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Global research studies

Enroll-HDTYPJP19301930 people shared this0 commentsEnroll-HD: A study the whole family can participate in What is Enroll-HD?When it comes to HD research studies Enroll-HD is perhaps one of the most significant studies there will be. Enroll-HD, in simple terms, is an observational study, which means there are no drugs involved, it is purely a study to ‘observe’ and gain knowledge about how HD works. To do this participants are only required to attend one appointment each year which lasts about an hour. During this time a number of tests are done and then the results of which are put in to a massive confidential database to be analysed. This...Find out more...
Predict-HDTYPJP00 people shared this0 commentspredictFind out more...
Talking to parentsTYPF117117 people shared this0 commentsDear Parents and Guardians,My name is Dr. Bonnie Hennig-Trestman. I am a clinical researcher, therapist, and Board of Director member with the Huntington’s Disease Youth Organization (HDYO). I have been chosen by the Huntington’s Study Group (HSG) to determine when and how families talk to their kids about Huntington’s Disease (HD). I also plan to ask parents or guardians what resources they feel would be helpful to them when they discuss HD with their children. This information is important because the results of this study are ultimately intended to provide parents and guardians with the...Find out more...

Research updates

HDBuzz Research NewsTYPJP00 people shared this0 commentshdbuzzFind out more...
Nacho's blogTYPJP58785878 people shared this0 commentsWelcome to Nacho's blog! With all the great strides being taken in Huntington’s disease research, Nacho provides a unique insight into how the search for an effective treatment (cure) for Huntington’s disease is progressing. Nacho is a neuroscientist who works for CHDI – an organisation that has been behind the huge increase in funds for Huntington’s disease research over recent years. With his inside knowledge, HDYO highly recommends taking a look at what Nacho has to say on his blog below.http://hdscienceblog.com/Find out more...