her mention things before which makes me think she might have it starting, i know her sister has it and it makes me wonder if i have it and what is the average age for the disease to start really showing symptoms and is there a cure for it yet?

Holly, Young Adult, UK

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Is it possible no children will inherit HD?Y526526 people shared this0 comments

My mother is 55 years old and has HD from the last 16 years, we are three siblings, I am aware that every child has a 50:50 chance of inheriting this disease but have you ever came across a family where not even one child inherited it?

Ayesha, Young Adult, Pakistan

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My mom has stopped eating, what should I do?Y412412 people shared this0 comments

My mom has Huntington since 15 years, she is completely bed ridden, since few days she has stopped eating anything, what should i do?

Khadija, Young Adult, Pakistan

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Can a 2 month old baby have HD?Y12491249 people shared this0 comments

Is it known for a 2 month old baby to have HD?

Ronda, Young Adult, USA

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My mum does not want to test, can I have JHD?T458458 people shared this0 comments

My grandmother has Huntingtons and we are not sure if my mom has it or not because she does not want to get tested but if she does have symptoms, in our family usually happen at around 40 or so. I am wondering is it still possible that I could have Juvenile Huntingtons

Seth, Teen, Canada

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How can we help my mum have a good sleep overnight?Y477477 people shared this0 comments

Hello, my mum has been suffering from Huntington’s chorea for six years and she’s just started to have serious sleeping problems – she gets up every 10 minutes at night to go toilet (even though she doesn’t really need to…). She takes medicines daily Haloperidol… What can we do to help her having a good sleep overnight?

Katarzyna, Young Adult, Poland

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If my uncle has HD and my mother doesn't can I get it?Y178178 people shared this0 comments

If my uncle has huntingtons disease and my mother doesn’t…can she still be a carrier and pass it on to me??

Kellie, Young Adult, USA

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Does age at conception affect passing on the gene?Y449449 people shared this0 comments

My grandfather had HD and my father, who is in hos mid 40’s is showing signs of it. I was conceived when my father was only 16 years old. Does his age at conception affect the possibility that I may or may not have the HD gene?

Natalia, Young Adult, USA

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My grandparents didn't get HD but their children didY229229 people shared this0 comments

3 out four children of my grandparents developed Huntington disease, but neither of them had shown any symptoms. I was wondering Since Huntington is dominant allele genetic disorder, how my aunts and uncle developed it from both healthy parents?

Pelareh, Young Adult, Canada

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How aware are people on sedatives?Y210210 people shared this0 comments

Good morning, I actually have few questions… My mum is 65-year-old and was just diagnosed with HD… Quite late… Mum is still able to walk and take care of herself. She takes some medicines. Does a person taking some sedatives/tranquilizers haloperidol understand they are suffering from HD? Are they aware of what is happening/going on around them?…

Kinga, Young Adult, Poland

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Are outbursts common even before diagnosis?Y782782 people shared this0 comments

My mother in law was diagnosed 2 years ago and I’ve known her for 7 years and knew there was a problem but no one was sure. She was the kindest most generous women but she would have these raging outbursts that didn’t make sense. Is that common for huntingtons even before diagnosis?…

Jolene, Young Adult, USA

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Is care free for people with HD?Y205205 people shared this0 comments

Is care free for people with Huntington’s disease?

Anonymous, Young Adult

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Does HD cause people to sleep a lot?Y322322 people shared this0 comments

Does Huntington’s cause the person to sleep a lot?

Carol, Young Adult, USA

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Can I have my adopted son tested for HD?Y200200 people shared this0 comments

My son is adopted and his grandmother and great have it can I have him tested without their consent?

Anonymous, Young Adult

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Can you find Huntington disease in women?K11741174 people shared this0 comments

Q. Also in women can you find Huntington disease?

Anonymous, Child, Spain

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Why do hd people wobble?K872872 people shared this0 comments

Q. Why do hd people wobble

Anonymous, Child

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Should my fiance be tested even though it only seems to affect women in his family?Y516516 people shared this0 comments

Q. My fiance’s mother had HD and passed away about 9 years ago… If he were to test positive can he pass it on to our children?

Meagan, Young Adult, USA

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Is there a grey area in prenatal CVS testing?Y231231 people shared this0 comments

Q. With prenatal CVS testing - is there a CAG count of the foetus where you DON’T have to terminate (eg between 36-39 the ‘grey area’ or 27-35)?

Sonnie, Young Adult, Australia

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As an only child do I have a higher risk of HD?T11251125 people shared this0 comments

Q. My grandfather and my father had HD; do I have more chances of developing the disease, being an only child?

Nathalila, Teen, Brazil

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Are my symptoms anxiety or Huntington's disease?T13301330 people shared this0 comments

Q. My mother has HD and she has 36 CAG repeats. Since she got her diagnosis, 3 months ago, I started an anxiety disorder… Can I develop HD sooner or can this all be psychosomatic, caused by the anxiety that I’m feeling?

Jorge, Teen, Brazil

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My dad's mum has HD, what are my chances?T172172 people shared this0 comments

Q. My dad’s mum has Huntingtons disease, and that scares me a little, what are the chances I could have those genes and could get the same disease?

Erin, Teen, Australia

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What is the relationship between repetitions and onset age?Y506506 people shared this0 comments

Q. My dad has 42 repetitions. What is the probability that the repetition increases if I have the HD gene?

Karla, Young Adult, USA

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Will I have more repeats than my mother?Y208208 people shared this0 comments

Q. My mother has HD and her genetic test shows 40 repeats. If I’ll have the condition, can I have more repeats than she has or will it be the same?

Fernanda, Young Adult, Brazil

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My 3 year old son's father has HD, is he at risk?Y191191 people shared this0 comments

Q. I have a 3 year old son and have just found out that his father has been diagnosed with HD. His mother passed away 2 years ago, she also had HD and one of his sisters has it also and was diagnosed some years ago. I would like to know if my son is at risk of developing HD, and if I can have him tested to see if he does carry the gene? Thank you

Stacey, Young Adult, UK

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Has HD stopped in my family?Y822822 people shared this0 comments

Q. My fathers mother died from huntingtons, his youngest brother, and his sister both passed from it. He is in his 60’s now no signs of it. Does that mean the disease stopped or can it skip to me his daughter or his two other sons?

Amber, Young Adult, USA

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What if both parents have the expanded gene?Y190190 people shared this0 comments

Q. What if both parents have the expanded gene for Huntington’s disease?

Patrick, Young Adult, USA

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Is gene silencing aiming to be a cure for HD?Y341341 people shared this0 comments

Q. I have been following the HD ‘gene silencing’ or ‘lowering’ clinical trials this year but does this represent a genuine ‘cure’ or does it, at best, represent a delay - if its the latter how many years would it delay the onset of HD?

Ashok, Young Adult, UK

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Money and HDK555555 people shared this0 comments

Q. What are the possible financial impacts to parents?

Justine, Kid, Australia

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Is there a cure? Is it hereditary?Y454454 people shared this0 comments

Q. Is there a cure for this disease? Is it hereditary?

Gaston, Young Adult, Spain

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My grandpa had HD but my dad does not, am I at risk?Y215215 people shared this0 comments

Q. My grandpa had HD but my dad does not have it, am at at risk of getting HD.

Kyler, Young Adult, USA

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My father was diagnosed but has no family historyY188188 people shared this0 comments

Q. My father was diagnosed about a couple of years ago, my father is 59 and the normal age for symptoms starts around 30-40 years old. No one in his family had Huntington’s. So my question is how could he possibly be diagnosed with HD if it is a genetic disease but yet no one in his family tree ever had it or ever had signs of it?

Stephanie, Young Adult, USA

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How old do I need to be to get tested?T182182 people shared this0 comments

Q. How old do I need to be to get tested?

Madison, Teen, USA

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My mom is 48 and has never had symptoms, am I at risk?T182182 people shared this0 comments

Q. Hi. My grandmother on my mom’s side died of HD at 51. She had five daughters, and they are all above the age of 40. My mom is the youngest at 48. Only one of them had the disease, and she has passed away at 53 years. The rest of them haven’t been tested but never had symptoms. My mom is 48 and has never had symptoms, could I be at risk?

Darby, Teen, USA

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If my brother's baby doesn't have HD will I get it?T216216 people shared this0 comments

Q. I have a question concerning if I’ll be a carrier of this disease. My grandma was the one with Huntingtons and had two daughters my mother and my aunt. Both of them don’t want to get tested for reasons understood. My mother has a 22 year old son who recently had a baby and the baby got tested for hd and came back negative. does this mean my brother got lucky. Does this mean I won’t get it at all?

Marc, Teen, USA

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My dad's aunt died of HD, could I get it?Y196196 people shared this0 comments

Q. My dads aunt died of HD. None of his other aunts or uncles got it. Neither him or his siblings got it. Could I get it?

Mike, Young Adult, USA

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My grandmother had HD, could my son have it?Y241241 people shared this0 comments

Q. My grandmother died from huntingtons, i am wondering could i have it or could my kids have it ? my son started getting ticks and eye blinking at about 7 he is now 17 and has many ticks and makes noises im worried he has it.

Crystal, Young Adult, USA

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Do I have to wait until I get signs to test?Y190190 people shared this0 comments

Q. My grandfather, aunt, uncle, father and sister all have tested positive, or show major signs of it, I’m not worried about the percentage rate, or the chances that I have it, I just would like to know, being 24, would I be able to get tested just to see if I have it, or do I have to wait till signs are present? What type of doctor should I be looking for to do the tests? Thank you

Albert, Young Adult, USA

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Is it possible to find out if someone has the gene after they died?Y186186 people shared this0 comments

Q. My brother has received a positive gene result that he has HD. My mom is 68 years old and my dad died when he was 56 but not from any disease. I wonder if it is possible to find out after a person’s death if he or she was a gene carrier?

Annethe, Adult, Sweden

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What exactly does the HTT gene do?Y307307 people shared this0 comments

Q. What exactly does the HTT gene do? …

Nancie, Young Adult, USA

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Since my dad won't get tested is there any way I can?Y161161 people shared this0 comments

Q. My grandma inherited HD from her mother and she recently passed from it. My grandma has 4 children, 1 of which has been tested positive but the others do not want to know. My question is since my dad won’t get tested is there anyway I can still be tested? I have a family of my own to worry about and I don’t see how it’s fair to me and my girls not to know where my life may or may not take me with this horrible disease.

Cindy, Young Adult, USA

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Do non-identical twins have 50% each chance of getting HD?Y620620 people shared this0 comments

Q. My partner’s mother has HD as she inherited from her mother. My partner has a twin brother (dizygotic). Do they still have 50% each for inheriting HD?

Mel, Young Adult, Greece

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If my boyfriend doesn't have HD could our baby?Y193193 people shared this0 comments

Q. My boyfriend and I just had a baby. His grandmother has HD and his dad also. My boyfriend has not been tested and we do not know if he has it. My question is, if my boyfriend doesn’t have it, is there still a possibility that our baby could have it?

Heather, Young Adult, USA

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Why do people with huntington's disease get so mad so easily?Y223223 people shared this0 comments

Q. Why do people with huntington’s disease get so mad so easily?

Kylee, Young Adult, USA

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Can you modify the gene to have a baby without HD?Y164164 people shared this0 comments

Q. Hi, my mother-in-law has HD, is 60, her late father too, my husband had symptoms and is in his 30’s. We decided not to have a baby for this reason. Now someone told my husband is possible kind of “modify the gene” in the embryo/fetus to have a baby without HD, but this procedure is very expensive and not so common….is it true???

BA, Young Adult, USA

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What do the researchers know exactly about CAG 36?Y176176 people shared this0 comments

Q. I’m really interested in scientific data about inheriting Huntington’s disease from mother who has 36 CAG repeats (father without the mutation). What do the researchers know exactly about CAG 36?

Ewa, Young Adult, Denmark

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Why did my grandpa get HD when his father didn't?T10241024 people shared this0 comments

Q. Hi my Dad has HD, I was wandering why my grandpa got HD when his father never had HD?

Brad, Teen, Australia

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How can I help my son's balance?J652652 people shared this0 comments

Q. My son is 20, he has JHD. He is developing problems with balance and falls. Will physical therapy help with balance? Any medications that are effective with JHD and balance? Anything available to help wth Symptoms of JHD?

Laura, Adult, USA

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My mom had JHD, I'm 16 and don't have symptoms, could I still have it?J370370 people shared this0 comments

Q. If my mom had Juvenile Huntington’s Disease, and I am now 16 and have not had any symptoms of Juvenile Huntington’s Disease, does that mean I do not carry the disease at all or can I still develop the disease at the older age?

Victor, Teen, USA

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With two children will at least one of them get HD?Y184184 people shared this0 comments

Q. Theres a mother that has HD. She has 2 children, both male. Is it possible that both of them doesnt get HD and can live with there lives? Or one of them is going to get it?

Stephy, Young Adult, Puerto Rico

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My father died at 56 without signs, could I have HD?Y190190 people shared this0 comments

Q. My father’s family have developed HD by the time they were in their thirties; however, my father died at 56 due to an accident and, until then, he never showed signs of this disease, so we believe that he didn’t inherited it. Do my brothers and I have the chance of having inherited it?

Natalia, Young Adult, Brazil

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Do identical twins have the same HD status?Y712712 people shared this0 comments

Q. If the genetic testing for Huntington’s Disease of an identical sibling is positive does it mean that the other has it as well automatically because they have the same genes? Or does the other also have a 50:50 chance?

Susanne, Young Adult, Germany

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Can kids be tested if their mom doesn't want itY11241124 people shared this0 comments

Q. My sister was diagnosed with HD, another sister is showing symptoms but has withdrawn herself from the family… The kids are now having kids of their own and our family is struggling. Have you heard of this before and is there any way around it?

Tina, Young Adult, USA

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I have HD, will my children have HD?Y179179 people shared this0 comments

Q. Hi..my mother is HD. I am also diagnosed. I know I have got this from my mother. My worry is that will my children also have the HD. I am planning to start my family in couple of years. Thank you

Aryan, young adult, India

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Can any drugs help my nephew with JHD?J903903 people shared this0 comments

Q. I have a 10 year old nephew that has HD, he is in the Hospital, intubated, he is feeling a lot of pain and the doctors are giving him medication to control de pain and the convulsions. Are there any drugs that can help him?

Viviane

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If my mum has the disease what are the chances of me getting it?T211211 people shared this0 comments

Q. If my mum has the disease what are the chances of me getting it? Also….

Kieran, Teen, UK

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Do people with HD die of the disease or of natural causes?T737737 people shared this0 comments

Q. Do people with HD die of the disease or of natural causes?

Andrew, Teen, USA

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Are there treatments to improve the symptoms?T10701070 people shared this0 comments

Q. Is there any treatment that can reverse this slow process or, at least, that can improve the symptoms?

Brenda, 15, Brazil

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What is the youngest recorded age for HD symptoms?T231231 people shared this0 comments

Q. What is the youngest age recorded, of someone having symptoms for Huntingtons Disease?

Tyler, Teen, UK

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Family history, onset and symptomsY195195 people shared this0 comments

Q. My grandma had HD and I’m not sure when she got symptoms but probably around her 60s… Is it realistic to think that, if I have the disease, it will be similar in terms of age of onset and severity as my family?

Michelle, young adult, USA

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My dad, aunt and uncle have HD, will I?Y222222 people shared this0 comments

Q. My grandma passed away from HD and my dad, aunt and uncle all have it. What are my chances?

Cori, Young Adult, USA

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How do you get HD without your ancestors having it?K586586 people shared this0 comments

Q. How do people get HD if none of their ancestors had or have it?

Maddie, 11, USA

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What chromosome is mutated in HD?T636636 people shared this0 comments

Q. What chromosome is mutated to have huntintons disorder?

Jabba, teen

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Is HD gene on the X chromosome?Y405405 people shared this0 comments

Q. Father inherited HD from his mother. Therefore, will everyone of his female offspring inherit the HD gene due to the ‘X’ chromosome contributed by the father, making probability 100% vs. 50%?

MJ, Young Adult, USA

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What happens in cognitive testing?Y345345 people shared this0 comments

Q. What do they do for cognitive testing they said my appointment was going to be about 4 hours im nervous but really want to know of i inherited the gene from my father.

Alex, Young Adult, USA

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What is the physical test for HD?Y464464 people shared this0 comments

Q. I would like to know how is made the physical test that is done in the clinic to know if you have HD?

Patricia, young adult, Brazil

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Could my symptoms be HD?Y11981198 people shared this0 comments

Q. My great grandmother died of a severe neurological disease in the 1940s. She would have been around 50 at the time of her death. My grandfather never spoke much about his mother or what illness she had except to say that he had to provide for the two of them while in school. Medical records have been long since destroyed and he died fairly young of cancer, himself. My parents generation doesn’t show any signs of HD…

Is it worth being tested to rule out HD, or is it too unlikely to be the cause of my problems?

Jake, Young Adult, USA

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Who does testing on children in California?Y495495 people shared this0 comments

Q. I live in California.. I would like to know who does testing on a young child of the age of 12 months. We are adopting my little niece but we just found out that her maternal mother had huntington’s disease. So we like to do the genetic testing just to plan the future.

Anabell, US, Young Adult

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Does having a low gene count decrease the chances of HD?Y474474 people shared this0 comments

Q. Does having a low-Huntington gene count decrease the likelihood a child will develop HD?

Laura, Young Adult, USA

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What can I do to help in Brazil?Y403403 people shared this0 comments

Q. My mother died at 51 with HD. My grandfather also had the disease, and my uncle has it too. I’m 29, I’ve married 6 months ago. I’ve never thought about doing the test and I intend to get pregnant through artificial insemination. However, lately, I’ve been thinking about this everyday. One of my relatives has done a surgery and had a pacemaker implanted to control the involuntary movements. I’ve never read anything about that. What do you know about this surgery? And I would also like to make myself available to help in some way.

Natalia, Young Adult, Brazil

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My Dad has HD, am I likely to have it?T607607 people shared this0 comments

Q. My Dad has HD, i was just wandering is it likely for me to get the disease now?

Peter, 14, Australia

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Can you have IVF without testing yourself for HD?Y475475 people shared this0 comments

Q. So my partner has a 50/50 chance of having hd.. his dad and auntie have tested positive for it. however he is against having the test yet wants to start a family in the next couple of years. I dont want to start a family knowing there may be a chance my child might obtain the disease. Is there any way of making sure the child doesn’t have the gene like gentic testing or ivf? if there was we would still end up finding out if he has it

Katie, young adult, UK

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Can 2 brothers get infected at a wide age gap?Y10261026 people shared this0 comments

Q. If my uncles got HD at the age of 25-30 and my dad is 50 years old and didn’t have any symptoms so far - does it mean that he don’t have the gene at all?

Eliel, 25, Israel

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My non-identical twin has HD, what are my chances?Y475475 people shared this0 comments

Q. I’m a dizygotic twin, I’m 27, and my brother has Huntington’s Disease (it started around the age of 18). In this situation, am I still at a 50% risk condition of having the gene or, because I’m a dizygotic twin, I have a lower or even null risk of HD?

Bruno, Young Adult, Brazil

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My grandfather had HD, what are my chances of having it?Y436436 people shared this0 comments

Q. My grandfather had Huntington’s..I’ve also had 2 aunts pass away with with.. now have 3 cousins diagnosed with HD. My dad hasn’t been tested and as far as I can tell doesn’t show signs. What are my chances of having HD?

Lisa, young adult, USA

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Will my CAG repeat change?Y475475 people shared this0 comments

Q. Will my CAG repeat change or stay the same?

Jessica, Young Adult, USA

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I haven't developed JHD, has my risk of HD fallen?Y582582 people shared this0 comments

Q. If my father has HD but I have not developed JHD does that mean that the chances of me developing HD falls slightly? If so, what percentage? Thank you

Ashok, Young Adult, UK

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PGD in ItalyY405405 people shared this0 comments

Q. Is it possible to perform PGD in Italy? Which the requirements and eventual facilities?

MG, 26, Italy

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My memory is not as good as I was, should I test for HD?Y578578 people shared this0 comments

Q. I used to be able to retain a lot. Now as I’m growing into adulthood I’m noticing that those abilities are decreasing dramatically. Should I get tested for Huntington’s?

Brian, young adult, USA

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If your grandmother had HD should you be tested?Y432432 people shared this0 comments

Q. If your grandmother had huntingtons disease, should you be immedialty tested after, no matter how old you are

Julia

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What does HD feel like?T701701 people shared this0 comments

Q. What does it feel like to have HD (Huntington’s Disease)?

Catie, 15, USA

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I don't have a family history, could I have HD?T528528 people shared this0 comments

Q. I don’t have a family history of HD, but I have been noticing some symptoms that seem to be consistent with early HD.

Drew, 18, USA

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Dropping things and being forgetfulT457457 people shared this0 comments

Q. If I tend to drop things easily or forget about something, is it the symptoms for the disease? And how to confirm that I have this disease?

Najah, 18, Malaysia

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How can I help keep my mum's mind active?Y451451 people shared this0 comments

Q. Hello, I am a carer for my Mother who suffers with HD and she is very reluctant to leave home. I am worried that if I don’t keep her mind active at home she will get very bored and give up. Can you help me with ideas at all? We live in a ground floor flat. Thanks

Amy-Jo, Young Adult, UK

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Do I just have the chorea and mental symptoms?Y345345 people shared this0 comments

Q. My mother, grandmother, and 3 uncles have died from HD. My brother is 36 and has been having the symptoms for the last 5-6 years. I am 22 and I’ve known about HD for a long time since I was about 5 or 6. In the last 2-3 years my memory has gotten pretty bad as well as behavioral.

Could I be suffering from just the mental part and the chorea and other symptoms come later or is what going on with me normal? I dont feel normal like I used to

Cici, Young Adult, US

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How do you test for HD?T394394 people shared this0 comments

Q. I’m writing a paper for school and haven’t found this answer; How do you test for HD? I originally thought it was a blood test but need to know for sure.

Thanks, Darci

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How is HD caused?T598598 people shared this0 comments

Q. what does huntingtons disease really do to your body, how is it caused, how is it cured.

Ashley, 18, USA

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Can you test a baby during pregnancy?T747747 people shared this0 comments

Q. If a women is pregnant and has the potential to have HD disease, can you test the baby while it still being in whom to see if it has HD disease?

Emily, 18, Canada

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My mum isn't showing signs, should I get tested?Y329329 people shared this0 comments

Q. If my mom wasn’t diagnosed with Huntington’s until she was 30 when should I get tested if I’m not showing any signs of the disease right now? And if the test comes back negative when should I go and get tested again?

Katelyne, 21, USA

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How many people are affected?T15451545 people shared this0 comments

Q. How many people are affected?

Madison, 14, USA

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My dad had JHD, should I see a doctor?TJ18441844 people shared this0 comments

Q. My dad developed juvenile hd in high school at 35 years old over three years ago. Currently I am 17 and I have slurred speech, sometimes even I can’t understand what I’m saying, my family constantly asks me to repeat myself, over and over… do you think I’m showing enough signs to go see a doctor or is it just me being paranoid?

Melinda

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I have symptoms, should I test for HD?Y518518 people shared this0 comments

Q. Over the past few years I’ve noticed a substantial decline in my speech and movements. I do not have access to my biological father’s medical history, but I do know that HD does not run on my mom’s side. Would it be foolish of me to want to get a genetic test for HD?

Erica, 21, USA

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Do I need symptoms to test?Y342342 people shared this0 comments

Q. My father has HD, I would like to know if I need to show symptoms to be able to do the test. Thank you.

Marina, 24, Brazil

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How do you get HD?K891891 people shared this0 comments

Q. How do you get this condition?

Chantal, 8, Netherlands

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Counselling for testingT669669 people shared this0 comments

Q. I am only 15 however I am looking to the future and thinking about testing. If you do not know if you are going to be tested, do you still get counselling to help you decide?

Oli, 15, UK

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Symptoms take a long time for some peopleT449449 people shared this0 comments

Q. I would like to know why for some HD patients it takes so long for the symptoms to appear. If the gene mutation is there since the beginning, why only when those patients get to their 40’s, symptoms start to be visible?

Victor, 19, Brazil

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I'm pregnant and 17, can I get the test?Y545545 people shared this0 comments

Q. I know that the test for Huntington’s Disease is only for over 18s but if you are pregnant at 17 and want to have the test to see if the baby would be at risk can they make an exception?

Ella, 17, England

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What do I do when someone gets angry?K18311831 people shared this0 comments

Q. What to do when someone is getting angry for no reason and starts shouting abuse?

Kerhys, 9, UK

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Does the oldest sibling get HD?Y584584 people shared this0 comments

Q. Hi, I want to ask somethings about HD. My grandma had it and she had 3 daughters. Now my mum is suffering from HD, and she was the elder one of the 3, Has it something to do to be the elder?

Lola, Young Adult, Spain

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Does my friend with chorea have HD?Y506506 people shared this0 comments

Q. a close family friends mother passed away from hd in her forties. about a year ago my friend had chorea like symtoms. they lasted almost 6 months. he just turned 30 and the jerking movements have completely stopped. is this common for someone with hd? he refuses to get tested and insists he doesnt have hd. i would be grateful for any feedback.

Shirley, 30, USA

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My husband has bad symptomsY537537 people shared this0 comments

Q. My husband is an HD carrier, he is impotent, aggressive, nervous, doesn’t like to talk, after the diagnosis he is getting worse, are these symptoms normal, he is being treated in Sarah Hospital since 2013.

Regi, young adult, Brazil

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Is HD in adolescence more severe?Y566566 people shared this0 comments

Q. I would like to know if the HD that starts in adolescence is more aggressive/severe. I have a 21 year old daughter that started the disease at 15 years old. When I compare her with other family members I think her case is much more aggressive/severe.

Sandra, 37, Brazil

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Can symptoms develop at any time?Y405405 people shared this0 comments

Q. My mother is 48 and over the past couple years we have noticed her movements and speech seem to be off. Can the symptoms develop at any time, even if it tends to show up much earlier in our family?

Bailey, 23, USA

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My mum is 60 without symptoms - does she have HD?Y549549 people shared this0 comments

Q. My mum is 60 now without any symptom of the disease. Can she suffer from HD? Or, Can she carry the gen and pass it on to me or to my brother?

Clara, 24, Spain

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Is there a cure?T430430 people shared this0 comments

Q. Is there a cure for Huntington’s disease?

Danielle, 17

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Should I have the test when I turn 18?T709709 people shared this0 comments

Q. Hi, i am nearly 17 and i am at risk of huntingtons disease. I am finding it very hard to make the decision. I feel so tempted to have the test as soon as i am 18 but i just don’t know what to do !

Katie, 17, UK

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The gard proteinT700700 people shared this0 comments

Q. How could the gard protein be inevitable in taking down hd and would it have any side effects ? also could the protein make hd worse?

Keir, Teen, Scotland

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How can there be a difference of 3 repeats in the test?T945945 people shared this0 comments

Q. Hello!

My dad has got the HD Gene. They always take two blood samples. The counts of the mutant gene were the same in both cases. But for the normal gene there was a difference of 3 repeats. How can that be? Can the count of the mutant gene also be insecure?

Thanks

Efa, 18, Germany

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My grandpa yells at my grandma, what should I do?T602602 people shared this0 comments

Q. My grandpa has HD he is always ragging on my grandma for some odd reason, this includes yelling and just breaking down in a tantrum, my grandma always gets down on this should I say anything to my grandpa about what he is doing to my grandma this has been going on for a long time but never get the courage to stand up for her, what should I do?

Kellie, 13, USA

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Living in Sri Lanka and HD resources for testingY361361 people shared this0 comments

Q. My mother had Huntington disease and she showed symptoms at her age 45. Gradually it became worst. She got paralysis at the age of 54 and after two years she died because of the disease. She suffered lot from this illness. She ate little food and she got huge weight loss. We lived in Sri Lanka and in this country this disease concerned as a rare sickness and did not give proper attention to these patients … I want to know if i diagnose this disease at this age whether it can be help to get rid from this illness. Please help me to make my mind….

Dul Shani, 21, Sri Lanka

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How can I help my mother with diet and exercise?Y483483 people shared this0 comments

Q. Good night, this year, in July, my mother, who is 45, exhibited severe seizures, being hospitalized several times. The diagnosis was HD, which was confirmed with a genetic test. I’m the oldest daughter and I would like to receive information about eating/diet and what kind of exercise I can help her to do…

Etienne, 22, Brazil

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Should I be concerned about my 10 year old son?Y942942 people shared this0 comments

Q. My husband (42 years) has Huntington’s disease. Since March he is unable to work. We have 2 sons (10 and 12 years). By chance I filmed my younger son during our holiday while running at the beach. He makes clear choreatic movements with hands and arms… What shall I do?

Gaby, young adult, Germany

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How does HD affect an individual’s school life?T13111311 people shared this0 comments

How does HD affect an individual’s school life?

Latifa, teen, UK

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Is my husband developing symptoms?Y17161716 people shared this0 comments

My husband is 30 years old and has a history of HD in his family. How can I look at this behaviour, meaning, is it possible that he is starting to develop symptoms?

Ana, young adult, Brazil

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Will a cure help people who already have symptoms?Y603603 people shared this0 comments

If a cure is found for HD, is it possible that people currently suffering will get better? Or are the effects caused by HD permanent?

Jodie, 26, UK

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I'm looking to get tested soon but am sure I have the disease, is that common?Y481481 people shared this0 comments

Hi. I’m looking to get tested soon. I am sure I have the disease but don’t show any ‘clinical symptoms’. I understand it is normal to feel this way. I’m just wondering if there is knowledge amongst the professional community about any very very early symptoms? Is it common for the ‘at riskers’ to suffer from ‘med students syndrome’?

Neville, young adult, Australia

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Is there anything that can help kids with the gene?Y516516 people shared this0 comments

My late husband had HD, I have 11 years old boy , is there anything which help these kids if they got the effected gene

Sara, 30, Pakistan

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Do you have to have a parent with HD or can it just be in the family?Y808808 people shared this0 comments

Ok I know i am not a young adult but i have questions and concerns about HD. Do you have to have a parent with HD or can it just be in the family? My husband is 36 and i don’t think he has any signs but i am concern for my nephew.

Sara, 34, US

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Is it worth the risk?Y14551455 people shared this0 comments

I plan on getting tested for HD soon hopefully but at the same time I want to start a family. If I test positive I don’t want to pass it down to my children if they have the chance. Is it worth the risk?

Ashley-Marissa, young adult, US

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I feel I have symptoms of HD, who should I talk to?Y18441844 people shared this0 comments

Whom do you suggest I should approach if I’m unsure whether I have HD but I feel that I have most of the symptoms? Please guide me whether a GP would be able to help out or whether I should visit a Neurologist? Thanks.

Alison, 27, Malta

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What kind of natural remedies can I take or things can I do to stave off HDY14451445 people shared this0 comments

Hi there everyone I was wondering if I could get some advise on natural remedies and things I can do to stave off Huntingtons.

Francis, young adult, Australia

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How should I handle my sister being diagnosed with HD?T16831683 people shared this0 comments

My sister (29) was diagnosed with HD some weeks ago? How can I learn to handle this? How shall I behave when I meet her?

Mani, 18, Germany

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At how old can you get tested for this disease?K25342534 people shared this0 comments

At how old can you get tested for this disease?

Hannah, 10, USA

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My father has convinced himself that Allah has cured him, what should I do?T17071707 people shared this0 comments

My father had been admitted into full time care, but has convinced himself that Allah cured him and is constantly arguing with his carers that he should be let out. What’s the best thing I should do?

Megan, 17, Australia

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How can I cope with my mom being overly obsessed with things?T12591259 people shared this0 comments

How can I cope with my mom being overly obsessed with things? it has gotten worse since she has gotten sicker and I cant handle it.

Ashley, 17, England

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I have two siblings, is it possible that none of us will get HD?T16611661 people shared this0 comments

My mother has Huntington’s Disease and I have two other siblings. I was curious if there was a possibility that all of us would not develop the trait, or if at least one of us will end up with the disease because of the 1 out of every 2.

Kellie, 18, USA

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How old do we have to be to have an HD test?T17341734 people shared this0 comments

How old do we have to be to do tests to find out if we are positive or negative? And do we have to do anything prior to having the tests?

Angela, 16-17, Australia

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Is it normal for the movements to stop at a certain point in HD?T24952495 people shared this0 comments

My mom has HD and I was wondering is it normal for the movements to stop at a certain point because i noticed she doesnt move as much anymore but has kind of lost touch with reality a little bit so whats happening what does that mean?

Kort, Teen, USA

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How do i cope with my dads bursts of anger?T15581558 people shared this0 comments

How do i cope with my dads bursts of anger?

Reuben, 14, UK

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Questions about eating and choking and what people with HD feelY13081308 people shared this0 comments

Is it normal that my mom is only 55 years old and is still eating but very little and with choking. Is it possible she will not speak at all? Is it likely this will occur soon or how long can it take?

Lorena, 24, Spain

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Will having HD in my family affect my chances of becoming a nurseT17981798 people shared this0 comments

My mother has huntingtons disease I don’t want to be tested for it but I want to become a nurse will it affect my chances of becoming a nurse?

Sophie

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Is HD more common in specific genders or groups?T18031803 people shared this0 comments

Is HD more common in specific genders or groups?

Mary

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Are people aware that they might be at high risk of HD?T26422642 people shared this0 comments

Are people aware that they might be at high risk of HD?

Jimmy

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What makes people want to be tested for HD?T16911691 people shared this0 comments

What makes people want to be tested for HD?

Brianna-Jennifer

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What's life like for a parent whose kid has HD?J10811081 people shared this0 comments

What is life like for a parent whose child has Huntington’s disease? How can I find more information and get help?

Cable

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How can we stop these diseases?K20952095 people shared this0 comments

How can we stop these various diseases?

Nandhini

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HD, moving house, stress, facebook, cures and carersK11651165 people shared this0 comments

We just moved a few months ago. Is this putting more stress on my mom with h.d more than me? 2. My mom has HD she is addicted to Facebook, will her addiction go away? 3. Are they close to finding a cure for HD? 4. What is a carer?

Munchkin

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Can you hold out your tongue in the early stages of HD?T16821682 people shared this0 comments

Can one hold out his tongue in the early stages of HD?

Faye

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My dad doesn't have the gene, is it possible for me to?T17251725 people shared this0 comments

My Grandma had huntington’s disease, her first child had it, then it skipped my aunt, then her second child had it, then it skipped my dad. My dad got tested, and doesn’t have the gene. Is it possible for me to get Huntington’s disease?

Louise

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My mother had huntingtons, do I?Y14041404 people shared this0 comments

My mother had huntingtons and some doctors said the disease HAD to be passed…. BUT, some said that it COULD be passed…. My question is, does it HAVE to be passed or what?

Shanda

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I don't want to get tested - what are the options for having children?Y12641264 people shared this0 comments

My great-grandmother had HD and I’m thinking about having children in the future. Am I being too cautious/paranoid about it all as my risk is low? Secondly, do you think I would be allowed to adopt a baby with my partner given my at-risk status?

Amy

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How can I support my friend whose mom has HD?Y898898 people shared this0 comments

I have a friend whose mom has Huntington’s disease and he has a 50% that one day he will one day develop the disease as well. How can I help him stay calm?

Marilyn

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What can I do to help with spilling things and falling?Y772772 people shared this0 comments

I recently tested positive for HD. I was wondering if any one has any ideas about how to help with spilling things, and falling?

Britt

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How does getting an HD test affect jobs and insurance?T16921692 people shared this0 comments

If I test for HD and am positive. What impact does this have on jobs/careers/mortgages/insurance etc?

Izzy

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Options for having childrenY11091109 people shared this0 comments

I was wanting to know how the natural birth is meant to happen?

Lara

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If no one in my family has been tested can I get tested?Y673673 people shared this0 comments

If no one in my family has been tested can I get tested? Also would you want to be the one to tell your mother and grandfather they both DEFINITLY have Huntington’s?

Jeff

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How can I help my mum?T15081508 people shared this0 comments

How can i help my mum who has the disease?

Ellie

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Can I get tested before I'm 18?T11631163 people shared this0 comments

Is there any chance i can get tested before the age of 18?

Sam

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Could I be developing symptomps at 17T11711171 people shared this0 comments

My dad has HD and I’m only 17 and I’m scared that I’m already developing symptoms, as I looked them up, is this possible for me to develop the symptoms of HD at my early age?

Joshua

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I've been showing early symptoms of HD, should I get tested?Y15801580 people shared this0 comments

I’ve been showing early symptoms of HD, should I get tested?

Brittany

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HD and attentionY925925 people shared this0 comments

My father suffers from HD and he always tells us to shh but then he talks away to us.

Ash

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Does everyone with the gene get symptoms?Y12471247 people shared this0 comments

Even though you are positive for the gene, does that mean you are for sure going to develope symptoms?

Kierstan

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Testing and insuranceT12241224 people shared this0 comments

Is it better for me to put down on forms that I may have HD, or that I do have it?

Kiran

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Jobs and an HD diagnosisT12361236 people shared this0 comments

Can being diagnosed with HD affect the kind of job you get in future?

Elli

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Multiple sclerosis and Huntington's diseaseY11731173 people shared this0 comments

I have multiple sclerosis and the HD gene, how do I know if the HD has started?

Antionette

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Repeat count and symptomsY522522 people shared this0 comments

Does my repeat count affect when I’ll get HD symptoms?

Nancy

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What region is most affected by HD?T37303730 people shared this0 comments

What region in the is more world affected by HD than the rest of the world?

Kimberly

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School research project questionsT931931 people shared this0 comments

I am currently doing a project on Huntington’s disease for school and I had a few questions concerning the disease.

Camilla

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Does anyone else get irritated and angry dealing with HD?T732732 people shared this0 comments

I’m 19 years old and My mom was diagnosed with huntingtons when i was in elementary school, she is in the middle stages now, but seems to be doing well on her trial medicines and tests. I have 2 sisters and I feel like I am so hostile towards my mom all of the time. I stay in my room and almost everything she does, irritates me. I don’t like feeling this way, but i can’t help it. Does anyone else get this way?

Sarah

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Is there any way to slow down HD?Y445445 people shared this0 comments

My mother has HD, along with one of my uncles and one of my aunts. My grandfather also had HD but he has passed on. I am unsure about having children because of this disease, and I am also unsure if i ever want to get tested, simply becuase of the emotional scars I have already undergone. So my question is this, if i were to have HD, what can i do RIGHT NOW in my life to help slow down the effects of this disease?

Maria, 21, USA

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What are the chances of getting JHD?J14741474 people shared this0 comments

Everyone at risk of HD has a 50% chance of getting it but how do I know what my chances of getting JHD?

Alexandra

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Why do people with Huntingtons not talk well?T12321232 people shared this0 comments

Why do people with Huntingtons not talk well?

Rebecca, 13, England

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Can you help me explain HD?T30943094 people shared this0 comments

My friends don’t understand what HD is and I don’t know how to explain it best. Can you help me explain it better?

Tom, 16, Canada

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My big brother has JHDJ22582258 people shared this0 comments

My big brother has jhd will that mean I will to?

Seth, 13, America

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What are our options for starting a family?Y650650 people shared this0 comments

My partner and I are thinking of starting a family, but I don’t want to have any kids at risk of HD. What are our options? Where should we go for help?

Lucy, 26, England

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How can I help my auntie?K21662166 people shared this0 comments

Is there any thing i can do to help my auntie who has Huntington’s? She’s in a care home

Emma, 11, England

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My dad has HDK16671667 people shared this0 comments

My dad has just got HD will he be ok?

Ross, 10, USA

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My grandad has HD - am I at risk?Y25762576 people shared this0 comments

I have just found out about Huntington’s disease being in my family, my granddad has been diagnosed with it at the age of 71. My mom doesn’t know if she has it yet. Am I at risk? If so, can I get tested?

James, 21, USA

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Is JHD common?J17321732 people shared this0 comments

Is JHD common? I am worried that my at risk children may get JHD, their mom has recently been diagnosed with HD. She’s only 34 yrs old. Should I be worried?

David, 36, USA

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How many of us will get HD?T26832683 people shared this0 comments

Me and my two brothers are all at risk. How many of us will get HD?

Sarah, 15, America

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The panel of expertsKTYPJP88558855 people shared this0 comments

Who are the experts? Find out about our panel of experts here!

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