Is it possible I was tested for HD in the womb?

Why when I try mention HD to my friends do they not understand me, or understand how much of an impact it makes on my life?

Ella, Child, UK

Hi so, my grandma had Huntington’s and she had 3 kids. 1 got tested and it was negative and the other 2 did not and the one that did not get tested was my dad. My dad said I go tested right when I was born, But IDK if that was a accurate test could I still have it??

Olivia, Teen, USA

My mum has HD and when I am 18 I was think of getting tested, but I’m not sure whether I want to or not because it might have a big impact on my life, what is your advice?

Hollie, Teen, UK

I found out today my mum has huntingtons she has 43 copies of the gene yet she’s 50 and it’s not too bad yet my auntie had it come on when she was younger so I know what to expect, how long left do I have untill it gets bad

Anon

How can you tell if you have huntington’s disease? And are you able to get it at the age of 13? How do you know if you have it? Is it common in China?

Samantha, Teen, USA

Hi, my aunt and father have HD. Me and my sister are very afraid that we might have it as well. My sister had depression and often has thoughts of suicide because of this. We aren’t old enough to get tested yet but we both want to. I’m just curious as to what treatments are available for HD right now/ could be in the future? How close is a cure?

Angela, Teen, USA

How many people does it affect in the world? Like 1 out of every how many people does it affect?

Renee, Teen, USA

For the people who have Huntington’s Disease and are sick, do they know what’s happening to them and they’re just not able to talk back or do they not know what’s happening around them?

Karen, Teen, USA

How old do you have to be to get tested? How long is the process?

Mia, Teen, USA

if my aunts and my uncle on my mothers side had HD does that mean i have a chance of having HD?

Cameron, Young Adult USA

Why does it effect people so much?

Eva

How do I stop worrying about JHD?

Anonymous

If my mother had HD but I don’t have it, could I give it to my baby? Do you still carry the gene even if you don’t develop the disease?

Anonymous

I’m an identical twin, and my brother and I are at risk for HD. Our father had it. I want to be tested, but my brother refuses. What do I do?

Levi, Young Adult, USA

Why don’t people know about HD?

Zoe, Child, England

My great nan had huntingtons disease (did not pass away until early 80’s) my nan currently has it and my my mum currently has it. I have not had the test. My nan is 67 and still lives alone with a little help from my mum but copes day to day still. My mum is 50 and although I am starting to see behavioural changes she too is doing very well. As my line of family seem to develop the disease a lot later does this mean if I tested positive I would be more likely to develop the disease at a later age?

Charlotte, Young Adult, UK

My boyfriend is positive for the HD gene. His grandmother was diagnosed in her 70’s. His mother is also positive for the gene. She is 60 and showing no symptoms yet with a count of 40. How predictive is age of onset from previous generations? Does this mean he may not present until later in life since that seems to be the trend in his family history?

Melissa, Young Adult, USA

My dad got his results back to and got the all clear but he scored 27 on the test what is the chance I will get it

Ashley, Young Adult, UK

My mother and grand mother have Huntington disease. I’m really wondering what the possible positive and negative effects may be if I get tested. Thanks

Scott, Young adult, Canada

Are people in pain when they have hd

Blaze, Child, USA

My father was diagnosed with a count of 38 and I also have the same count. Dad is now 75 and not really showing any signs I have since had 2 girls who are aged 5 and 6. My wife is now very worried for our daughters. Can kids be tested? Or is this up to each individual once they are 18?

Jason, Adult, Australia

My dad was recently diagnosed with late onset hd. He is pre-symptomatic and 60. I am aware that the disease often gets worse passed from father to children. Is there any data regarding how often anticipation occurs? Would a longer cag repeat length than his tell me whether I would be earlier onset than him? Thanks!

Julianna, Young Adult, USA

If I want to get tested at the age of 18 when would I have to counseling

Amy, Teen, UK

My grandma,aunt and father have HD I’ve been tested and I don’t have it….my brother chooses not to be tested for his own reasons he is 27 years old. …. my dad showed signs at 35 same as my aunt and grandma.. I was wondering if my brother does have it, will he start showing symptoms at the same time as my other family members or does each person show at different times?

Aimy

Is it possible to carry the HD gene but never show any symptoms?

Lewis, Young Adult, Australia

If I’m pregnant and I have huntingtons and the father does not will the baby have huntingtons?

Anonymous, Young Adult

No one in my family had HD, but some how my mom got it. Is there any way to developer this disease without it being passed down?

Jasmine, Young Adult, USA

Hello! My aunt passed from huntington’s several years ago even though it appeared that neither grandparent (gma passed at 75 and gpa passed at 86 of natural causes and heart disease) had it….

Sarah

My dad is getting tested for HD (and doesn’t know I know this) do I have a right to find out his test results as I have a 50% chance of getting it if it comes back positive?

Jordan, Teen, UK

my friend s father and grandpa and uncles have Huntington disease now my friend got tested and was negative at 27 years old now can his kids get Huntington disease I’m asking because his son is having racing heart problems and also could his dad get Huntington after being tested negative at 27

Eric, Young Adult, USA

Can you tell if you Huntington’s disease?

Kirsten, Teen

How old do people with Huntingtons disease live? Do they die from the disease eventually? How common is Huntingtons disease?

Kirsty, Teen, UK

What percentage of people tested fall into the ‘gray area?'  either with reduced penetrance or intermediate?  Is it very common?  Thank you?

Sarah, Young adult

Hello. My husbands father has HD, and my husband does not want to be tested. He is now approaching the age of 40 and have no visible symptoms. However, I think he is showing some paranoia or at least extremely careful behavior concerning electronic devices and fear of being watched somehow….

Anonymous, Young Adult

My friend (30) recently found out that he carries the mutated gene, so I have been trying to do some research about potential treatment possibilities and how the future looks.. Do gene silencing treatments look promising (as of 2016)?…

Preben, Young Adult, Denmark

Hello, I was wondering if neither of my parents nor grand parents had Huntington’s disease is it possible for me to have it?

Rodney, Young Adult, USA

My grandma had HD. My mom has not been tested but is not showing any symptoms. Can I get HD at my age or when I am older even if my mom doesn’t?

Beth, Teen, Canada

My grandma had hd and was bed ridden and passed at 50 i believe.she had 4 kids my dad (56)bed ridden and my aunt (40) deceased got hd my aunt had 2kids one has hd one doesnt ….

Robert, Young Adult, USA

Hi , I’m doing a report on huntington disease & I would like to know how does a person with huntington go about being diagnosed . how did it happened.

Tierney, Teen, USA

I was wondering if you could just be a carrier of Huntington’s disease, but still show symptoms or even get the disease?

Gabi, Teen, USA

Do both parents have to be carriers of Huntington’s disease to pass it on to a future child?

Isaiah, Teen, USA

If your nan uncles aunties and mom have huntingtons does that mean that you will as well?

Anonymous, Teen

Hi I’m Elle, My mum, grandad and great auntie have huntingtons and I want to get tested. I’m fine with knowing if I’ve got it or not but the only thing is I have a really bad phobia of needles. I’m desperate to find out but the thought of having a blood test makes me feel sick. Is there anything I can do? Really need some advice.

Elle

One of my friends dad just recently died from Huntingtons disease. My friends mom was not infected but her dad obviously was. Her parents had two children, is it almost possible that her brother or my friend will 100% chance have the disease?

Shelia, Young Adult, USA

My mom has paper work that she showed a + allele for huntingtons. What does this mean?

Leanne, Young Adult, USA

Is it possible to carry the mutant gene and not to suffer from the disease?

Jose, Young Adult, Colombia

My great-aunt has Huntington’s Disease, I know each case is different but it seems like my grandmother is starting to show the same symptoms, she is showing a grand memory loss over the years, am I at risk of carrying this gene?? Thank you for having this space for questions.

Felipe, Young Adult, Brazil

My mother refuses to get tested for HD because she’s afraid. She is now in her 50’s and shes fine, by what age is it a safe age to say that she doesn’t have it?

Stacey, Young Adult, USA

Hi there i wanted to know, since HD is a autosomal dominant gene. Can one (an offspring) have it without parents having any symptoms they have HD when they are both well into their 50’s?

Michelle, Young Adult, USA

Do both parents have to be carriers of Huntington’s disease to pass it on to a future child?

Anonymous, Young Adult

Hello I have not long found out that my father has inherited hd from my grandmother, my father is now 50 and he’s repeat on the scale is 40. Once I found this out I got myself tested and it came back positive my score on the scale was 42. So does this mean I will get symptoms earlier and maybe more severe than what he has? I do not really understand the scale side of things….

Tanya, Young Adult, UK

Hi. My grandad died of HD in his 50’s. He and my grandmother had 5 children. 2 of their sons (my uncles) developed the disease in their late 20’s and died, and one of their daughters (my auntie) developed it in her 30’s and has also passed away. My mum is now 64 and symptom free. What are the chances that she is a carrier and could develop late-onset Huntington’s? And if she is a carrier and has passed on the faulty gene to me, would it also be a late-onset form of the disease, or is the CAG count random and in no way liked to the family history? Thank you in advance.

Laura, Young Adult, France

Hello! Do you know whether early or prodromal HD can manifest as similar to autism? I have the HD gene and have been diagnosed with autism and my psychiatrist thought that might be the case and is in the process of referring me to a neuro psychiatrist to try to find out. I was wondering. Thanks for your help.

Brandy, Young Adult, UK

Hi! I like a lot your page and it’s helping me a lot. Would you tell me three reasons for not to take the genetic test? Thank you very much.

Silvia, Teen, Spain

How old do you have to be to get tested for Huntingtons? And how long do you have to go to counseling before you can get tested?

Zoe, Teen, USA

Hi! I have an aunt who was diagnosed with HD a couple of years back. Neither my grandmother, my grandfather (both over 75 y/o) or my mother (55 y/o) are showing any symptoms and as far as any of us know, there haven’t been any other known cases in my family. Could my aunt still have inherited it from my grandparents, and is there still a chance I’m at risk of developing HD?

Mirjam, Young Adult, Norway

My dad starting showing hd symptoms at 50. I carry the gene does this mean I won’t get it until later in my life as well or can I show symptoms young even though his were older?

Mary, Young Adult, Australia

My grandmother died of H.D my mother was tested and did not have the gene. Can I or my daughter still have the defective gene?

Alison, Young Adult, UK

4 of my grandma’s brothers are HD affected. She is showing up to now only major depression symptoms. are high the chances my father and I will be affected by HD?

Madalica, Young Adult, Italy

One of my aunts is suffering from HD, she is the sister of my mum. My mum is already 50 years old and I wonder if I could had inherited?

Carlos, Young Adult

My grandma had hd and had 3 boys 2 of which are and were hd my father does not have hd can me or my children have hd

Carrie, Adult, USA

My dad has hd. My older sister and brother have signs of it. Me and my other older sister don’t not yet anyway. I look and act exactly like my mom. I’m very organized and have s good memory what are the odds I will have it?

Caitlin, Young Adult, USA

My auntie had HD but my father doesn’t could i have it?

John, Young Adult, UK

My father completely rejects the identification of the HD gene (for which he has been tested twice in 2 different labs) and the diagnosis of onset. For the last 6 years, every attempt we and the doctors have made to convince him has failed. I don’t think he is in denial but that he lacks insight. He genuinely believes that the doctors have withdrawn their conclusions, which is a lie. When asked “What would it take for him to believe that HD is in the family?” His reply is “Nothing”. Do you have any advice on how we can help him to stop believing a lie and see the truth? Because until he accepts it, we or the doctors cannot help him.

Tim, Young Adult, UK

What is Huntington’s disease?

Mahendra, Young Adult, Nepal

Hi, I have a question about HD transmission, my grandmother has the disease. In our family, my grandmother’s father had the disease and he had 1 son and 5 daughters, the man didn’t got the disease, but the 5 daughters had, this means that the disease passes from the father to the children that are women and from the mother to the children that are men?

Wellington, Young Adult, Brazil

How does HD affect a person?

Luke, Kid, UK

How long does a child have after being diagnosed with HD?

Anonymous

my grandmother is 81 and is at risk for HD. Her father was the first one to have. What are our chances of inheriting it?

Michael, Teen, USA

My dad was diagnosed with Huntingtons disease at 29 years old, he’s now 47 and refusing to eat or drink, he just stares into thin air and can barely talk :( it’s so heartbreaking and I’d like to know if it’s possible to get tested even though I have shown no symptoms as my dad was diagnosed young

Monica, Young Adult, N. Ireland

Hello there.. Love this site, very informative but I have friend actually who asked if I could do research for her on this diseases because he may have a chance of having it. So my question is if his (my friend’s) mother has the gene and shows signs of the disease but the father does not carry the gene will my friend have a 50-50 chance of having it or is it more or less likely that his sister carries it? Can he carry the gene but never show symptoms?

Heather, Young Adult, USA

Hi, my mother, grandmother and uncles had HD. I’m 31 years old now, I’m very healthy and active, both physically and intellectually. I would like to know if I’m still at risk for HD? I have two children, one is 5 years old and the other is 3 months old. If I don’t have the gene mutation, they will not have it either? Two years ago I did several exams, I did a brain scan, and it didn’t find any lesion. Can I be at ease with this?

Pamela, Young Adult, Brazil

Hello I have some questions regarding the diseases, because my mom has it….

Arvid, Teen, Germany

Can you inherit huntingtons disease from you uncle?

Shelby, Teen, UK

My grandmother has huntingtons and we are not sure if my mother has huntingtons because she won’t get tested. I understand that if my mother has it I have a 50% chance of having it. But if my mother doesn’t have it is there still a risk that I could still have it?

Seth, Teen, Canada

My mum has huntingtons, and I think I might have it due to a lot of clumsiness, is there a chance, what is the chance?

Haydon, Teen, UK

My grandmother had HD and died aged 75. My Dad is much older than my mother and is now 77 but has no signs of HD. Does this mean that it’s unlikely that he won’t get it and therefore I won’t either?

Sandra, Teen, UK

Is there a way to be tested for huntington’s anonymously?

Rain, Teen, UK

Hi I have recently tested gene positive I was wondering if there any feedback from the gene silencing trials trying to remain hopeful

Sheree, Young Adult, Australia

My grandad died of huntingtons disease about 4 years ago, my mother today i’m unaware if she has it but i know she hasn’t and doesn’t want to be tested but before i’ve heard her mention things before which makes me think she might have it starting, i know her sister has it and it makes me wonder if i have it and what is the average age for the disease to start really showing symptoms and is there a cure for it yet?

Holly, Young Adult, UK

My mother is 55 years old and has HD from the last 16 years, we are three siblings, I am aware that every child has a 50:50 chance of inheriting this disease but have you ever came across a family where not even one child inherited it?

Ayesha, Young Adult, Pakistan

My mom has Huntington since 15 years, she is completely bed ridden, since few days she has stopped eating anything, what should i do?

Khadija, Young Adult, Pakistan

Is it known for a 2 month old baby to have HD?

Ronda, Young Adult, USA

My grandmother has Huntingtons and we are not sure if my mom has it or not because she does not want to get tested but if she does have symptoms, in our family usually happen at around 40 or so. I am wondering is it still possible that I could have Juvenile Huntingtons

Seth, Teen, Canada

Hello, my mum has been suffering from Huntington’s chorea for six years and she’s just started to have serious sleeping problems – she gets up every 10 minutes at night to go toilet (even though she doesn’t really need to…). She takes medicines daily Haloperidol… What can we do to help her having a good sleep overnight?

Katarzyna, Young Adult, Poland

If my uncle has huntingtons disease and my mother doesn’t…can she still be a carrier and pass it on to me??

Kellie, Young Adult, USA

My grandfather had HD and my father, who is in hos mid 40’s is showing signs of it. I was conceived when my father was only 16 years old. Does his age at conception affect the possibility that I may or may not have the HD gene?

Natalia, Young Adult, USA

3 out four children of my grandparents developed Huntington disease, but neither of them had shown any symptoms. I was wondering Since Huntington is dominant allele genetic disorder, how my aunts and uncle developed it from both healthy parents?

Pelareh, Young Adult, Canada

Good morning, I actually have few questions… My mum is 65-year-old and was just diagnosed with HD… Quite late… Mum is still able to walk and take care of herself. She takes some medicines. Does a person taking some sedatives/tranquilizers haloperidol understand they are suffering from HD? Are they aware of what is happening/going on around them?…

Kinga, Young Adult, Poland

My mother in law was diagnosed 2 years ago and I’ve known her for 7 years and knew there was a problem but no one was sure. She was the kindest most generous women but she would have these raging outbursts that didn’t make sense. Is that common for huntingtons even before diagnosis?…

Jolene, Young Adult, USA

Is care free for people with Huntington’s disease?

Anonymous, Young Adult

Does Huntington’s cause the person to sleep a lot?

Carol, Young Adult, USA

My son is adopted and his grandmother and great have it can I have him tested without their consent?

Anonymous, Young Adult

Q. Also in women can you find Huntington disease?

Anonymous, Child, Spain

Q. Why do hd people wobble

Anonymous, Child

Q. My fiance’s mother had HD and passed away about 9 years ago… If he were to test positive can he pass it on to our children?

Meagan, Young Adult, USA

Q. With prenatal CVS testing - is there a CAG count of the foetus where you DON’T have to terminate (eg between 36-39 the ‘grey area’ or 27-35)?

Sonnie, Young Adult, Australia

Q. My grandfather and my father had HD; do I have more chances of developing the disease, being an only child?

Nathalila, Teen, Brazil

Q. My mother has HD and she has 36 CAG repeats. Since she got her diagnosis, 3 months ago, I started an anxiety disorder… Can I develop HD sooner or can this all be psychosomatic, caused by the anxiety that I’m feeling?

Jorge, Teen, Brazil

Q. My dad’s mum has Huntingtons disease, and that scares me a little, what are the chances I could have those genes and could get the same disease?

Erin, Teen, Australia

Q. My dad has 42 repetitions. What is the probability that the repetition increases if I have the HD gene?

Karla, Young Adult, USA

Q. My mother has HD and her genetic test shows 40 repeats. If I’ll have the condition, can I have more repeats than she has or will it be the same?

Fernanda, Young Adult, Brazil

Q. I have a 3 year old son and have just found out that his father has been diagnosed with HD. His mother passed away 2 years ago, she also had HD and one of his sisters has it also and was diagnosed some years ago. I would like to know if my son is at risk of developing HD, and if I can have him tested to see if he does carry the gene? Thank you

Stacey, Young Adult, UK

Q. My fathers mother died from huntingtons, his youngest brother, and his sister both passed from it. He is in his 60’s now no signs of it. Does that mean the disease stopped or can it skip to me his daughter or his two other sons?

Amber, Young Adult, USA

Q. What if both parents have the expanded gene for Huntington’s disease?

Patrick, Young Adult, USA

Q. I have been following the HD ‘gene silencing’ or ‘lowering’ clinical trials this year but does this represent a genuine ‘cure’ or does it, at best, represent a delay - if its the latter how many years would it delay the onset of HD?

Ashok, Young Adult, UK

Q. What are the possible financial impacts to parents?

Justine, Kid, Australia

Q. Is there a cure for this disease? Is it hereditary?

Gaston, Young Adult, Spain

Q. My grandpa had HD but my dad does not have it, am at at risk of getting HD.

Kyler, Young Adult, USA

Q. My father was diagnosed about a couple of years ago, my father is 59 and the normal age for symptoms starts around 30-40 years old. No one in his family had Huntington’s. So my question is how could he possibly be diagnosed with HD if it is a genetic disease but yet no one in his family tree ever had it or ever had signs of it?

Stephanie, Young Adult, USA

Q. How old do I need to be to get tested?

Madison, Teen, USA

Q. Hi. My grandmother on my mom’s side died of HD at 51. She had five daughters, and they are all above the age of 40. My mom is the youngest at 48. Only one of them had the disease, and she has passed away at 53 years. The rest of them haven’t been tested but never had symptoms. My mom is 48 and has never had symptoms, could I be at risk?

Darby, Teen, USA

Q. I have a question concerning if I’ll be a carrier of this disease. My grandma was the one with Huntingtons and had two daughters my mother and my aunt. Both of them don’t want to get tested for reasons understood. My mother has a 22 year old son who recently had a baby and the baby got tested for hd and came back negative. does this mean my brother got lucky. Does this mean I won’t get it at all?

Marc, Teen, USA

Q. My dads aunt died of HD. None of his other aunts or uncles got it. Neither him or his siblings got it. Could I get it?

Mike, Young Adult, USA

Q. My grandmother died from huntingtons, i am wondering could i have it or could my kids have it ? my son started getting ticks and eye blinking at about 7 he is now 17 and has many ticks and makes noises im worried he has it.

Crystal, Young Adult, USA

Q. My grandfather, aunt, uncle, father and sister all have tested positive, or show major signs of it, I’m not worried about the percentage rate, or the chances that I have it, I just would like to know, being 24, would I be able to get tested just to see if I have it, or do I have to wait till signs are present? What type of doctor should I be looking for to do the tests? Thank you

Albert, Young Adult, USA

Q. My brother has received a positive gene result that he has HD. My mom is 68 years old and my dad died when he was 56 but not from any disease. I wonder if it is possible to find out after a person’s death if he or she was a gene carrier?

Annethe, Adult, Sweden

Q. What exactly does the HTT gene do? …

Nancie, Young Adult, USA

Q. My grandma inherited HD from her mother and she recently passed from it. My grandma has 4 children, 1 of which has been tested positive but the others do not want to know. My question is since my dad won’t get tested is there anyway I can still be tested? I have a family of my own to worry about and I don’t see how it’s fair to me and my girls not to know where my life may or may not take me with this horrible disease.

Cindy, Young Adult, USA

Q. My partner’s mother has HD as she inherited from her mother. My partner has a twin brother (dizygotic). Do they still have 50% each for inheriting HD?

Mel, Young Adult, Greece

Q. My boyfriend and I just had a baby. His grandmother has HD and his dad also. My boyfriend has not been tested and we do not know if he has it. My question is, if my boyfriend doesn’t have it, is there still a possibility that our baby could have it?

Heather, Young Adult, USA

Q. Why do people with huntington’s disease get so mad so easily?

Kylee, Young Adult, USA

Q. Hi, my mother-in-law has HD, is 60, her late father too, my husband had symptoms and is in his 30’s. We decided not to have a baby for this reason. Now someone told my husband is possible kind of “modify the gene” in the embryo/fetus to have a baby without HD, but this procedure is very expensive and not so common….is it true???

BA, Young Adult, USA

Q. I’m really interested in scientific data about inheriting Huntington’s disease from mother who has 36 CAG repeats (father without the mutation). What do the researchers know exactly about CAG 36?

Ewa, Young Adult, Denmark

Q. Hi my Dad has HD, I was wandering why my grandpa got HD when his father never had HD?

Brad, Teen, Australia

Q. My son is 20, he has JHD. He is developing problems with balance and falls. Will physical therapy help with balance? Any medications that are effective with JHD and balance? Anything available to help wth Symptoms of JHD?

Laura, Adult, USA

Q. If my mom had Juvenile Huntington’s Disease, and I am now 16 and have not had any symptoms of Juvenile Huntington’s Disease, does that mean I do not carry the disease at all or can I still develop the disease at the older age?

Victor, Teen, USA

Q. Theres a mother that has HD. She has 2 children, both male. Is it possible that both of them doesnt get HD and can live with there lives? Or one of them is going to get it?

Stephy, Young Adult, Puerto Rico

Q. My father’s family have developed HD by the time they were in their thirties; however, my father died at 56 due to an accident and, until then, he never showed signs of this disease, so we believe that he didn’t inherited it. Do my brothers and I have the chance of having inherited it?

Natalia, Young Adult, Brazil

Q. If the genetic testing for Huntington’s Disease of an identical sibling is positive does it mean that the other has it as well automatically because they have the same genes? Or does the other also have a 50:50 chance?

Susanne, Young Adult, Germany

Q. My sister was diagnosed with HD, another sister is showing symptoms but has withdrawn herself from the family… The kids are now having kids of their own and our family is struggling. Have you heard of this before and is there any way around it?

Tina, Young Adult, USA

Q. Hi..my mother is HD. I am also diagnosed. I know I have got this from my mother. My worry is that will my children also have the HD. I am planning to start my family in couple of years. Thank you

Aryan, young adult, India

Q. I have a 10 year old nephew that has HD, he is in the Hospital, intubated, he is feeling a lot of pain and the doctors are giving him medication to control de pain and the convulsions. Are there any drugs that can help him?

Viviane

Q. If my mum has the disease what are the chances of me getting it? Also….

Kieran, Teen, UK

Q. Do people with HD die of the disease or of natural causes?

Andrew, Teen, USA

Q. Is there any treatment that can reverse this slow process or, at least, that can improve the symptoms?

Brenda, 15, Brazil

Q. What is the youngest age recorded, of someone having symptoms for Huntingtons Disease?

Tyler, Teen, UK

Q. My grandma had HD and I’m not sure when she got symptoms but probably around her 60s… Is it realistic to think that, if I have the disease, it will be similar in terms of age of onset and severity as my family?

Michelle, young adult, USA

Q. My grandma passed away from HD and my dad, aunt and uncle all have it. What are my chances?

Cori, Young Adult, USA

Q. How do people get HD if none of their ancestors had or have it?

Maddie, 11, USA

Q. What chromosome is mutated to have huntintons disorder?

Jabba, teen

Q. Father inherited HD from his mother. Therefore, will everyone of his female offspring inherit the HD gene due to the ‘X’ chromosome contributed by the father, making probability 100% vs. 50%?

MJ, Young Adult, USA

Q. What do they do for cognitive testing they said my appointment was going to be about 4 hours im nervous but really want to know of i inherited the gene from my father.

Alex, Young Adult, USA

Q. I would like to know how is made the physical test that is done in the clinic to know if you have HD?

Patricia, young adult, Brazil

Q. My great grandmother died of a severe neurological disease in the 1940s. She would have been around 50 at the time of her death. My grandfather never spoke much about his mother or what illness she had except to say that he had to provide for the two of them while in school. Medical records have been long since destroyed and he died fairly young of cancer, himself. My parents generation doesn’t show any signs of HD…

Is it worth being tested to rule out HD, or is it too unlikely to be the cause of my problems?

Jake, Young Adult, USA

Q. I live in California.. I would like to know who does testing on a young child of the age of 12 months. We are adopting my little niece but we just found out that her maternal mother had huntington’s disease. So we like to do the genetic testing just to plan the future.

Anabell, US, Young Adult

Q. Does having a low-Huntington gene count decrease the likelihood a child will develop HD?

Laura, Young Adult, USA

Q. My mother died at 51 with HD. My grandfather also had the disease, and my uncle has it too. I’m 29, I’ve married 6 months ago. I’ve never thought about doing the test and I intend to get pregnant through artificial insemination. However, lately, I’ve been thinking about this everyday. One of my relatives has done a surgery and had a pacemaker implanted to control the involuntary movements. I’ve never read anything about that. What do you know about this surgery? And I would also like to make myself available to help in some way.

Natalia, Young Adult, Brazil

Q. My Dad has HD, i was just wandering is it likely for me to get the disease now?

Peter, 14, Australia

Q. So my partner has a 50/50 chance of having hd.. his dad and auntie have tested positive for it. however he is against having the test yet wants to start a family in the next couple of years. I dont want to start a family knowing there may be a chance my child might obtain the disease. Is there any way of making sure the child doesn’t have the gene like gentic testing or ivf? if there was we would still end up finding out if he has it

Katie, young adult, UK

Q. If my uncles got HD at the age of 25-30 and my dad is 50 years old and didn’t have any symptoms so far - does it mean that he don’t have the gene at all?

Eliel, 25, Israel

Q. I’m a dizygotic twin, I’m 27, and my brother has Huntington’s Disease (it started around the age of 18). In this situation, am I still at a 50% risk condition of having the gene or, because I’m a dizygotic twin, I have a lower or even null risk of HD?

Bruno, Young Adult, Brazil

Q. My grandfather had Huntington’s..I’ve also had 2 aunts pass away with with.. now have 3 cousins diagnosed with HD. My dad hasn’t been tested and as far as I can tell doesn’t show signs. What are my chances of having HD?

Lisa, young adult, USA

Q. Will my CAG repeat change or stay the same?

Jessica, Young Adult, USA

Q. If my father has HD but I have not developed JHD does that mean that the chances of me developing HD falls slightly? If so, what percentage? Thank you

Ashok, Young Adult, UK

Q. Is it possible to perform PGD in Italy? Which the requirements and eventual facilities?

MG, 26, Italy

Q. I used to be able to retain a lot. Now as I’m growing into adulthood I’m noticing that those abilities are decreasing dramatically. Should I get tested for Huntington’s?

Brian, young adult, USA

Q. If your grandmother had huntingtons disease, should you be immedialty tested after, no matter how old you are

Julia

Q. What does it feel like to have HD (Huntington’s Disease)?

Catie, 15, USA

Q. I don’t have a family history of HD, but I have been noticing some symptoms that seem to be consistent with early HD.

Drew, 18, USA

Q. If I tend to drop things easily or forget about something, is it the symptoms for the disease? And how to confirm that I have this disease?

Najah, 18, Malaysia

Q. Hello, I am a carer for my Mother who suffers with HD and she is very reluctant to leave home. I am worried that if I don’t keep her mind active at home she will get very bored and give up. Can you help me with ideas at all? We live in a ground floor flat. Thanks

Amy-Jo, Young Adult, UK

Q. My mother, grandmother, and 3 uncles have died from HD. My brother is 36 and has been having the symptoms for the last 5-6 years. I am 22 and I’ve known about HD for a long time since I was about 5 or 6. In the last 2-3 years my memory has gotten pretty bad as well as behavioral.

Could I be suffering from just the mental part and the chorea and other symptoms come later or is what going on with me normal? I dont feel normal like I used to

Cici, Young Adult, US

Q. I’m writing a paper for school and haven’t found this answer; How do you test for HD? I originally thought it was a blood test but need to know for sure.

Thanks, Darci

Q. what does huntingtons disease really do to your body, how is it caused, how is it cured.

Ashley, 18, USA

Q. If a women is pregnant and has the potential to have HD disease, can you test the baby while it still being in whom to see if it has HD disease?

Emily, 18, Canada

Q. If my mom wasn’t diagnosed with Huntington’s until she was 30 when should I get tested if I’m not showing any signs of the disease right now? And if the test comes back negative when should I go and get tested again?

Katelyne, 21, USA

Q. How many people are affected?

Madison, 14, USA

Q. My dad developed juvenile hd in high school at 35 years old over three years ago. Currently I am 17 and I have slurred speech, sometimes even I can’t understand what I’m saying, my family constantly asks me to repeat myself, over and over… do you think I’m showing enough signs to go see a doctor or is it just me being paranoid?

Melinda

Q. Over the past few years I’ve noticed a substantial decline in my speech and movements. I do not have access to my biological father’s medical history, but I do know that HD does not run on my mom’s side. Would it be foolish of me to want to get a genetic test for HD?

Erica, 21, USA

Q. My father has HD, I would like to know if I need to show symptoms to be able to do the test. Thank you.

Marina, 24, Brazil

Q. How do you get this condition?

Chantal, 8, Netherlands

Q. I am only 15 however I am looking to the future and thinking about testing. If you do not know if you are going to be tested, do you still get counselling to help you decide?

Oli, 15, UK

Q. I would like to know why for some HD patients it takes so long for the symptoms to appear. If the gene mutation is there since the beginning, why only when those patients get to their 40’s, symptoms start to be visible?

Victor, 19, Brazil

Q. I know that the test for Huntington’s Disease is only for over 18s but if you are pregnant at 17 and want to have the test to see if the baby would be at risk can they make an exception?

Ella, 17, England

Q. What to do when someone is getting angry for no reason and starts shouting abuse?

Kerhys, 9, UK

Q. Hi, I want to ask somethings about HD. My grandma had it and she had 3 daughters. Now my mum is suffering from HD, and she was the elder one of the 3, Has it something to do to be the elder?

Lola, Young Adult, Spain

Q. a close family friends mother passed away from hd in her forties. about a year ago my friend had chorea like symtoms. they lasted almost 6 months. he just turned 30 and the jerking movements have completely stopped. is this common for someone with hd? he refuses to get tested and insists he doesnt have hd. i would be grateful for any feedback.

Shirley, 30, USA

Q. My husband is an HD carrier, he is impotent, aggressive, nervous, doesn’t like to talk, after the diagnosis he is getting worse, are these symptoms normal, he is being treated in Sarah Hospital since 2013.

Regi, young adult, Brazil

Q. I would like to know if the HD that starts in adolescence is more aggressive/severe. I have a 21 year old daughter that started the disease at 15 years old. When I compare her with other family members I think her case is much more aggressive/severe.

Sandra, 37, Brazil

Q. My mother is 48 and over the past couple years we have noticed her movements and speech seem to be off. Can the symptoms develop at any time, even if it tends to show up much earlier in our family?

Bailey, 23, USA

Q. My mum is 60 now without any symptom of the disease. Can she suffer from HD? Or, Can she carry the gen and pass it on to me or to my brother?

Clara, 24, Spain

Q. Is there a cure for Huntington’s disease?

Danielle, 17

Q. Hi, i am nearly 17 and i am at risk of huntingtons disease. I am finding it very hard to make the decision. I feel so tempted to have the test as soon as i am 18 but i just don’t know what to do !

Katie, 17, UK

Q. How could the gard protein be inevitable in taking down hd and would it have any side effects ? also could the protein make hd worse?

Keir, Teen, Scotland

Q. Hello!

My dad has got the HD Gene. They always take two blood samples. The counts of the mutant gene were the same in both cases. But for the normal gene there was a difference of 3 repeats. How can that be? Can the count of the mutant gene also be insecure?

Thanks

Efa, 18, Germany

Q. My grandpa has HD he is always ragging on my grandma for some odd reason, this includes yelling and just breaking down in a tantrum, my grandma always gets down on this should I say anything to my grandpa about what he is doing to my grandma this has been going on for a long time but never get the courage to stand up for her, what should I do?

Kellie, 13, USA

Q. My mother had Huntington disease and she showed symptoms at her age 45. Gradually it became worst. She got paralysis at the age of 54 and after two years she died because of the disease. She suffered lot from this illness. She ate little food and she got huge weight loss. We lived in Sri Lanka and in this country this disease concerned as a rare sickness and did not give proper attention to these patients … I want to know if i diagnose this disease at this age whether it can be help to get rid from this illness. Please help me to make my mind….

Dul Shani, 21, Sri Lanka

Q. Good night, this year, in July, my mother, who is 45, exhibited severe seizures, being hospitalized several times. The diagnosis was HD, which was confirmed with a genetic test. I’m the oldest daughter and I would like to receive information about eating/diet and what kind of exercise I can help her to do…

Etienne, 22, Brazil

Q. My husband (42 years) has Huntington’s disease. Since March he is unable to work. We have 2 sons (10 and 12 years). By chance I filmed my younger son during our holiday while running at the beach. He makes clear choreatic movements with hands and arms… What shall I do?

Gaby, young adult, Germany

How does HD affect an individual’s school life?

Latifa, teen, UK

My husband is 30 years old and has a history of HD in his family. How can I look at this behaviour, meaning, is it possible that he is starting to develop symptoms?

Ana, young adult, Brazil

If a cure is found for HD, is it possible that people currently suffering will get better? Or are the effects caused by HD permanent?

Jodie, 26, UK

Hi. I’m looking to get tested soon. I am sure I have the disease but don’t show any ‘clinical symptoms’. I understand it is normal to feel this way. I’m just wondering if there is knowledge amongst the professional community about any very very early symptoms? Is it common for the ‘at riskers’ to suffer from ‘med students syndrome’?

Neville, young adult, Australia

My late husband had HD, I have 11 years old boy , is there anything which help these kids if they got the effected gene

Sara, 30, Pakistan

Ok I know i am not a young adult but i have questions and concerns about HD. Do you have to have a parent with HD or can it just be in the family? My husband is 36 and i don’t think he has any signs but i am concern for my nephew.

Sara, 34, US

I plan on getting tested for HD soon hopefully but at the same time I want to start a family. If I test positive I don’t want to pass it down to my children if they have the chance. Is it worth the risk?

Ashley-Marissa, young adult, US

Whom do you suggest I should approach if I’m unsure whether I have HD but I feel that I have most of the symptoms? Please guide me whether a GP would be able to help out or whether I should visit a Neurologist? Thanks.

Alison, 27, Malta

Hi there everyone I was wondering if I could get some advise on natural remedies and things I can do to stave off Huntingtons.

Francis, young adult, Australia

My sister (29) was diagnosed with HD some weeks ago? How can I learn to handle this? How shall I behave when I meet her?

Mani, 18, Germany

At how old can you get tested for this disease?

Hannah, 10, USA

My father had been admitted into full time care, but has convinced himself that Allah cured him and is constantly arguing with his carers that he should be let out. What’s the best thing I should do?

Megan, 17, Australia

How can I cope with my mom being overly obsessed with things? it has gotten worse since she has gotten sicker and I cant handle it.

Ashley, 17, England

My mother has Huntington’s Disease and I have two other siblings. I was curious if there was a possibility that all of us would not develop the trait, or if at least one of us will end up with the disease because of the 1 out of every 2.

Kellie, 18, USA

How old do we have to be to do tests to find out if we are positive or negative? And do we have to do anything prior to having the tests?

Angela, 16-17, Australia

My mom has HD and I was wondering is it normal for the movements to stop at a certain point because i noticed she doesnt move as much anymore but has kind of lost touch with reality a little bit so whats happening what does that mean?

Kort, Teen, USA

How do i cope with my dads bursts of anger?

Reuben, 14, UK

Is it normal that my mom is only 55 years old and is still eating but very little and with choking. Is it possible she will not speak at all? Is it likely this will occur soon or how long can it take?

Lorena, 24, Spain

My mother has huntingtons disease I don’t want to be tested for it but I want to become a nurse will it affect my chances of becoming a nurse?

Sophie

Is HD more common in specific genders or groups?

Mary

Are people aware that they might be at high risk of HD?

Jimmy

What makes people want to be tested for HD?

Brianna-Jennifer

What is life like for a parent whose child has Huntington’s disease? How can I find more information and get help?

Cable

How can we stop these various diseases?

Nandhini

We just moved a few months ago. Is this putting more stress on my mom with h.d more than me? 2. My mom has HD she is addicted to Facebook, will her addiction go away? 3. Are they close to finding a cure for HD? 4. What is a carer?

Munchkin

Can one hold out his tongue in the early stages of HD?

Faye

My Grandma had huntington’s disease, her first child had it, then it skipped my aunt, then her second child had it, then it skipped my dad. My dad got tested, and doesn’t have the gene. Is it possible for me to get Huntington’s disease?

Louise

My mother had huntingtons and some doctors said the disease HAD to be passed…. BUT, some said that it COULD be passed…. My question is, does it HAVE to be passed or what?

Shanda

My great-grandmother had HD and I’m thinking about having children in the future. Am I being too cautious/paranoid about it all as my risk is low? Secondly, do you think I would be allowed to adopt a baby with my partner given my at-risk status?

Amy

I have a friend whose mom has Huntington’s disease and he has a 50% that one day he will one day develop the disease as well. How can I help him stay calm?

Marilyn

I recently tested positive for HD. I was wondering if any one has any ideas about how to help with spilling things, and falling?

Britt

If I test for HD and am positive. What impact does this have on jobs/careers/mortgages/insurance etc?

Izzy

I was wanting to know how the natural birth is meant to happen?

Lara

If no one in my family has been tested can I get tested? Also would you want to be the one to tell your mother and grandfather they both DEFINITLY have Huntington’s?

Jeff

How can i help my mum who has the disease?

Ellie

Is there any chance i can get tested before the age of 18?

Sam

My dad has HD and I’m only 17 and I’m scared that I’m already developing symptoms, as I looked them up, is this possible for me to develop the symptoms of HD at my early age?

Joshua

I’ve been showing early symptoms of HD, should I get tested?

Brittany

My father suffers from HD and he always tells us to shh but then he talks away to us.

Ash

Even though you are positive for the gene, does that mean you are for sure going to develope symptoms?

Kierstan

Is it better for me to put down on forms that I may have HD, or that I do have it?

Kiran

Can being diagnosed with HD affect the kind of job you get in future?

Elli

I have multiple sclerosis and the HD gene, how do I know if the HD has started?

Antionette

Does my repeat count affect when I’ll get HD symptoms?

Nancy

What region in the is more world affected by HD than the rest of the world?

Kimberly

I am currently doing a project on Huntington’s disease for school and I had a few questions concerning the disease.

Camilla

I’m 19 years old and My mom was diagnosed with huntingtons when i was in elementary school, she is in the middle stages now, but seems to be doing well on her trial medicines and tests. I have 2 sisters and I feel like I am so hostile towards my mom all of the time. I stay in my room and almost everything she does, irritates me. I don’t like feeling this way, but i can’t help it. Does anyone else get this way?

Sarah

My mother has HD, along with one of my uncles and one of my aunts. My grandfather also had HD but he has passed on. I am unsure about having children because of this disease, and I am also unsure if i ever want to get tested, simply becuase of the emotional scars I have already undergone. So my question is this, if i were to have HD, what can i do RIGHT NOW in my life to help slow down the effects of this disease?

Maria, 21, USA

Everyone at risk of HD has a 50% chance of getting it but how do I know what my chances of getting JHD?

Alexandra

Why do people with Huntingtons not talk well?

Rebecca, 13, England

My friends don’t understand what HD is and I don’t know how to explain it best. Can you help me explain it better?

Tom, 16, Canada

My big brother has jhd will that mean I will to?

Seth, 13, America

My partner and I are thinking of starting a family, but I don’t want to have any kids at risk of HD. What are our options? Where should we go for help?

Lucy, 26, England

Is there any thing i can do to help my auntie who has Huntington’s? She’s in a care home

Emma, 11, England

My dad has just got HD will he be ok?

Ross, 10, USA

I have just found out about Huntington’s disease being in my family, my granddad has been diagnosed with it at the age of 71. My mom doesn’t know if she has it yet. Am I at risk? If so, can I get tested?

James, 21, USA

Is JHD common? I am worried that my at risk children may get JHD, their mom has recently been diagnosed with HD. She’s only 34 yrs old. Should I be worried?

David, 36, USA

Me and my two brothers are all at risk. How many of us will get HD?

Sarah, 15, America