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Contacting HDYO

August 4, 2021

Huntington's Disease Youth Organization

HDYO has more information about HD available for young people, parents and professionals on our site:


Contacting HDYO

General contact

For all general inquiries or questions contact info@hdyo.org


If you would like to talk to someone with someone at HDYO for support or advice then you can contact us at the following email address: support@hdyo.org Feel free to send an email, any discussion with HDYO is confidential.

What does confidential mean?

Confidentiality means not telling anyone else about what you’ve said. It means that you can feel safe talking to us about something that is happening to you, or how you feel about something, knowing that no one else will find out.

Is HDYO Confidential?

We always want to keep emails to HDYO confidential, but if we are very worried about your safety or the safety of others, we will talk to you about whether other people need to know.


If you would like to give feedback on our content, the site, or our organisation in general, please email us at feedback@hdyo.org.


Matt Ellison (founder) – Project Coordinator: matt@hdyo.org

Hayley Hubberstey - Chairperson: hayley@hdyo.org

Jenna Heilman - Executive Director - jenna@hdyo.org

Jenna Shea - Project Coordinator North America (mentor project) - jen@hdyo.org

Rebecca Mason - JOIN-HD Study Coordinator - rebecca@hdyo.org

Postal addresses


PO Box 530276
Livonia, MI 48153


PO Box 6622
CV12 2DD