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Huntington's Disease Youth Organization

Why might I not want the genetic test?

HDYO has more information about HD available for young people, parents and professionals on our site:

www.hdyo.org

Q. Hi! I like a lot your page and it’s helping me a lot. Would you tell me three reasons for not to take the genetic test? Thank you very much.

Silvia, Teen, Spain

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A. Hi Silvia

Thank you for your message and question! I am glad to hear you have found our website useful. Three reasons for not wanting to take the genetic test? Well, ok, I will do my best to help. Did you know that the majority of people at risk for HD don’t get tested? It’s an interesting piece of information. Sometimes it is easy to think ‘surely people would test if at risk?’ but most people choose not to. Reasons for this include:

I hope this helps, I am here to chat if you wish.

Thanks

Matt