Sitemap
Articles
- HDYO Land KidsTeensParentsProfessionals
- Coloring Pages Kids
- Ask a question KidsTeensYoung adultsJHDFriends
- Top tips for friends of young people impacted by HD Friends
- Being a partner to a young person impacted by HD Friends
- What is HD? TeensYoung adultsFriendsProfessionals
- HDYO Heroes KidsTeensYoung adultsJHDFriends
- How does HD affect people? TeensYoung adultsFriends
- The HD Gene: Under the microscope TeensYoung adults
- Genetic Testing TeensYoung adultsFriendsProfessionals
- Having children Young adultsFriendsProfessionals
- The Basics of JHD JHDProfessionals
- Living in a family with JHD JHDProfessionals
- Living in a family with HD TeensYoung adultsParentsFriendsProfessionals
- Being at risk TeensYoung adultsFriendsProfessionals
- Being a young carer TeensYoung adultsFriendsProfessionals
- Talking about HD with family and friends TeensYoung adults
- Relationships TeensYoung adultsFriendsProfessionals
- Top tips for helping a person with HD Young adults
- Visiting a care home TeensYoung adultsProfessionals
- Top tips for helping a person with HD - for teens Teens
- Top tips for helping a person with HD - for kids Kids
- What does it feel like to have HD? TeensYoung adults
- Dealing with a Diagnosis Young adults
- Coping TeensYoung adults
- Talking about JHD with children and young people ParentsJHD
- Genetic Testing Checklist TeensYoung adults
- What you can do for someone with HD KidsTeens
- Resources for JHD JHDProfessionals
- Young peoples' experiences of finding out about HD TeensYoung adultsParents
- HDYO's Top Tips: Talking to children about HD ParentsProfessionals
- Feeling embarrassed TeensYoung adultsProfessionals
- The Difficulty in Diagnosing Juvenile HD JHD
- Emotional Wellbeing TeensYoung adults
- Loss & Bereavement TeensYoung adults
- Know Your Rights TeensYoung adults
- The Invisible Siblings JHD
- Talking to kids about HD ParentsProfessionals
- History of HD TeensYoung adults
- Conversation starters ParentsProfessionals
- Parents' experiences of talking to kids about HD Parents
- Potential outcomes of not discussing HD ParentsProfessionals
- Sheenam’s Wish (currently UK only) JHD
- Visiting a care home: Things you can do to help Kids
- Creative Expression KidsTeens
About Us
- About HDYO KidsTeensYoung adultsParentsJHDProfessionals
- HDYO Staff Team Everyone
- Translator Team KidsTeensYoung adultsParentsJHDProfessionals
- HDYO Board KidsTeensYoung adultsParentsJHDProfessionals
- Contacting HDYO KidsTeensYoung adultsParentsJHDProfessionals
- Feedback Team KidsTeensYoung adultsParentsJHDProfessionals
- HDYO International Representatives KidsTeensYoung adultsParentsJHDProfessionals
- Sharing, Licensing and Reusing HDYO Content KidsTeensYoung adultsParentsJHDProfessionals
- Supporters KidsTeensYoung adultsParentsJHDProfessionals
- Terms of Use KidsTeensYoung adultsParentsJHDProfessionals
- Privacy policy KidsTeensYoung adultsParentsJHDProfessionals
- HDYO Definitions KidsTeensYoung adultsParentsJHDProfessionals
- Forum Terms of Use KidsTeensYoung adultsParentsJHDProfessionals
- HDYO Strategic Plan KidsTeensYoung adultsParentsJHDProfessionals
- HDYO 2012 Annual Report KidsTeensYoung adultsParentsJHDProfessionals
- HDYO 2013 Annual Report KidsTeensYoung adultsParentsJHDProfessionals
- HDYO 2014 Annual Report KidsTeensYoung adultsParentsJHDProfessionals
- HDYO 2015 Annual Report Everyone
- HDYO 2016 Annual Report Everyone
- HDYO Annual Report 2017 Everyone
- HDYO Annual Report 2018 Everyone
- Donate to the Huntington’s Disease Youth Organization Friends
- Fundraise for HDYO
- Statistics KidsTeensYoung adultsParentsJHDProfessionals
News
- HDYO News KidsTeensYoung adultsParentsJHDProfessionals
- HDYO Intl Young Adult Congress – Registration now open Everyone
- Scholarships for HDYO Intl Young Adult Congress Everyone
- HDYO Inaugural Young Adult Congress in May 2020 announced Everyone
- HDYO Facebook Group Everyone
- HDYO Happenings - Fall 2017 Everyone
- University of Leicester HD well-being survey Everyone
- HDYO Happenings - Spring 2017 Everyone
- Huntington's Disease Youth Organization hires Executive Director Everyone
- HDYO Celebrates 5 Years! Everyone
- HDYO Recruiting new staff person Everyone
- HDYO Hot-Seat with Filipa Everyone
- North American HD Youth Camp 2017 Applications Now Open! Everyone
- Selena's North American Camp 2016 Journey Everyone
- Leah and Anna's North American Camp 2016 Experience Everyone
- Ashley's Euro Camp Experience Everyone
- A new member of the HD family! Everyone
- Australia and New Zealand HD Youth Camp 2017! Everyone
- Living at risk of HD - Research study for young people Everyone
- Survey on how young adults affected by or at risk for Huntington’s disease are thinking about future options Everyone
- HDYO Hot Seat – Judit Everyone
- European HD Youth Camp 2016 Applications Open Everyone
- North American HD Youth Camp Applications Now Open! Everyone
- HDYO Hot Seat with Lucres Everyone
- HDYO Land Launches! Everyone
- Twitch Documentary available Everyone
- BJ reviews new HD book recently launched – Rules for 50/50 chances Everyone
- Western Australia’s HD Youth Service Everyone
- 3 Reasons why Enroll-HD is the most powerful longitudinal study ever Everyone
- My Experience at the HD Youth Camp! KidsTeensYoung adultsParentsJHDProfessionals
- HDYO Hot-Seat with Johan KidsTeensYoung adultsParentsJHDProfessionals
- HDYO Hot Seat with Marica KidsTeensYoung adultsParentsJHDProfessionals
- Mikayla’s story – David vs Goliath KidsTeensYoung adultsParentsJHDProfessionals
- Boston’s busy bee KidsTeensYoung adultsParentsJHDProfessionals
- Mid-2015 Update from HDYO KidsTeensYoung adultsParentsJHDProfessionals
- Lighting It Up for HD #LightItUp4HD KidsTeensYoung adultsParentsJHDProfessionals
- HDYO Hot Seat – Ally KidsTeensYoung adultsParentsJHDProfessionals
- EHA conference 2015 – Warsaw, Poland KidsTeensYoung adultsParentsJHDProfessionals
- Destiny’s Enroll-HD visit KidsTeensYoung adultsParentsJHDProfessionals
- HDYO Hot seat with Clara KidsTeensYoung adultsParentsJHDProfessionals
- Keep the Doctor Away; 5 Clinical Trials Bringing HD Therapies to Us Today KidsTeensYoung adultsParentsJHDProfessionals
- Megan Osowski: A Warrior of Her Own Kind KidsTeensYoung adultsParentsJHDProfessionals
- Chandler's Mid-Atlantic HD youth service update KidsTeensYoung adultsParentsJHDProfessionals
- Gracee’s Spectacular Journey KidsTeensYoung adultsParentsJHDProfessionals
- HDYO Hot seat with Kristen Powers KidsTeensYoung adultsParentsJHDProfessionals
- 3rd Annual German Young Adult Conference KidsTeensYoung adultsParentsJHDProfessionals
- HDYO Hot Seat with HDYO Chair BJ Viau KidsTeensYoung adultsParentsJHDProfessionals
- Matt’s Blog - Happy 3rd Birthday HDYO: A special thank you to the volunteers KidsTeensYoung adultsParentsJHDProfessionals
- Matt’s Blog - The North American HD Youth Camp KidsTeensYoung adultsParentsJHDProfessionals
- Testing for others: My experience of participating in Kids-HD study KidsTeensYoung adultsParentsJHDProfessionals
- North American HD Youth Camp KidsTeensYoung adultsParentsJHDProfessionals
- My First HDSA Convention KidsTeensYoung adultsParentsJHDProfessionals
- HDYO’s Awareness Tour in Portugal KidsTeensYoung adultsParentsJHDProfessionals
- Learning to Live: Matt Ellison's Journey KidsTeensYoung adultsParentsJHDProfessionals
- An Introduction to HDYO’s News Team KidsTeensYoung adultsParentsJHDProfessionals
- UK research: Talking to children about inherited genetic conditions KidsTeensYoung adultsParentsJHDProfessionals
- HDYO Launches in Polish – our 10th language! KidsTeensYoung adultsParentsJHDProfessionals
- Swedish Youth Conference KidsTeensYoung adultsParentsJHDProfessionals
- HD STAR KidsTeensYoung adultsParentsJHDProfessionals
- HDYO Celebrates its 2nd Birthday! KidsTeensYoung adultsParentsJHDProfessionals
- 18-35’s Young Adult Conference in England, 15-16 March, 2014 KidsTeensYoung adultsParentsJHDProfessionals
- HD Generations Project Survey – your experiences needed! KidsTeensYoung adultsParentsJHDProfessionals
- 2nd Youth Conference in Germany – register now! KidsTeensYoung adultsParentsJHDProfessionals
- HDYO recruiting a youth worker in the US KidsTeensYoung adultsParentsJHDProfessionals
- HDYO is now available in French KidsTeensYoung adultsParentsJHDProfessionals
- UK research: talking to children about inherited genetic conditions KidsTeensYoung adultsParentsJHDProfessionals
- HDYO launches in Norwegian and Italian! KidsTeensYoung adultsParentsJHDProfessionals
- European HD Youth Camp 2013 – A big success KidsTeensYoung adultsParentsJHDProfessionals
- HDYO wants your feedback! KidsTeensYoung adultsParentsJHDProfessionals
- Michelle's Poetry 4 HD Project – your HD poems wanted! KidsTeensYoung adultsParentsJHDProfessionals
- HDYO will put on its first ever European Summer camp! KidsTeensYoung adultsParentsJHDProfessionals
- Peter Earl Association to hold kids camp in NSW, Australia KidsTeensYoung adultsParentsJHDProfessionals
- Can you help? We’re recruiting more translators and volunteers KidsTeensYoung adultsParentsJHDProfessionals
- Erika highlights the Enroll-HD study: A worldwide research study we can all participate in KidsTeensYoung adultsParentsJHDProfessionals
- HDYO Receives official support from the Swiss HDA KidsTeensYoung adultsParentsJHDProfessionals
- HDYO Receives official support from the Belgium HDA KidsTeensYoung adultsParentsJHDProfessionals
- HDYO Receives official support from the Dutch HDA KidsTeensYoung adultsParentsJHDProfessionals
- HDYO recruits its first staff member! KidsTeensYoung adultsParentsJHDProfessionals
- HDYO Receives official support from Swedish HDA KidsTeensYoung adultsParentsJHDProfessionals
- HDYO Receives official support from Huntington's Western Australia KidsTeensYoung adultsParentsJHDProfessionals
- Young Adults Education Day, April 27th – Wisconsin, USA KidsTeensYoung adultsParentsJHDProfessionals
- Spaces available: 18-35’s Young Adult Conference in England, 23/24 February KidsTeensYoung adultsParentsJHDProfessionals
- HDYO becomes available in Portuguese, Dutch and Italian KidsTeensYoung adultsParentsJHDProfessionals
- 1st Youth Conference in Germany – register now! KidsTeensYoung adultsParentsJHDProfessionals
- HDYO: Breaking down barriers for young people KidsTeensYoung adultsParentsJHDProfessionals
- Are you trying to decide whether to be tested for the HD gene? KidsTeensYoung adultsParentsJHDProfessionals
- The Irish HD Association offers their official support to HDYO KidsTeensYoung adultsParentsJHDProfessionals
- The Danish HD Association extends their official support to HDYO KidsTeensYoung adultsParentsJHDProfessionals
- Website update (Oct 2012) KidsTeensYoung adultsParentsJHDProfessionals
- HDYO confirms youth service partnership with HDAs in both Ireland & Northern Ireland KidsTeensYoung adultsParentsJHDProfessionals
- HDA in Northern Ireland provides official support for HDYO! KidsTeensYoung adultsParentsJHDProfessionals
- HDYO is now available in Spanish KidsTeensYoung adultsParentsJHDProfessionals
- HDYO celebrates 6 months of success! KidsTeensYoung adultsParentsJHDProfessionals
- HDYO is now available in German KidsTeensYoung adultsParentsJHDProfessionals
- HDYO: Looking for experiences to help shape our bereavement & loss section KidsTeensYoung adultsParentsJHDProfessionals
- HDYO: Looking for experiences to help shape our emotional wellbeing section KidsTeensYoung adultsParentsJHDProfessionals
- HDYO’s redesigning our fundraising section: we want your ideas! KidsTeensYoung adultsParentsJHDProfessionals
- HDYO Receives official support from the Chilean HDA KidsTeensYoung adultsParentsJHDProfessionals
- Can You Help with Research for UK HD Documentary? KidsTeensYoung adultsParentsJHDProfessionals
- UK HD Documentary project needing participants KidsTeensYoung adultsParentsJHDProfessionals
- HDYO Interview Project: Parents and children from England wanted KidsTeensYoung adultsParentsJHDProfessionals
- HDYO's Online Store Opens! KidsTeensYoung adultsParentsJHDProfessionals
- Profiles and personal messaging added to the HDYO website KidsTeensYoung adultsParentsJHDProfessionals
- Official support for HDYO arrives from Germany KidsTeensYoung adultsParentsJHDProfessionals
- Roma and Milano both confirm their official support for HDYO KidsTeensYoung adultsParentsJHDProfessionals
- The HDA confirms their official support for HDYO KidsTeensYoung adultsParentsJHDProfessionals
- Huntingtons Victoria joins the list of official supporters for HDYO KidsTeensYoung adultsParentsJHDProfessionals
- The HSC confirms their official support for HDYO KidsTeensYoung adultsParentsJHDProfessionals
- The HDSA confirms their official support for HDYO KidsTeensYoung adultsParentsJHDProfessionals
Videos
- Emma's interview KidsTeensYoung adultsParentsJHDProfessionals
- Maria's interview KidsTeensYoung adultsParentsJHDProfessionals
- Lucas's interview KidsTeensYoung adultsParentsJHDProfessionals
- Matt's interview KidsTeensYoung adultsParentsJHDProfessionals
- Educational videos KidsTeensYoung adultsParentsJHDProfessionals
- Luke's story KidsTeensYoung adultsParentsJHDProfessionals
- Jenny's Huntington's Story KidsTeensYoung adultsParentsJHDProfessionals
- Rhona Macleod - Genetic Counselling KidsTeensYoung adultsParentsJHDProfessionals
- Marianna & Ewa - Testing KidsTeensYoung adultsParentsJHDProfessionals
- Michelle - Testing KidsTeensYoung adultsParentsJHDProfessionals
- Tony - Having children KidsTeensYoung adultsParentsJHDProfessionals
- Marthe - Emotional wellbeing KidsTeensYoung adultsParentsJHDProfessionals
- Wayne - Testing KidsTeensYoung adultsParentsJHDProfessionals
- Marina - Bereavement KidsTeensYoung adultsParentsJHDProfessionals
- Jeff KidsTeensYoung adultsParentsJHDProfessionals
- Sherry KidsTeensYoung adultsParentsJHDProfessionals
- BJ KidsTeensYoung adultsParentsJHDProfessionals
- Katie KidsTeensYoung adultsParentsJHDProfessionals
- Nancy Wexler revisits Venezuela KidsTeensYoung adultsParentsJHDProfessionals
- The Octopus KidsTeensYoung adultsParentsJHDProfessionals
- Mandy's testing experience KidsTeensYoung adultsParentsJHDProfessionals
- Out in the Open KidsTeensYoung adultsParentsJHDProfessionals
- Do You Know Your Rights? KidsTeensYoung adultsParentsJHDProfessionals
- The Impact of Huntington's Disease on Young People KidsTeensYoung adultsParentsJHDProfessionals
- HDYO's Tour of the HD Lab - Lund, Sweden KidsTeensYoung adultsParentsJHDProfessionals
- What is Huntington's Disease? KidsTeensYoung adultsParentsJHDProfessionals
- HDYO's Tour of the HD Lab - Lund, Sweden (Extended Version) KidsTeensYoung adultsParentsJHDProfessionals
- CHDI Conference Research Update 2018 KidsTeensYoung adultsParentsJHDProfessionals
- HDYO Webinar - Talking to Kids About HD Everyone
- HD Research Update 2016 KidsTeensYoung adultsParentsJHDProfessionals
- Matt's experience of predictive testing for HD KidsTeensYoung adultsParentsJHDProfessionals
- Euro HD Youth Camp 2016 Everyone
- North America HD Youth Camp 2016 Everyone
- Young Couples Everyone
- Talking about HD as a family KidsTeensYoung adultsParentsJHDProfessionals
- Felicity & David KidsTeensYoung adultsParentsJHDProfessionals
- Forrester family KidsTeensYoung adultsParentsJHDProfessionals
- Lewis family KidsTeensYoung adultsParentsJHDProfessionals
- Sowerby family KidsTeensYoung adultsParentsJHDProfessionals
- Walters family KidsTeensYoung adultsParentsJHDProfessionals
- HDYO Trailer KidsTeensYoung adultsParentsJHDProfessionals
- Marcy McDonald KidsTeensYoung adultsParentsJHDProfessionals
- Matt Ellison on HDYO KidsTeensYoung adultsParentsJHDProfessionals
- US Youth Worker Program KidsTeensYoung adultsParentsJHDProfessionals
- HDYO: What We Do KidsTeensYoung adultsParentsJHDProfessionals
- 2013 HD European Youth Camp KidsTeensYoung adultsParentsJHDProfessionals
- N. American HD Youth Camp 2015 KidsTeensYoung adultsParentsJHDProfessionals
- HDYO International Representatives Project KidsTeensYoung adultsParentsJHDProfessionals
- Need Someone - Sian Lewis KidsTeensYoung adultsParentsJHDProfessionals
- Challenges when diagnosing JHD Everyone
- Aus and NZ HD Youth Camp 2017 Everyone
- Living with Juvenile Huntington's Disease Everyone
- Post-Genetic Testing Everyone
- HDYO Webinar Series - Genetic Counselling with Bill Beckett Everyone
- The Genetics of Huntington's Disease Everyone
- What do young people think of HDYO? Everyone
Books
- Hurry up and Wait KidsTeensYoung adultsJHDProfessionals
- Huntington's and Me TeensYoung adultsJHDProfessionals
- When Given Lemons TeensYoung adultsJHDProfessionals
- The Woman Who Walked into the Sea TeensYoung adultsJHDProfessionals
- Mapping Fate: A Memoir of Family, Risk and Genetic Research TeensYoung adultsJHDProfessionals
- Talking with Kids about HD Young adultsParentsProfessionals
- Gene Hunter Nancy Wexler TeensYoung adultsJHDProfessionals
- Walking the Tightrope: Living at Risk for HD TeensYoung adultsJHDProfessionals
- Learning to Live with HD TeensYoung adultsJHDProfessionals
- It's a Bird TeensYoung adultsJHDProfessionals
- Talking to kids about Huntington's Disease ParentsProfessionals
- Someone Else's Life TeensYoung adultsJHDProfessionals
HD Research
- Enroll-HD TeensYoung adultsParentsJHDProfessionals
- Living at risk of HD – Research Study TeensYoung adultsJHD
- Predict-HD TeensYoung adultsParentsJHDProfessionals
- HDBuzz Research News TeensYoung adultsParentsJHDProfessionals
- Nacho's blog TeensYoung adultsParentsJHDProfessionals
- Kids-HD Study (US only) KidsTeensYoung adultsJHD
- HD-YAS Study (UK only) TeensYoung adultsJHD
- Talking to parents TeensYoung adultsParentsFriends
HDBuzz
- HDBuzz Research Updates TeensYoung adultsParentsJHDProfessionals
- HDBuzz Interview TeensYoung adultsParentsJHDProfessionals
- HDBuzz
Predict-HD
- Predict-HD study TeensYoung adultsParentsJHDProfessionals
- Inside PREDICT-HD: The view of a young person TeensYoung adultsParentsJHDProfessionals
Events
- North American HD Youth Camp 2019 TeensYoung adults
- North American HD Youth Camp 2018 Young adults
- Australia and New Zealand HD Youth Camp 2018 TeensYoung adults
- Australia and New Zealand HD Youth Camp 2017 Young adults
- North American HD Youth Camp 2017 Young adults
- European HD Youth Camp 2016 Young adults
- North American HD Youth Camp 2016 Young adults
- HDA's Juvenile HD Weekend 2011 ParentsJHDProfessionals
- HDA England & Wales kids camps 2011 KidsTeensParentsProfessionals
Fundraising
- Fundraising stories KidsTeensYoung adultsParentsJHD
- The importance of fundraising KidsTeensYoung adultsParentsJHD
- What Gives Your Hope for HD? KidsTeensYoung adultsParentsJHD
Ask a Question
- Ask a question for kids Kids
- Ask a question for young adults Young adults
- Ask a question for Friends and Partners Friends
- Ask a question for teens Teens
- Ask a question about JHD JHD
- Is it possible I was tested for HD in the womb? Young adults
- My friends don't understand the impact of HD Kids
- Did I get tested as a baby? Teens
- I'm not sure if I should get tested Teens
- My mum has 43 repeats - what to expect Teens
- How common is HD in China? Teens
- Me and my sister might have HD. How close is a cure? Teens
- How many people does HD affect in the world? Teens
- Do people with HD know what's happening? Teens
- When can I be tested? How long does it take? Teens
- If my aunts and uncle had HD could I have it? Young adults
- Why does it effect people so much? Kids
- How do I stop worrying about JHD? Teens
- If my mother had HD but I don't can my baby get it? Young adults
- I'm an identical twin and my brother won't get tested Young adults
- Why don’t people know about HD? Kids
- My family seems to develop HD later, if I test positive will I? Young adults
- How predictive is age of onset from previous generations? Young adults
- My dad has 27 CAG repeats, what are my chances? Young adults
- Possible postive and negatives of getting tested? Young adults
- Are people in pain when they have HD? Kids
- Can kids be tested? Young adults
- Will I get earlier onset than my dad? Young adults
- Do I need counseling to get tested at 18? Teens
- Will my brother get symptoms at the same age as my parents? Young adults
- Can you be a carrier without any symptoms? Young adults
- I have HD and am pregnant, will the baby get it? Young adults
- My mom got HD without anyone in her family having it Young adults
- Mum's CAG repeat is 30 - how are her children affected? Young adults
- Do I have a right to see my dad's test result? Teens
- Can my friend have HD if he tested negative at 27? Friends
- Can you tell if you Huntington’s disease? Teens
- How old do people with HD live to? Teens
- What percentage of people fall into the gray area? Young adults
- Can paranoia be the first symptom of HD? Young adults
- Do gene silencing treatments look promising? Young adults
- If neither of my parents have HD can I get it? Young adults
- My mom isn't showing symptoms, can I get HD? Teens
- My grandma and dad had HD, do I? Young adults
- How do you go about being diagnosed? Teens
- Can you be just a carrier? Teens
- Do both parents have to have HD? Teens
- If lots of people in your family have HD do you? Teens
- I'm fine to know but have a phobia of needles Teens
- Is it almost 100% that my friend or her brother will have HD? Young adults
- What does a positive allele for HD mean? Young adults
- Can you have the mutant gene but not get HD? Young adults
- My great-aunt has HD, am I at risk? Young adults
- What age is it safe to say you don't have HD? Young adults
- Can a child have HD if their parents are over 50 without symptoms Young adults
- Do both parents have to be carriers to pass it on? Young adults
- I have 42 repeats, my dad had 40 - what does that mean? Young adults
- My grandad got HD in his 50s - could my mum and I have it? Young adults
- Can HD be similar to autism? Young adults
- Why might I not want the genetic test? Teens
- How old do you have to be to get tested? Teens
- My aunt has HD, is there I chance I do? Young adults
- My dad only got symptoms at 50, will I get them late as well? Young adults
- My mother did not have the gene, can I? Young adults
- My grandmother's brothers have HD, will I? Young adults
- My aunt has HD, could I have it? Young adults
- My grandma had HD, my father doesn't, can I? Young adults
- My dad has HD. What are the odds I will? Young adults
- My auntie had HD but my father doesn't could i have it? Young adults
- My father doesn't believe HD is in the family Young adults
- What is Huntington’s disease? Young adults
- HD passes from father to daughters in my family? Young adults
- How does HD affect a person? Kids
- How long does a child have after being diagnosed with HD? JHD
- My Grandmother is at risk. What are my chances? Teens
- Is it possible to get tested with no symptoms? Young adults
- If a mother has the gene is the son's chance 50-50? Young adults
- I'm 31, fit and healthy - am I still at risk? Young adults
- Six questions about testing, symptoms and treatment Teens
- Can you inherit HD from your uncle? Teens
- If my mother doesn't have HD could I still have it? Teens
- I have a lot of clumsiness and my mum has HD - do I have HD? Teens
- My dad is 77 - can he still get HD? Teens
- Can you get tested for HD anonymously? Teens
- Is there feedback from the gene silencing trial? Young adults
- What is the average age for symptoms to show? Is there a cure? Young adults
- Is it possible no children will inherit HD? Young adults
- My mom has stopped eating, what should I do? Young adults
- Can a 2 month old baby have HD? Young adults
- My mum does not want to test, can I have JHD? Teens
- How can we help my mum have a good sleep overnight? Young adults
- If my uncle has HD and my mother doesn't can I get it? Young adults
- Does age at conception affect passing on the gene? Young adults
- My grandparents didn't get HD but their children did Young adults
- How aware are people on sedatives? Young adults
- Are outbursts common even before diagnosis? Young adults
- Is care free for people with HD? Young adults
- Does HD cause people to sleep a lot? Young adults
- Can I have my adopted son tested for HD? Young adults
- Can you find Huntington disease in women? Kids
- Why do hd people wobble? Kids
- Should my fiance be tested even though it only seems to affect women in his family? Young adults
- Is there a grey area in prenatal CVS testing? Young adults
- As an only child do I have a higher risk of HD? Teens
- Are my symptoms anxiety or Huntington's disease? Teens
- My dad's mum has HD, what are my chances? Teens
- What is the relationship between repetitions and onset age? Young adults
- Will I have more repeats than my mother? Young adults
- My 3 year old son's father has HD, is he at risk? Young adults
- Has HD stopped in my family? Young adults
- What if both parents have the expanded gene? Young adults
- Is gene silencing aiming to be a cure for HD? Young adults
- Money and HD Kids
- Is there a cure? Is it hereditary? Young adults
- My grandpa had HD but my dad does not, am I at risk? Young adults
- My father was diagnosed but has no family history Young adults
- How old do I need to be to get tested? Teens
- My mom is 48 and has never had symptoms, am I at risk? Teens
- If my brother's baby doesn't have HD will I get it? Teens
- My dad's aunt died of HD, could I get it? Young adults
- My grandmother had HD, could my son have it? Young adults
- Do I have to wait until I get signs to test? Young adults
- Is it possible to find out if someone has the gene after they died? Young adults
- What exactly does the HTT gene do? Young adults
- Since my dad won't get tested is there any way I can? Young adults
- Do non-identical twins have 50% each chance of getting HD? Young adults
- If my boyfriend doesn't have HD could our baby? Young adults
- Why do people with huntington's disease get so mad so easily? Young adults
- Can you modify the gene to have a baby without HD? Young adults
- What do the researchers know exactly about CAG 36? Young adults
- Why did my grandpa get HD when his father didn't? Teens
- How can I help my son's balance? JHD
- My mom had JHD, I'm 16 and don't have symptoms, could I still have it? JHD
- With two children will at least one of them get HD? Young adults
- My father died at 56 without signs, could I have HD? Young adults
- Do identical twins have the same HD status? Young adults
- Can kids be tested if their mom doesn't want it Young adults
- I have HD, will my children have HD? Young adults
- Can any drugs help my nephew with JHD? JHD
- If my mum has the disease what are the chances of me getting it? Teens
- Do people with HD die of the disease or of natural causes? Teens
- Are there treatments to improve the symptoms? Teens
- What is the youngest recorded age for HD symptoms? Teens
- Family history, onset and symptoms Young adults
- My dad, aunt and uncle have HD, will I? Young adults
- How do you get HD without your ancestors having it? Kids
- What chromosome is mutated in HD? Teens
- Is HD gene on the X chromosome? Young adults
- What happens in cognitive testing? Young adults
- What is the physical test for HD? Young adults
- Could my symptoms be HD? Young adults
- Who does testing on children in California? Young adults
- Does having a low gene count decrease the chances of HD? Young adults
- What can I do to help in Brazil? Young adults
- My Dad has HD, am I likely to have it? Teens
- Can you have IVF without testing yourself for HD? Young adults
- Can 2 brothers get infected at a wide age gap? Young adults
- My non-identical twin has HD, what are my chances? Young adults
- My grandfather had HD, what are my chances of having it? Young adults
- Will my CAG repeat change? Young adults
- I haven't developed JHD, has my risk of HD fallen? Young adults
- PGD in Italy Young adults
- My memory is not as good as I was, should I test for HD? Young adults
- If your grandmother had HD should you be tested? Young adults
- What does HD feel like? Teens
- I don't have a family history, could I have HD? Teens
- Dropping things and being forgetful Teens
- How can I help keep my mum's mind active? Young adults
- Do I just have the chorea and mental symptoms? Young adults
- How do you test for HD? Teens
- How is HD caused? Teens
- Can you test a baby during pregnancy? Teens
- My mum isn't showing signs, should I get tested? Young adults
- How many people are affected? Teens
- My dad had JHD, should I see a doctor? TeensJHD
- I have symptoms, should I test for HD? Young adults
- Do I need symptoms to test? Young adults
- How do you get HD? Kids
- Counselling for testing Teens
- Symptoms take a long time for some people Teens
- I'm pregnant and 17, can I get the test? Young adults
- What do I do when someone gets angry? Kids
- Does the oldest sibling get HD? Young adults
- Does my friend with chorea have HD? Young adults
- My husband has bad symptoms Young adults
- Is HD in adolescence more severe? Young adults
- Can symptoms develop at any time? Young adults
- My mum is 60 without symptoms - does she have HD? Young adults
- Is there a cure? Teens
- Should I have the test when I turn 18? Teens
- The gard protein Teens
- How can there be a difference of 3 repeats in the test? Teens
- My grandpa yells at my grandma, what should I do? Teens
- Living in Sri Lanka and HD resources for testing Young adults
- How can I help my mother with diet and exercise? Young adults
- Should I be concerned about my 10 year old son? Young adults
- How does HD affect an individual’s school life? Teens
- Is my husband developing symptoms? Young adults
- Will a cure help people who already have symptoms? Young adults
- I'm looking to get tested soon but am sure I have the disease, is that common? Young adults
- Is there anything that can help kids with the gene? Young adults
- Do you have to have a parent with HD or can it just be in the family? Young adults
- Is it worth the risk? Young adults
- I feel I have symptoms of HD, who should I talk to? Young adults
- What kind of natural remedies can I take or things can I do to stave off HD Young adults
- How should I handle my sister being diagnosed with HD? Teens
- At how old can you get tested for this disease? Kids
- My father has convinced himself that Allah has cured him, what should I do? Teens
- How can I cope with my mom being overly obsessed with things? Teens
- I have two siblings, is it possible that none of us will get HD? Teens
- How old do we have to be to have an HD test? Teens
- Is it normal for the movements to stop at a certain point in HD? Teens
- How do i cope with my dads bursts of anger? Teens
- Questions about eating and choking and what people with HD feel Young adults
- Will having HD in my family affect my chances of becoming a nurse Teens
- Is HD more common in specific genders or groups? Teens
- Are people aware that they might be at high risk of HD? Teens
- What makes people want to be tested for HD? Teens
- What's life like for a parent whose kid has HD? JHD
- How can we stop these diseases? Kids
- HD, moving house, stress, facebook, cures and carers Kids
- Can you hold out your tongue in the early stages of HD? Teens
- My dad doesn't have the gene, is it possible for me to? Teens
- My mother had huntingtons, do I? Young adults
- I don't want to get tested - what are the options for having children? Young adults
- How can I support my friend whose mom has HD? Young adults
- What can I do to help with spilling things and falling? Young adults
- How does getting an HD test affect jobs and insurance? Teens
- Options for having children Young adults
- If no one in my family has been tested can I get tested? Young adults
- How can I help my mum? Teens
- Can I get tested before I'm 18? Teens
- Could I be developing symptomps at 17 Teens
- I've been showing early symptoms of HD, should I get tested? Young adults
- HD and attention Young adults
- Does everyone with the gene get symptoms? Young adults
- Testing and insurance Teens
- Jobs and an HD diagnosis Teens
- Multiple sclerosis and Huntington's disease Young adults
- Repeat count and symptoms Young adults
- What region is most affected by HD? Teens
- School research project questions Teens
- Does anyone else get irritated and angry dealing with HD? Teens
- Is there any way to slow down HD? Young adults
- What are the chances of getting JHD? JHD
- Why do people with Huntingtons not talk well? Teens
- Can you help me explain HD? Teens
- My big brother has JHD JHD
- What are our options for starting a family? Young adults
- How can I help my auntie? Kids
- My dad has HD Kids
- My grandad has HD - am I at risk? Young adults
- Is JHD common? JHD
- How many of us will get HD? Teens
- The panel of experts KidsTeensYoung adultsParentsJHDProfessionals
Creative Expression
- Creative Expression Section KidsTeensYoung adultsParentsJHD
- Poems KidsTeensYoung adultsParentsJHD
- Graffiti KidsTeensYoung adultsParentsJHD
- Videos KidsTeensYoung adultsParentsJHD
- Gone Hunting KidsTeensYoung adultsParentsJHD
- Tattoos KidsTeensYoung adultsParentsJHD
- Pictures KidsTeensYoung adultsParentsJHD
- Blogs KidsTeensYoung adultsParentsJHD
Local Support
- HD Youth Services & Programs in the USA TeensYoung adults
- HD Youth Services & Programs in Western Australia TeensYoung adults
- HD Youth Services & Programs in Canada TeensYoung adults
- HD Youth Services & Programs in England & Wales TeensYoung adults
- HD Youth Services & Programs in Europe TeensYoung adults
- HD Youth Services & Programs in Germany TeensYoung adults
- HD Youth Services & Programs in Scotland TeensYoung adults
- HD Youth Services & Programs in Sweden TeensYoung adults
- HD Youth Services & Programs in Australia and New Zealand TeensYoung adults
- HD Youth Services & Programs in the Netherlands TeensYoung adults
- HD Youth Services & Programs in New South Wales and the Australian Capital Territory TeensYoung adults
HDYO Youth Service
- HDYO US Youth Service KidsTeensYoung adultsParentsJHDProfessionals
Store
- Stress Balls KidsTeensYoung adultsParentsJHDProfessionals
- HDYO Brochure Everyone
- Key Chains KidsTeensYoung adultsParentsJHDProfessionals
- Color changing cups KidsTeensYoung adultsParentsJHDProfessionals
- HDYO wristband KidsTeensYoung adultsParentsJHDProfessionals
- Sounds of Woody Guthrie CD KidsTeensYoung adultsParentsJHDProfessionals
- Pack of 10 HDYO wristbands KidsTeensYoung adultsParentsJHDProfessionals
- One color changing cup KidsTeensYoung adultsParentsJHDProfessionals
- $10 donation KidsTeensYoung adultsParentsJHDProfessionals
- HDYO T-Shirt KidsTeensYoung adultsParentsJHDProfessionals
- HDYO Flyers KidsTeensYoung adultsParentsJHDProfessionals
- HDYO YOYO KidsTeensYoung adultsParentsJHDProfessionals
- What is HD? Brochure KidsTeensYoung adultsParentsJHDProfessionals
- Sunglasses KidsTeensYoung adultsParentsJHDProfessionals
- HDYO Pen Everyone