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Huntington's Disease Youth Organization

My dad has HD

HDYO has more information about HD available for young people, parents and professionals on our site:

www.hdyo.org

Q. “My dad has just got HD will he be ok?” Ross, 10, USA

A. Hi Ross,

Thanks for getting in touch. I’m sorry to hear that your dad has got HD, I hope we can answer any questions you might have.

HD - Huntington’s disease - is an illness that affects the brain. You might have noticed some changes in your dad e.g. he might be more grumpy or cross or more clumsy.

These changes usually happen over a long time, years not weeks. A doctor can help your dad with the changes e.g. in walking, talking or being short-tempered. Doctors can’t make people who have HD completely better, but they will be able to give your dad medicines to help. If you want to know more about some of these changes please see the how does HD affect people section on HDYO.

Ross, it would be helpful if you could tell me what you know about HD and how HD affects you and your family? I also want to ask if there is someone in your family, or a special friend, you can talk with about HD?

I hope to hear from you again and please ask if you have any more questions.

Take care,

Karen

HDYO: Hi Ross,

If you want to reply to Karen you can either reply to your email or use the question link to answer back and we will make sure that reply goes straight to Karen so she can discuss this more with you.

In terms of support in America, the Huntington’s Disease Society of America (HDSA) has a youth group called the National Youth Alliance (NYA). The HDSA has a convention each year in America, and the NYA have their very own day before the convention just for young people - there are young people there your age in similar situations. Contact the HDSA using the link above to learn more about the NYA.

Matt, HDYO