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Global research studies

Talking to parentsTYPFDear Parents and Guardians,My name is Dr. Bonnie Hennig-Trestman. I am a clinical researcher, therapist, and Board of Director member with the Huntington’s Disease Youth Organization (HDYO). I have been chosen by the Huntington’s Study Group (HSG) to determine when and how families talk to their kids about Huntington’s Disease (HD). I also plan to ask parents or guardians what resources they feel would be helpful to them when they discuss HD with their children. This information is important because the results of this study are ultimately intended to provide parents and guardians with the...Find out more...