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Hi so, my grandma had Huntington’s and she had 3 kids. 1 got tested and it was negative and the other 2 did not and the one that did not get tested was my dad. My dad said I go tested right when I was born, But IDK if that was a accurate test could I still have it??

Olivia, Teen, USA

My mum has HD and when I am 18 I was think of getting tested, but I’m not sure whether I want to or not because it might have a big impact on my life, what is your advice?

Hollie, Teen, UK

I found out today my mum has huntingtons she has 43 copies of the gene yet she’s 50 and it’s not too bad yet my auntie had it come on when she was younger so I know what to expect, how long left do I have untill it gets bad

Anon

How can you tell if you have huntington’s disease? And are you able to get it at the age of 13? How do you know if you have it? Is it common in China?

Samantha, Teen, USA

Hi, my aunt and father have HD. Me and my sister are very afraid that we might have it as well. My sister had depression and often has thoughts of suicide because of this. We aren’t old enough to get tested yet but we both want to. I’m just curious as to what treatments are available for HD right now/ could be in the future? How close is a cure?

Angela, Teen, USA

How many people does it affect in the world? Like 1 out of every how many people does it affect?

Renee, Teen, USA

For the people who have Huntington’s Disease and are sick, do they know what’s happening to them and they’re just not able to talk back or do they not know what’s happening around them?

Karen, Teen, USA

How old do you have to be to get tested? How long is the process?

Mia, Teen, USA

How do I stop worrying about JHD?

Anonymous

If I want to get tested at the age of 18 when would I have to counseling

Amy, Teen, UK

My dad is getting tested for HD (and doesn’t know I know this) do I have a right to find out his test results as I have a 50% chance of getting it if it comes back positive?

Jordan, Teen, UK

Can you tell if you Huntington’s disease?

Kirsten, Teen

How old do people with Huntingtons disease live? Do they die from the disease eventually? How common is Huntingtons disease?

Kirsty, Teen, UK

My grandma had HD. My mom has not been tested but is not showing any symptoms. Can I get HD at my age or when I am older even if my mom doesn’t?

Beth, Teen, Canada

Hi , I’m doing a report on huntington disease & I would like to know how does a person with huntington go about being diagnosed . how did it happened.

Tierney, Teen, USA

I was wondering if you could just be a carrier of Huntington’s disease, but still show symptoms or even get the disease?

Gabi, Teen, USA

Do both parents have to be carriers of Huntington’s disease to pass it on to a future child?

Isaiah, Teen, USA

If your nan uncles aunties and mom have huntingtons does that mean that you will as well?

Anonymous, Teen

Hi I’m Elle, My mum, grandad and great auntie have huntingtons and I want to get tested. I’m fine with knowing if I’ve got it or not but the only thing is I have a really bad phobia of needles. I’m desperate to find out but the thought of having a blood test makes me feel sick. Is there anything I can do? Really need some advice.

Elle

Hi! I like a lot your page and it’s helping me a lot. Would you tell me three reasons for not to take the genetic test? Thank you very much.

Silvia, Teen, Spain

How old do you have to be to get tested for Huntingtons? And how long do you have to go to counseling before you can get tested?

Zoe, Teen, USA

my grandmother is 81 and is at risk for HD. Her father was the first one to have. What are our chances of inheriting it?

Michael, Teen, USA

Hello I have some questions regarding the diseases, because my mom has it….

Arvid, Teen, Germany

Can you inherit huntingtons disease from you uncle?

Shelby, Teen, UK

My grandmother has huntingtons and we are not sure if my mother has huntingtons because she won’t get tested. I understand that if my mother has it I have a 50% chance of having it. But if my mother doesn’t have it is there still a risk that I could still have it?

Seth, Teen, Canada

My mum has huntingtons, and I think I might have it due to a lot of clumsiness, is there a chance, what is the chance?

Haydon, Teen, UK

My grandmother had HD and died aged 75. My Dad is much older than my mother and is now 77 but has no signs of HD. Does this mean that it’s unlikely that he won’t get it and therefore I won’t either?

Sandra, Teen, UK

Is there a way to be tested for huntington’s anonymously?

Rain, Teen, UK

My grandmother has Huntingtons and we are not sure if my mom has it or not because she does not want to get tested but if she does have symptoms, in our family usually happen at around 40 or so. I am wondering is it still possible that I could have Juvenile Huntingtons

Seth, Teen, Canada

Q. My grandfather and my father had HD; do I have more chances of developing the disease, being an only child?

Nathalila, Teen, Brazil

Q. My mother has HD and she has 36 CAG repeats. Since she got her diagnosis, 3 months ago, I started an anxiety disorder… Can I develop HD sooner or can this all be psychosomatic, caused by the anxiety that I’m feeling?

Jorge, Teen, Brazil

Q. My dad’s mum has Huntingtons disease, and that scares me a little, what are the chances I could have those genes and could get the same disease?

Erin, Teen, Australia

Q. How old do I need to be to get tested?

Madison, Teen, USA

Q. Hi. My grandmother on my mom’s side died of HD at 51. She had five daughters, and they are all above the age of 40. My mom is the youngest at 48. Only one of them had the disease, and she has passed away at 53 years. The rest of them haven’t been tested but never had symptoms. My mom is 48 and has never had symptoms, could I be at risk?

Darby, Teen, USA

Q. I have a question concerning if I’ll be a carrier of this disease. My grandma was the one with Huntingtons and had two daughters my mother and my aunt. Both of them don’t want to get tested for reasons understood. My mother has a 22 year old son who recently had a baby and the baby got tested for hd and came back negative. does this mean my brother got lucky. Does this mean I won’t get it at all?

Marc, Teen, USA

Q. Hi my Dad has HD, I was wandering why my grandpa got HD when his father never had HD?

Brad, Teen, Australia

Q. If my mum has the disease what are the chances of me getting it? Also….

Kieran, Teen, UK

Q. Do people with HD die of the disease or of natural causes?

Andrew, Teen, USA

Q. Is there any treatment that can reverse this slow process or, at least, that can improve the symptoms?

Brenda, 15, Brazil

Q. What is the youngest age recorded, of someone having symptoms for Huntingtons Disease?

Tyler, Teen, UK

Q. What chromosome is mutated to have huntintons disorder?

Jabba, teen

Q. My Dad has HD, i was just wandering is it likely for me to get the disease now?

Peter, 14, Australia

Q. What does it feel like to have HD (Huntington’s Disease)?

Catie, 15, USA

Q. I don’t have a family history of HD, but I have been noticing some symptoms that seem to be consistent with early HD.

Drew, 18, USA

Q. If I tend to drop things easily or forget about something, is it the symptoms for the disease? And how to confirm that I have this disease?

Najah, 18, Malaysia

Q. I’m writing a paper for school and haven’t found this answer; How do you test for HD? I originally thought it was a blood test but need to know for sure.

Thanks, Darci

Q. what does huntingtons disease really do to your body, how is it caused, how is it cured.

Ashley, 18, USA

Q. If a women is pregnant and has the potential to have HD disease, can you test the baby while it still being in whom to see if it has HD disease?

Emily, 18, Canada

Q. How many people are affected?

Madison, 14, USA

Q. My dad developed juvenile hd in high school at 35 years old over three years ago. Currently I am 17 and I have slurred speech, sometimes even I can’t understand what I’m saying, my family constantly asks me to repeat myself, over and over… do you think I’m showing enough signs to go see a doctor or is it just me being paranoid?

Melinda

Q. I am only 15 however I am looking to the future and thinking about testing. If you do not know if you are going to be tested, do you still get counselling to help you decide?

Oli, 15, UK

Q. I would like to know why for some HD patients it takes so long for the symptoms to appear. If the gene mutation is there since the beginning, why only when those patients get to their 40’s, symptoms start to be visible?

Victor, 19, Brazil

Q. Is there a cure for Huntington’s disease?

Danielle, 17

Q. Hi, i am nearly 17 and i am at risk of huntingtons disease. I am finding it very hard to make the decision. I feel so tempted to have the test as soon as i am 18 but i just don’t know what to do !

Katie, 17, UK

Q. How could the gard protein be inevitable in taking down hd and would it have any side effects ? also could the protein make hd worse?

Keir, Teen, Scotland

Q. Hello!

My dad has got the HD Gene. They always take two blood samples. The counts of the mutant gene were the same in both cases. But for the normal gene there was a difference of 3 repeats. How can that be? Can the count of the mutant gene also be insecure?

Thanks

Efa, 18, Germany

Q. My grandpa has HD he is always ragging on my grandma for some odd reason, this includes yelling and just breaking down in a tantrum, my grandma always gets down on this should I say anything to my grandpa about what he is doing to my grandma this has been going on for a long time but never get the courage to stand up for her, what should I do?

Kellie, 13, USA

How does HD affect an individual’s school life?

Latifa, teen, UK

My sister (29) was diagnosed with HD some weeks ago? How can I learn to handle this? How shall I behave when I meet her?

Mani, 18, Germany

My father had been admitted into full time care, but has convinced himself that Allah cured him and is constantly arguing with his carers that he should be let out. What’s the best thing I should do?

Megan, 17, Australia

How can I cope with my mom being overly obsessed with things? it has gotten worse since she has gotten sicker and I cant handle it.

Ashley, 17, England

My mother has Huntington’s Disease and I have two other siblings. I was curious if there was a possibility that all of us would not develop the trait, or if at least one of us will end up with the disease because of the 1 out of every 2.

Kellie, 18, USA

How old do we have to be to do tests to find out if we are positive or negative? And do we have to do anything prior to having the tests?

Angela, 16-17, Australia

My mom has HD and I was wondering is it normal for the movements to stop at a certain point because i noticed she doesnt move as much anymore but has kind of lost touch with reality a little bit so whats happening what does that mean?

Kort, Teen, USA

How do i cope with my dads bursts of anger?

Reuben, 14, UK

My mother has huntingtons disease I don’t want to be tested for it but I want to become a nurse will it affect my chances of becoming a nurse?

Sophie

Is HD more common in specific genders or groups?

Mary

Are people aware that they might be at high risk of HD?

Jimmy

What makes people want to be tested for HD?

Brianna-Jennifer

Can one hold out his tongue in the early stages of HD?

Faye

My Grandma had huntington’s disease, her first child had it, then it skipped my aunt, then her second child had it, then it skipped my dad. My dad got tested, and doesn’t have the gene. Is it possible for me to get Huntington’s disease?

Louise

If I test for HD and am positive. What impact does this have on jobs/careers/mortgages/insurance etc?

Izzy

How can i help my mum who has the disease?

Ellie

Is there any chance i can get tested before the age of 18?

Sam

My dad has HD and I’m only 17 and I’m scared that I’m already developing symptoms, as I looked them up, is this possible for me to develop the symptoms of HD at my early age?

Joshua

Is it better for me to put down on forms that I may have HD, or that I do have it?

Kiran

Can being diagnosed with HD affect the kind of job you get in future?

Elli

What region in the is more world affected by HD than the rest of the world?

Kimberly

I am currently doing a project on Huntington’s disease for school and I had a few questions concerning the disease.

Camilla

I’m 19 years old and My mom was diagnosed with huntingtons when i was in elementary school, she is in the middle stages now, but seems to be doing well on her trial medicines and tests. I have 2 sisters and I feel like I am so hostile towards my mom all of the time. I stay in my room and almost everything she does, irritates me. I don’t like feeling this way, but i can’t help it. Does anyone else get this way?

Sarah

Why do people with Huntingtons not talk well?

Rebecca, 13, England

My friends don’t understand what HD is and I don’t know how to explain it best. Can you help me explain it better?

Tom, 16, Canada

Me and my two brothers are all at risk. How many of us will get HD?

Sarah, 15, America