x
<span class="translation_missing" title="translation missing: en.hdyo.land.loading">Loading</span>
X
Home Language What is HD? New to HD? Find Resources Research Ask for Help About HDYO News Videos Store Join Mailing List Kids Teens Young Adults Parents and Family JoHD Friends Professionals DONATE! Privacy Contact Us
Pexels hands togetherJOIN-HD - Juvenile onset Huntington's Disease RegistryJHDYO is proud to launch JOIN-HD, our global patient registry for JoHD patients and their caregivers. Huntington’s Disease can occur in individuals at any age of their life - young or old. When someone who is 20 or younger develops symptoms of Huntington’s Disease, they are classed as having Juvenile Onset Huntington’s Disease. You can find out more about JoHD in our basics of JHD article.What is JOIN-HD?JOIN-HD is a global registry that collects experiences from both young people who have JoHD and their caregivers. All the information people add to the registry helps us understand more...Find out more...
Enroll-HDTYPJPEnroll-HD: A study the whole family can participate in What is Enroll-HD?When it comes to HD research studies Enroll-HD is perhaps one of the most significant studies there will be. Enroll-HD, in simple terms, is an observational study, which means there are no drugs involved, it is purely a study to ‘observe’ and gain knowledge about how HD works. To do this participants are only required to attend one appointment each year which lasts about an hour. During this time a number of tests are done and then the results of which are put in to a massive confidential database to be analysed. This...Find out more...
Someone reading hdbuzz on a tabletHDBuzz Research News UpdatesTYPJP HDBuzz is a website that launched in 2011, which provides the latest Huntington’s disease research in an easy to understand language for the global Huntington’s disease community. It is written by scientists, who take complicated science jargon and convert it into easy to understand research articles. Huntington’s disease research has never been so easy to learn about, check out the latest articles below!<div id="hdbuzz_headlines"> <noscript>Javascript is required for the HDBuzz feed</noscript> <img src="https://hdbuzz.net/busy.gif" alt="HDBuzz content loading" /> <script...Find out more...

Our content is split into different groups. Choose the group that best describes your needs for more information on HD.

Kids Teens Young Adults Parents and Family JoHD Friends Professionals