- Living in a family with HD The people most affected by Huntington's disease are those that have the condition (obviously). What is not quite as obvious is how the disease impacts hugely on those around the person with...
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- Telling the childrenResearchers want to hear about the challenges and support needs of parents looking to tell their children about HD. Can you help with this study?
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- Talking about JHD with children and young peopleTalking to a child about a medical condition, especially a genetic one is difficult. It is even more difficult when that condition affects them. This section will explore ways to talk to children...
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- Young peoples' experiences of finding out about HDIt is important that, as well as getting the parents' experiences of talking to kids about Huntington's disease, we hear the views and opinions of young people who have been told about the disease...
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