Home English Sign in or join HDYO Kids Teens Young adults Parents JHD Friends Professionals News About Us Videos Books HD Research Fundraising Events Ask a Question Creative Expression Local Support HDYO Youth Service Links Contact Us Terms Privacy Language Sitemap Donate Store

What is the youngest recorded age for HD symptoms?

January 2, 2015

Huntington's Disease Youth Organization

HDYO has more information about HD available for young people, parents and professionals on our site:

www.hdyo.org

What is the youngest recorded age for HD symptoms?

Q. What is the youngest age recorded, of someone having symptoms for Huntingtons Disease?

Tyler, Teen, UK

Ask a question

A. Dear Tyler,

Thanks for this very thoughtful question.

The youngest person I ever heard about with the symptoms of HD was 2 years of age. I don’t know if this was ever published in a scientific journal but it was told to me by a very reliable work colleague.

The youngest person with HD symptoms I’ve ever seen in my clinic was 13 years old.

This is a very rare thing, most people don’t start obvious symptoms until their 30s and 40s.

Best wishes

Hugh Rickards