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Huntington's Disease Youth Organization

The Impact of Huntington's Disease on Young People

HDYO has more information about HD available for young people, parents and professionals on our site:

The intention of this video is to give a powerful insight into what it is like to be a young person in a family with Huntington’s disease and to clearly demonstrate the need for support services to help young people around the world cope with the impact of HD and flourish in life. The 21 young people who participated in this video shared their own personal experiences of being impacted by HD and how having the condition in the family has affected many areas of their own lives. In doing so they provide an accurate and moving account of what it is like to be a young person impacted by HD.

If any of the footage in the video affects you, email us at, we are here to help.

Last updated: September 04, 2014 10:11