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Ask question 1Ask a question for teensT32673267 people shared this0 comments

Welcome to the teenagers area in the ‘ask a question’ section. Do you have any questions about Huntington’s disease that you’ve always wondered about? Well here’s your chance because HDYO has gathered a panel of Huntington’s disease experts to answer any questions you may have.

Feel free to send any questions you have using the form below and we will forward it to who we feel is the appropriate expert to answer your question. You are asked to provide a name, age, country and email address. We would appreciate it if you gave your correct age, location and email address. However, you do not need to give your real name if you don’t want to. Only the name, age and location you provided will be shown on this page, your email will remain private.

We try to answer all questions as quickly as possible. Once a question has been answered it will be available to view in this section and - if you provided an email address - we will forward the answer to your email address. If you aren’t a teenager, please be aware that this area is for questions from teenagers that may not be appropriate for your age range.

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Did I get tested as a baby?T6363 people shared this0 comments

Hi so, my grandma had Huntington’s and she had 3 kids. 1 got tested and it was negative and the other 2 did not and the one that did not get tested was my dad. My dad said I go tested right when I was born, But IDK if that was a accurate test could I still have it??

Olivia, Teen, USA

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I'm not sure if I should get testedT5555 people shared this0 comments

My mum has HD and when I am 18 I was think of getting tested, but I’m not sure whether I want to or not because it might have a big impact on my life, what is your advice?

Hollie, Teen, UK

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My mum has 43 repeats - what to expectT7272 people shared this0 comments

I found out today my mum has huntingtons she has 43 copies of the gene yet she’s 50 and it’s not too bad yet my auntie had it come on when she was younger so I know what to expect, how long left do I have untill it gets bad

Anon

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How common is HD in China?T6565 people shared this0 comments

How can you tell if you have huntington’s disease? And are you able to get it at the age of 13? How do you know if you have it? Is it common in China?

Samantha, Teen, USA

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Me and my sister might have HD. How close is a cure?T9292 people shared this0 comments

Hi, my aunt and father have HD. Me and my sister are very afraid that we might have it as well. My sister had depression and often has thoughts of suicide because of this. We aren’t old enough to get tested yet but we both want to. I’m just curious as to what treatments are available for HD right now/ could be in the future? How close is a cure?

Angela, Teen, USA

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How many people does HD affect in the world?T9292 people shared this0 comments

How many people does it affect in the world? Like 1 out of every how many people does it affect?

Renee, Teen, USA

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Do people with HD know what's happening?T9393 people shared this0 comments

For the people who have Huntington’s Disease and are sick, do they know what’s happening to them and they’re just not able to talk back or do they not know what’s happening around them?

Karen, Teen, USA

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When can I be tested? How long does it take?T7676 people shared this0 comments

How old do you have to be to get tested? How long is the process?

Mia, Teen, USA

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How do I stop worrying about JHD?T9191 people shared this0 comments

How do I stop worrying about JHD?

Anonymous

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Do I need counseling to get tested at 18?T116116 people shared this0 comments

If I want to get tested at the age of 18 when would I have to counseling

Amy, Teen, UK

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Do I have a right to see my dad's test result?T128128 people shared this0 comments

My dad is getting tested for HD (and doesn’t know I know this) do I have a right to find out his test results as I have a 50% chance of getting it if it comes back positive?

Jordan, Teen, UK

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Can you tell if you Huntington’s disease?T264264 people shared this0 comments

Can you tell if you Huntington’s disease?

Kirsten, Teen

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How old do people with HD live to?T125125 people shared this0 comments

How old do people with Huntingtons disease live? Do they die from the disease eventually? How common is Huntingtons disease?

Kirsty, Teen, UK

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My mom isn't showing symptoms, can I get HD?T9999 people shared this0 comments

My grandma had HD. My mom has not been tested but is not showing any symptoms. Can I get HD at my age or when I am older even if my mom doesn’t?

Beth, Teen, Canada

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How do you go about being diagnosed?T138138 people shared this0 comments

Hi , I’m doing a report on huntington disease & I would like to know how does a person with huntington go about being diagnosed . how did it happened.

Tierney, Teen, USA

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Can you be just a carrier?T121121 people shared this0 comments

I was wondering if you could just be a carrier of Huntington’s disease, but still show symptoms or even get the disease?

Gabi, Teen, USA

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Do both parents have to have HD?T105105 people shared this0 comments

Do both parents have to be carriers of Huntington’s disease to pass it on to a future child?

Isaiah, Teen, USA

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If lots of people in your family have HD do you?T178178 people shared this0 comments

If your nan uncles aunties and mom have huntingtons does that mean that you will as well?

Anonymous, Teen

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I'm fine to know but have a phobia of needlesT179179 people shared this0 comments

Hi I’m Elle, My mum, grandad and great auntie have huntingtons and I want to get tested. I’m fine with knowing if I’ve got it or not but the only thing is I have a really bad phobia of needles. I’m desperate to find out but the thought of having a blood test makes me feel sick. Is there anything I can do? Really need some advice.

Elle

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Why might I not want the genetic test?T175175 people shared this0 comments

Hi! I like a lot your page and it’s helping me a lot. Would you tell me three reasons for not to take the genetic test? Thank you very much.

Silvia, Teen, Spain

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How old do you have to be to get tested?T144144 people shared this0 comments

How old do you have to be to get tested for Huntingtons? And how long do you have to go to counseling before you can get tested?

Zoe, Teen, USA

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My Grandmother is at risk. What are my chances?T157157 people shared this0 comments

my grandmother is 81 and is at risk for HD. Her father was the first one to have. What are our chances of inheriting it?

Michael, Teen, USA

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Six questions about testing, symptoms and treatmentT244244 people shared this0 comments

Hello I have some questions regarding the diseases, because my mom has it….

Arvid, Teen, Germany

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Can you inherit HD from your uncle?T150150 people shared this0 comments

Can you inherit huntingtons disease from you uncle?

Shelby, Teen, UK

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If my mother doesn't have HD could I still have it?T129129 people shared this0 comments

My grandmother has huntingtons and we are not sure if my mother has huntingtons because she won’t get tested. I understand that if my mother has it I have a 50% chance of having it. But if my mother doesn’t have it is there still a risk that I could still have it?

Seth, Teen, Canada

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I have a lot of clumsiness and my mum has HD - do I have HD?T132132 people shared this0 comments

My mum has huntingtons, and I think I might have it due to a lot of clumsiness, is there a chance, what is the chance?

Haydon, Teen, UK

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My dad is 77 - can he still get HD?T147147 people shared this0 comments

My grandmother had HD and died aged 75. My Dad is much older than my mother and is now 77 but has no signs of HD. Does this mean that it’s unlikely that he won’t get it and therefore I won’t either?

Sandra, Teen, UK

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Can you get tested for HD anonymously?T197197 people shared this0 comments

Is there a way to be tested for huntington’s anonymously?

Rain, Teen, UK

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My mum does not want to test, can I have JHD?T362362 people shared this0 comments

My grandmother has Huntingtons and we are not sure if my mom has it or not because she does not want to get tested but if she does have symptoms, in our family usually happen at around 40 or so. I am wondering is it still possible that I could have Juvenile Huntingtons

Seth, Teen, Canada

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As an only child do I have a higher risk of HD?T933933 people shared this0 comments

Q. My grandfather and my father had HD; do I have more chances of developing the disease, being an only child?

Nathalila, Teen, Brazil

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Are my symptoms anxiety or Huntington's disease?T11231123 people shared this0 comments

Q. My mother has HD and she has 36 CAG repeats. Since she got her diagnosis, 3 months ago, I started an anxiety disorder… Can I develop HD sooner or can this all be psychosomatic, caused by the anxiety that I’m feeling?

Jorge, Teen, Brazil

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My dad's mum has HD, what are my chances?T130130 people shared this0 comments

Q. My dad’s mum has Huntingtons disease, and that scares me a little, what are the chances I could have those genes and could get the same disease?

Erin, Teen, Australia

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How old do I need to be to get tested?T143143 people shared this0 comments

Q. How old do I need to be to get tested?

Madison, Teen, USA

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My mom is 48 and has never had symptoms, am I at risk?T140140 people shared this0 comments

Q. Hi. My grandmother on my mom’s side died of HD at 51. She had five daughters, and they are all above the age of 40. My mom is the youngest at 48. Only one of them had the disease, and she has passed away at 53 years. The rest of them haven’t been tested but never had symptoms. My mom is 48 and has never had symptoms, could I be at risk?

Darby, Teen, USA

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If my brother's baby doesn't have HD will I get it?T173173 people shared this0 comments

Q. I have a question concerning if I’ll be a carrier of this disease. My grandma was the one with Huntingtons and had two daughters my mother and my aunt. Both of them don’t want to get tested for reasons understood. My mother has a 22 year old son who recently had a baby and the baby got tested for hd and came back negative. does this mean my brother got lucky. Does this mean I won’t get it at all?

Marc, Teen, USA

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Why did my grandpa get HD when his father didn't?T866866 people shared this0 comments

Q. Hi my Dad has HD, I was wandering why my grandpa got HD when his father never had HD?

Brad, Teen, Australia

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If my mum has the disease what are the chances of me getting it?T147147 people shared this0 comments

Q. If my mum has the disease what are the chances of me getting it? Also….

Kieran, Teen, UK

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Do people with HD die of the disease or of natural causes?T614614 people shared this0 comments

Q. Do people with HD die of the disease or of natural causes?

Andrew, Teen, USA

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Are there treatments to improve the symptoms?T892892 people shared this0 comments

Q. Is there any treatment that can reverse this slow process or, at least, that can improve the symptoms?

Brenda, 15, Brazil

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What is the youngest recorded age for HD symptoms?T174174 people shared this0 comments

Q. What is the youngest age recorded, of someone having symptoms for Huntingtons Disease?

Tyler, Teen, UK

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What chromosome is mutated in HD?T523523 people shared this0 comments

Q. What chromosome is mutated to have huntintons disorder?

Jabba, teen

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My Dad has HD, am I likely to have it?T507507 people shared this0 comments

Q. My Dad has HD, i was just wandering is it likely for me to get the disease now?

Peter, 14, Australia

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What does HD feel like?T577577 people shared this0 comments

Q. What does it feel like to have HD (Huntington’s Disease)?

Catie, 15, USA

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I don't have a family history, could I have HD?T412412 people shared this0 comments

Q. I don’t have a family history of HD, but I have been noticing some symptoms that seem to be consistent with early HD.

Drew, 18, USA

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Dropping things and being forgetfulT369369 people shared this0 comments

Q. If I tend to drop things easily or forget about something, is it the symptoms for the disease? And how to confirm that I have this disease?

Najah, 18, Malaysia

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How do you test for HD?T306306 people shared this0 comments

Q. I’m writing a paper for school and haven’t found this answer; How do you test for HD? I originally thought it was a blood test but need to know for sure.

Thanks, Darci

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How is HD caused?T483483 people shared this0 comments

Q. what does huntingtons disease really do to your body, how is it caused, how is it cured.

Ashley, 18, USA

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Can you test a baby during pregnancy?T611611 people shared this0 comments

Q. If a women is pregnant and has the potential to have HD disease, can you test the baby while it still being in whom to see if it has HD disease?

Emily, 18, Canada

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How many people are affected?T13191319 people shared this0 comments

Q. How many people are affected?

Madison, 14, USA

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My dad had JHD, should I see a doctor?TJ15571557 people shared this0 comments

Q. My dad developed juvenile hd in high school at 35 years old over three years ago. Currently I am 17 and I have slurred speech, sometimes even I can’t understand what I’m saying, my family constantly asks me to repeat myself, over and over… do you think I’m showing enough signs to go see a doctor or is it just me being paranoid?

Melinda

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Counselling for testingT571571 people shared this0 comments

Q. I am only 15 however I am looking to the future and thinking about testing. If you do not know if you are going to be tested, do you still get counselling to help you decide?

Oli, 15, UK

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Symptoms take a long time for some peopleT363363 people shared this0 comments

Q. I would like to know why for some HD patients it takes so long for the symptoms to appear. If the gene mutation is there since the beginning, why only when those patients get to their 40’s, symptoms start to be visible?

Victor, 19, Brazil

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Is there a cure?T349349 people shared this0 comments

Q. Is there a cure for Huntington’s disease?

Danielle, 17

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Should I have the test when I turn 18?T596596 people shared this0 comments

Q. Hi, i am nearly 17 and i am at risk of huntingtons disease. I am finding it very hard to make the decision. I feel so tempted to have the test as soon as i am 18 but i just don’t know what to do !

Katie, 17, UK

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The gard proteinT587587 people shared this0 comments

Q. How could the gard protein be inevitable in taking down hd and would it have any side effects ? also could the protein make hd worse?

Keir, Teen, Scotland

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How can there be a difference of 3 repeats in the test?T792792 people shared this0 comments

Q. Hello!

My dad has got the HD Gene. They always take two blood samples. The counts of the mutant gene were the same in both cases. But for the normal gene there was a difference of 3 repeats. How can that be? Can the count of the mutant gene also be insecure?

Thanks

Efa, 18, Germany

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My grandpa yells at my grandma, what should I do?T490490 people shared this0 comments

Q. My grandpa has HD he is always ragging on my grandma for some odd reason, this includes yelling and just breaking down in a tantrum, my grandma always gets down on this should I say anything to my grandpa about what he is doing to my grandma this has been going on for a long time but never get the courage to stand up for her, what should I do?

Kellie, 13, USA

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How does HD affect an individual’s school life?T11191119 people shared this0 comments

How does HD affect an individual’s school life?

Latifa, teen, UK

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How should I handle my sister being diagnosed with HD?T14401440 people shared this0 comments

My sister (29) was diagnosed with HD some weeks ago? How can I learn to handle this? How shall I behave when I meet her?

Mani, 18, Germany

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My father has convinced himself that Allah has cured him, what should I do?T14591459 people shared this0 comments

My father had been admitted into full time care, but has convinced himself that Allah cured him and is constantly arguing with his carers that he should be let out. What’s the best thing I should do?

Megan, 17, Australia

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How can I cope with my mom being overly obsessed with things?T10781078 people shared this0 comments

How can I cope with my mom being overly obsessed with things? it has gotten worse since she has gotten sicker and I cant handle it.

Ashley, 17, England

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I have two siblings, is it possible that none of us will get HD?T14141414 people shared this0 comments

My mother has Huntington’s Disease and I have two other siblings. I was curious if there was a possibility that all of us would not develop the trait, or if at least one of us will end up with the disease because of the 1 out of every 2.

Kellie, 18, USA

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How old do we have to be to have an HD test?T14501450 people shared this0 comments

How old do we have to be to do tests to find out if we are positive or negative? And do we have to do anything prior to having the tests?

Angela, 16-17, Australia

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Is it normal for the movements to stop at a certain point in HD?T21092109 people shared this0 comments

My mom has HD and I was wondering is it normal for the movements to stop at a certain point because i noticed she doesnt move as much anymore but has kind of lost touch with reality a little bit so whats happening what does that mean?

Kort, Teen, USA

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How do i cope with my dads bursts of anger?T13241324 people shared this0 comments

How do i cope with my dads bursts of anger?

Reuben, 14, UK

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Will having HD in my family affect my chances of becoming a nurseT14981498 people shared this0 comments

My mother has huntingtons disease I don’t want to be tested for it but I want to become a nurse will it affect my chances of becoming a nurse?

Sophie

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Is HD more common in specific genders or groups?T15651565 people shared this0 comments

Is HD more common in specific genders or groups?

Mary

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Are people aware that they might be at high risk of HD?T22892289 people shared this0 comments

Are people aware that they might be at high risk of HD?

Jimmy

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What makes people want to be tested for HD?T14221422 people shared this0 comments

What makes people want to be tested for HD?

Brianna-Jennifer

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Can you hold out your tongue in the early stages of HD?T14351435 people shared this0 comments

Can one hold out his tongue in the early stages of HD?

Faye

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My dad doesn't have the gene, is it possible for me to?T14681468 people shared this0 comments

My Grandma had huntington’s disease, her first child had it, then it skipped my aunt, then her second child had it, then it skipped my dad. My dad got tested, and doesn’t have the gene. Is it possible for me to get Huntington’s disease?

Louise

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How does getting an HD test affect jobs and insurance?T14611461 people shared this0 comments

If I test for HD and am positive. What impact does this have on jobs/careers/mortgages/insurance etc?

Izzy

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How can I help my mum?T13041304 people shared this0 comments

How can i help my mum who has the disease?

Ellie

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Can I get tested before I'm 18?T973973 people shared this0 comments

Is there any chance i can get tested before the age of 18?

Sam

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Could I be developing symptomps at 17T988988 people shared this0 comments

My dad has HD and I’m only 17 and I’m scared that I’m already developing symptoms, as I looked them up, is this possible for me to develop the symptoms of HD at my early age?

Joshua

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Testing and insuranceT10341034 people shared this0 comments

Is it better for me to put down on forms that I may have HD, or that I do have it?

Kiran

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Jobs and an HD diagnosisT10201020 people shared this0 comments

Can being diagnosed with HD affect the kind of job you get in future?

Elli

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What region is most affected by HD?T32313231 people shared this0 comments

What region in the is more world affected by HD than the rest of the world?

Kimberly

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School research project questionsT776776 people shared this0 comments

I am currently doing a project on Huntington’s disease for school and I had a few questions concerning the disease.

Camilla

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Does anyone else get irritated and angry dealing with HD?T615615 people shared this0 comments

I’m 19 years old and My mom was diagnosed with huntingtons when i was in elementary school, she is in the middle stages now, but seems to be doing well on her trial medicines and tests. I have 2 sisters and I feel like I am so hostile towards my mom all of the time. I stay in my room and almost everything she does, irritates me. I don’t like feeling this way, but i can’t help it. Does anyone else get this way?

Sarah

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Why do people with Huntingtons not talk well?T10421042 people shared this0 comments

Why do people with Huntingtons not talk well?

Rebecca, 13, England

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Can you help me explain HD?T26412641 people shared this0 comments

My friends don’t understand what HD is and I don’t know how to explain it best. Can you help me explain it better?

Tom, 16, Canada

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How many of us will get HD?T23522352 people shared this0 comments

Me and my two brothers are all at risk. How many of us will get HD?

Sarah, 15, America

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The panel of expertsKTYPJP74977497 people shared this0 comments

Who are the experts? Find out about our panel of experts here!

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