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Huntington's Disease Youth Organization

Top tips for helping a person with HD - for teens

HDYO has more information about HD available for young people, parents and professionals on our site:

www.hdyo.org

Written by Michaela Crutsinger, OTDS

Edited by K. M. Knewstep-Watkins, OTD, OTR/L

This section is here to help teenagers look after their family member who has HD by offering some tips on caring. These tips are split into different topics and stages of HD (early, mid and late stage). We hope you find this section helpful.

Early Stage

Eating and Meals

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A family member with new symptoms of HD may have some difficulties while making and eating meals. Some difficulty can be from their difficulty making smooth movements and other difficulties are related to new, small challenges with certain thinking abilities.

Getting Dressed

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A person with HD may find fasteners, such as shoelaces, buttons, and zippers, more difficult. Fasteners can take more time, attention, and effort to do because of new difficulty with making small, controlled hand movements. At other times, some people with HD may become more likely to forget to line-up the fasteners or even forget to do the fasteners.

Using the bathroom

Driving

Driving safety is important for everyone, always. HD can influence driving safety, and affect skills such as making quick decisions and controlling movements.

Mobility

Home safety

Thinking/Cognitive

Middle Stage

Eating and Meals

Driving/Transportation

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Mobility

Home Safety

Thinking/Cognitive

Late Stage

Eating

Staying at home

Mobility

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Home Safety

Thinking/Cognitive