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News hdyo land 1HDYO LandKPPAre you ready to explore HDYO Land? HDYO Land is an interactive, colourful and fun program aimed to help children learn about Huntington’s disease (HD). In HDYO Land you will be able to visit and explore 5 different areas in which you will meet some wonderful characters who will take you on an adventure through many locations, educating you about HD along the way!In each area of HDYO Land you will learn the basics about different subjects such as:What is HD? How do people get HD? How does HD affect people? Living in a family with HD History of HD Each area is made up of fun characters,...Find out more...
Pexels august de richelieu 4259140HDYO's Top Tips: Talking to Children About HDPPUsing various sources, research studies, and professional advice, HDYO has put together a list of key points for parents/guardians to remember when talking to children about Huntington's disease.Tell all the children at the same time if possibleIt can be tempting, if you have children with varying differences in age, to tell each child about Huntington's disease on different occasions, rather than at the same time. However, it's important to initially tell all the children at the same time about Huntington's disease in a simple manner. Then, afterwards you can discuss it with each age group...Find out more...
Home jhdThe Basics of JHDJPThis section is here to explain the basics of Juvenile Huntington's disease (JHD). As well as provide some insight into the kind of support available for families impacted by JHD. What is JHD?When George Huntington first identified Huntington disease in 1872, he suggested that the disease affects adults only. It is now known that Huntington disease can occur in individuals at any age in their life - young or old. When someone who is 20 or younger develops symptoms of Huntington's disease, they are classed as having Juvenile Huntington's disease (JHD). So effectively 'JHD' means a young...Find out more...
What is hd brainWhat is Huntington's Disease?TYFPHuntington’s Disease (HD) is known as a ‘genetic neurodegenerative disorder’. The word genetic means that this disease is passed down from one generation to the next. Neuro relates to the brain. Degenerative means something that gradually gets worse over time. Disorder is another word for disease. So, when people describe HD, they are saying it is a disease passed down from one family member to another, which affects the brain, and gradually gets worse over time. HD is caused by an expanded gene in our DNA. Everyone has the gene that causes HD, but people that develop the condition have...Find out more...
Pexels gustavo fring 6284851Living in a Family with HDTYPFP The people most affected by Huntington's disease are those that have the condition (obviously). What is not quite as obvious is how the disease impacts hugely on those around the person with Huntington's disease. This section focuses on some of the issues which young people may experience when living or growing up in a family with Huntington's disease. It doesn't cover issues regarding Being At Risk (which can seem quite similar). First finding out about Huntington's diseaseHuntington's disease comes into people's lives at many different ages. Some people may find out about Huntington's...Find out more...
Pexels gustavo fring 6284851Living in a Family with JHDJPThis section is specifically for young people living in a family with Juvenile Huntington's Disease (JHD), who don't have JHD themselves. As we take a look at some of the concerns young people growing up around JHD may have.An early introduction to Huntington's...Often, in a family with JHD, the introduction to the disease for young people happens at a very young age. Children essentially 'grow up' with the disease as a part of their life. Usually young people have to watch their sibling(s) progress with JHD, which can be very difficult to cope with. However, as a result of having the...Find out more...

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