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Huntington's Disease Youth Organization

How old do I need to be to get tested?

HDYO has more information about HD available for young people, parents and professionals on our site:

www.hdyo.org

Q. How old do I need to be to get tested?

Madison, Teen, USA

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A. Hi Madison,

The recommendation is that predictive testing for HD is offered from 18 years. The reason behind proposing18 years is that a predictive test remains a big decision that can potentially affect many areas of an individual’s life. There is also quite a lot to know in terms of how the test works/possible test outcomes etc. If you wanted to explore your options and learn more about HD (including what is involved in having a predictive test if that is something you would like to know more about), you don’t have to wait until 18 – you can ask to be referred to your nearest genetic centre now. You might find the link to the Huntington’s Society of America website (HDSA) useful http://www.hdsa.org/.

If you would like any help making contact with a genetic counsellor, do please let either myself or Chandler know. Best wishes,

Rhona