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Huntington's Disease Youth Organization

How many people are affected?

HDYO has more information about HD available for young people, parents and professionals on our site:

Q. How many people are affected?

Madison, 14, USA

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A. Hi Madison,

Good question! In the US there are estimated to be around 30,000 people with HD. But many feel this is probably an underestimate. New research suggests that around 1 in 8,000 people in the Western world (Europe and North America) have HD. It used to be thought it was 1 in 10,000. But we are seeing more cases of HD now due to better support and medical knowledge.

Take care,


Last updated: March 04, 2014 11:39