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Huntington's Disease Youth Organization

How does HD affect a person?

HDYO has more information about HD available for young people, parents and professionals on our site:

www.hdyo.org

Q. How does HD affect a person?

Luke, Kid, UK

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A. Hi Luke

Thank you for sending in your question to us at HDYO, what a good question too! How does HD affect the person? Well, that depends on the person. The main ways people are affected is through mind, mood and movements. People’s minds can become slower to think about things, plan events, multi-task or hold a conversation. Moods can change too and this can be difficult because a person can change their personality quite a lot when they have HD, they may become ‘lazy’, although they are not meaning to be lazy at all it is just how HD makes them feel. Then there are the movements, people with HD can have lots of movements that they have no real control over, so they can’t sit still easily and this can lead to dropping things, falling over or finding it hard to walk. These are the main ways HD affects people, but people may not have all these. So one person may have lots of movements and no mood problems, and another may have no movements but lots of mood problems. That’s what is hard to predict, we don’t know what kind of issues people will have until they start having them.

I hope that helps, if you need anything else or want to talk more I am right here. Just email me.

Matt