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Huntington's Disease Youth Organization

Money and HD

HDYO has more information about HD available for young people, parents and professionals on our site:

www.hdyo.org

Q. What are the possible financial impacts to parents?

Justine, Kid, Australia

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A. Dear Justine,

Thanks for your question. Huntington’s disease (HD) can have a big financial impact on parents and HD families. Most people with HD get symptoms when they are between 35 and 50 years of age. At that stage in life many have a family to support and debts (including a housing loan) to pay. That is, they need to work to pay the bills. If the HD is bad they may not be able to work and perhaps other family members will have to give up work to care for them. Fortunately in many rich countries like Australia the government will give them a pension, but it’s not a lot of money. In some countries there are no pensions.

In rich countries like Australia medications and medical care are free or very cheap, but in some countries medical costs can be high and the person with HD or family have to pay for them.

For these reasons, people and families with HD often don’t have much money.

The bad financial impact of HD can have a bad effect on HD families and adds to the stress that the disease already causes. I hope this letter answers your question,

Andrew