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Huntington's Disease Youth Organization

Huntington's and Me

HDYO has more information about HD available for young people, parents and professionals on our site:

Alison Gray

Book cover

Young people affected by Huntington’s need to have correct and up to date information as early as possible young people want to know the truth and this must be provided in such a way that it is informative and factual, as well as supportive. With predictive testing available to those eighteen and over, the young must have this information early so that they have time to consider the implications of testing, not only on themselves, but also their family and friends.

This book provides the latest information about HD and offers strategies for coping with the immediate and long-term challenges. It is soundly based on the experiences of young people themselves. Some have just learned that HD is in their family , others are considering predictive testing themselves. Some have already experienced the loss of a parent.

The Book shows that the experience of coping with HD is not all negative. Young People with HD families gain strength and courage. They learn to face the present and future with love, acceptance, compassion and hope. This book is an essential guide for that journey for both young people and adults.

Find out more here…