General HD Websites

HOPES - A great site from a group of students at Stanford University, America. This site is full of information about Huntington’s disease, and some cool stuff for kids too. TeensYoung adultsParentsJHDProfessionals
HDLF - A site with lots of information on medical and research aspects of Huntington’s disease, along with a forum to ask questions. TeensYoung adultsParentsJHDProfessionals
HD free with PGD - A nice site set up by a young woman to provide advice, information and support to those looking/going through PGD. TeensYoung adultsParentsJHDProfessionals
Predictive testing for HD - A website with lots of information specifically on predictive testing for Huntington’s disease. TeensYoung adultsParentsJHDProfessionals
Independent Swedish HD Site - Information in Swedish about HD TeensYoung adultsParentsJHDProfessionals

HD Associations & Organisations

EHDN - The Euro-HD Network website, with lots of information about research studies and study sites throughout Europe. TeensYoung adultsParentsJHDProfessionals
IHA - The International Huntington’s Association’s website. A worldwide organisation that provides support to Huntington’s Disease Associations. TeensYoung adultsParentsJHDProfessionals
CHDI - The Cure Huntington’s Disease Initiative website. The CHDI organisation puts in huge amounts of funds annually to support the search for treatments and a cure for Huntington’s disease. TeensYoung adultsParentsJHDProfessionals
HD Foundation - The Huntington’s Disease Foundation have been supporting Huntington’s disease research for many, many years. TeensYoung adultsParentsJHDProfessionals

HDBuzz - A website for people from families affected by Huntington’s disease to learn about the latest research in an easy, understandable manner. TeensYoung adultsParentsJHDProfessionals
Predict-HD - The official Predict-HD website, for those interested in getting involved with the research study. TeensYoung adultsParentsJHDProfessionals
Enroll-HD - The official website for Enroll HD, a worldwide research study that almost everybody from a family affected by Huntington’s disease can join and participate in. TeensYoung adultsParentsJHDProfessionals
HD Science Blog - Nacho is a neuroscientist working to find for Huntington's disease. He blogs regularly about therapies and developments in HD research. TeensYoung adultsParentsJHDProfessionals
Huntington's Study Group - HSG: The Huntington's Study Group is a global research group for HD made up of professionals and clinics around the world who conduct studies and trials for HD TeensYoung adultsParentsJHDProfessionals

YPAHD - The Huntington’s Society of Canada’s official youth group, where Canadian youth can join up and receive support. KidsTeensYoung adultsParentsJHDProfessionals
Our HD space - A wonderful website created by a young person in Australia to provide support to youth in Australia. KidsTeensYoung adultsParentsJHDProfessionals
NYA - The Huntington’s Disease Society of America’s official youth group, where American youth can join up and receive support. KidsTeensYoung adultsParentsJHDProfessionals
Scottish HD Youth - The Scottish HDA’s youth website KidsTeensYoung adultsParentsJHDProfessionals
The Peter Earl Association - New charity from NSW, Australia, set-up to support young people impacted by HD KidsTeensYoung adultsParentsJHDProfessionals

HDSA JHD guide - Huntington’s Disease Society of America Guide to JHD JHDProfessionals
HSC JHD guide - Huntington’s Society of Canada Guide on JHD JHDProfessionals
JHD Families - JHD Families site in the UK (including forum) JHDProfessionals
JHD Kids - JHD Kids Site JHDProfessionals
HDAC JHD guide - Huntington’s Disease Advocacy Centre pages on Juvenile HD JHDProfessionals
Hopes JHD guide - Hopes pages from Stanford University on Juvenile HD JHDProfessionals
EHDN JHD working group - European Huntington’s Disease Network working group on Juvenile HD JHDProfessionals
JHD book - Juvenile Huntington's Disease: and Other Trinucleotide Repeat Disorders JHDProfessionals