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Huntington's Disease Youth Organization

Counselling for testing

HDYO has more information about HD available for young people, parents and professionals on our site:

Q. I am only 15 however I am looking to the future and thinking about testing. If you do not know if you are going to be tested, do you still get counselling to help you decide?

Oli, 15, UK

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A. Hi Oli,

Thank you for sending your question in to HDYO. This is an excellent question, and something that lots of people do not realise. The answer is yes, you can absolutely go and speak with a genetic counsellor about HD without knowing if you want to test or not. The genetic counsellor will help you decide if testing is what you want to do, and if so, when to do it. It is always your choice though, the genetic counsellor will just help you look at the options.

If you would like to get in touch with a genetic counsellor you can ask for a referral through your local GP, or contact your local genetics department directly.

I hope this answers your question.

Take care,


Last updated: March 07, 2014 11:39