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Pexels andrea piacquadio 3775150Top Tips for Friends Of Young People Impacted by HDFDoes your friend come from a family with HD? Do you want to learn how to be supportive and understanding for your friend with regards to HD? Don’t worry, we’ve got you covered! Check out these top tips for friends of young people impacted by HD.Tip #1: Understanding how brave your friend isFirst, you are probably here because your friend has recently told you that their family has HD. Without knowing much (or anything about HD) it’s easy to underestimate just how brave it is of your friend to share this information with you. HD is a serious condition and if your friend has taken the...Find out more...
What is hd brainWhat is Huntington's Disease?TYFPHuntington’s Disease (HD) is known as a ‘genetic neurodegenerative disorder’. The word genetic means that this disease is passed down from one generation to the next. Neuro relates to the brain. Degenerative means something that gradually gets worse over time. Disorder is another word for disease. So, when people describe HD, they are saying it is a disease passed down from one family member to another, which affects the brain, and gradually gets worse over time. HD is caused by an expanded gene in our DNA. Everyone has the gene that causes HD, but people that develop the condition have...Find out more...
Pexels marlon alves 3935356Being a Partner to a Young Person Impacted by HDFWhat’s it like to be a partner to a young person impacted by Huntington’s disease (HD)? What challenges do you face as a partner? How can you help your partner on their journey with the impact of HD? These are some of the questions we will aim to explore in this section. HD is a condition which can impact significantly on the whole family. A person stepping into the partner role with someone in a family affected by HD will have to be understanding and supportive. We’ll start where a relationship usually starts… at the beginning. Beginning a new relationship with a young person impacted by...Find out more...
Pexels edward jenner 4033304Being at RiskTYFBeing at risk of Huntington's disease can have a big impact on a young person's life. This section will aim to cover the worries experienced by young people with regards to being at risk, whilst providing advice and support on how to overcome these worries. But first, let's look into the science of being at risk.What does being 'at risk' mean? Being 'at risk' basically means that a person has a chance of inheriting the condition from their affected parent. This is because Huntington's disease is a genetic condition, so anyone who has a parent with Huntington's disease is at risk of...Find out more...
Pexels 5726804 microscopeGenetic TestingTYFIn 1993, scientists discovered exactly where the gene which causes Huntington's disease is located in our DNA and figured out what it was doing. Because of this people are now able to have what is called a 'predictive test'. It is known as a predictive test because the test can be taken by people at risk of Huntington's disease who currently show no symptoms and want to learn whether they will develop the condition in the future. The result of this test will usually be able to tell a person whether they have the expanded gene or not. It is important to note that if a person already has...Find out more...
Art shutter egg embryo donationHaving ChildrenYF Knowing that you are at risk of Huntington's disease may have an impact on whether you decide to have children or not. The decision to have children is a very personal choice between you and your partner. This section looks at some of the options available with regards to having children.The genetic risk to childrenThe risk of passing on Huntington's disease is usually the main concern when people at risk are thinking of having children. A lot depends on whether the person wanting children knows their gene status or not. Some people decide to test before they have children in order to find...Find out more...
Pexels gustavo fring 6284851Living in a Family with HDTYPFP The people most affected by Huntington's disease are those that have the condition (obviously). What is not quite as obvious is how the disease impacts hugely on those around the person with Huntington's disease. This section focuses on some of the issues which young people may experience when living or growing up in a family with Huntington's disease. It doesn't cover issues regarding Being At Risk (which can seem quite similar). First finding out about Huntington's diseaseHuntington's disease comes into people's lives at many different ages. Some people may find out about Huntington's...Find out more...
Pexels ketut subiyanto 4670603RelationshipsTYFRelationships can play an important role in coping with Huntington’s disease. Having the support of a partner or close friends can be very helpful, often providing a much needed shoulder to lean on. Sometimes getting involved and progressing in relationships can be a difficult process for those in a family affected by Huntington’s disease. WorryYoung people with Huntington’s disease in the family may have a lot of worries about forming relationships, especially with a potential partner. They may worry about if they will develop the illness, about having children or getting married. People...Find out more...
Pexels cat writeHow Does HD Affect People?TYFIf you have read the 'What is Huntington's disease?' section, you will know that the symptoms experienced by people with Huntington's disease can be divided into three main types: involuntary movements, cognitive problems and behavioural symptoms. This section will look into what type of symptoms fall under these three categories and how they affect a person with Huntington's disease.Before we start it is really important to realise that a person with Huntington's disease may not develop ALL the symptoms mentioned in this section. Most people only get some, and each individual experiences...Find out more...

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