Talking to parents
HDYO has more information about HD available for young people, parents and professionals on our site:
Dear Parents and Guardians,
My name is Dr. Bonnie Hennig-Trestman. I am a clinical researcher, therapist, and Board of Director member with the Huntington’s Disease Youth Organization (HDYO). I have been chosen by the Huntington’s Study Group (HSG) to determine when and how families talk to their kids about Huntington’s Disease (HD). I also plan to ask parents or guardians what resources they feel would be helpful to them when they discuss HD with their children. This information is important because the results of this study are ultimately intended to provide parents and guardians with the tools they need to make talking to their children about HD easier.
I am hoping you will agree to be interviewed by me via phone. There are no wrong or right answers to the questions I will ask and all personal information will be kept confidential. Each interview takes about one hour. If you are willing to participate, please contact me at DrBonnie@hdyo.org. Your reply indicates you are providing consent for this interview.
Dr. Bonnie Hennig-Trestman
Board of Directors, HDYO