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Huntington's Disease Youth Organization

How old do I need to be to get tested?

HDYO has more information about HD available for young people, parents and professionals on our site:

Q. How old do I need to be to get tested?

Madison, Teen, USA

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A. Hi Madison,

The recommendation is that predictive testing for HD is offered from 18 years. The reason behind proposing18 years is that a predictive test remains a big decision that can potentially affect many areas of an individual’s life. There is also quite a lot to know in terms of how the test works/possible test outcomes etc. If you wanted to explore your options and learn more about HD (including what is involved in having a predictive test if that is something you would like to know more about), you don’t have to wait until 18 – you can ask to be referred to your nearest genetic centre now. You might find the link to the Huntington’s Society of America website (HDSA) useful

If you would like any help making contact with a genetic counsellor, do please let either myself or Chandler know. Best wishes,


Last updated: March 29, 2015 15:08