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Huntington's Disease Youth Organization

How do I stop worrying about JHD?

HDYO has more information about HD available for young people, parents and professionals on our site:

Q. How do I stop worrying about JHD?


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A. Hi, this is a tough question as I’m not sure what your situation is. Whether you are concerned about getting JHD or are you in a family that has JHD already? I’d really like to talk some more with you about your situation so feel free to email me at

That said, JHD is quite rare even in HD families. 10% of those with HD have JHD so the chances of getting it are low even if you are at risk for HD. If you are in a family with JHD already then there may be more valid reasons to be worried about it. But I’d love to talk with you more about this.

Try not to worry for now.


Last updated: June 20, 2017 19:05