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HDYO Staff Team

March 3, 2021

Huntington's Disease Youth Organization

HDYO has more information about HD available for young people, parents and professionals on our site:


HDYO Staff Team

Here is our current staff team and a summary of what we do, please feel free to reach out to us directly. You can also contact the HDYO Board.

Project Coordinator

Matt Ellison


Hi! My role at HDYO includes developing all the educational project work we do for our website, including video projects, overseeing the youth camps and events HDYO hosts globally, planning future global projects to expand our reach, keeping the website up-to-date, responding to any messages we are sent for support/advice/questions and coordinating our volunteer translation team.

I am the founder of HDYO and come from a HD family. I started working voluntarily on the idea of HDYO in 2010 and it launched in 2012, I have been a staff person since 2013. I also have a degree in Childhood and Youth Studies. I am fortunate to work on something that is a passion for me. Contact details are below!

Email: matt@hdyo.org